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LoriSue

Thank you, Thank you, a million thank yous to everyone who replied to my previous posts. Your support has keep me going these last couple weeks. It made all the difference in the world. I had some good news today. I finally found a doctor to listen to me. I had a regular follow-up appointment with my G.I. doc and during the course of our visit she asked why I wasn't taking my digoxin. I told her that my PCP took me off it and I have been feeling really bad this week. I also told her about the increase in arrythmias this week and the passing out episode in my barn on Tuesday. She immediately stopped me and asked who my Cardio was. I told her I didn't have one. Her jaw hit the floor. She said I definitely needed one. She said I should have been sent for a consult when the Bivalve was diagnosed 18 months ago. I told her I had asked for a referral but the PCP wasn't cooperating. That was the first time I have ever seen a doc show such emotion. She was pretty animated after I told her about the PCP saying that the swelling feet was probably due to my age (40). I also told her that the second PCP that I saw last week attributed my symptoms to anxiety and offered to prescribe something. At that point she stood up and literally walked me to the cardio's office at the other end of the building and took me into his nurses station and ordered a new echo, holter monitor and set up an appointment with the Cardio while I was standing there with her!
The echo and stuff is all set for next week and then my appointment with him is for the week after that when he has all the stuff back. Then she turned to me and told me to go down to the lab when I was done there and so I did. When I got down to the lab, she had already called and had ordered a bunch of blood work (can't even remember it all now), and urinalysis. Before she left me to go back to her office she made a comment about how wrong it was for PCPs to blame blatantly obvious symptoms on stress or anxiety and no wonder heart disease is the number one killer of women, maybe it isn't the women under reporting their symptoms....maybe it was the doctors ignoring them.
Needless to say....I was in awe. I wanted to kiss this woman.
So what I want to say to everyone is thank you so much for giving me the courage to keep going and have faith in myself instead of cowering down and giving in. For everyone out there that might be having a hard time finding appropriate medical care, don't let a few crappy doctors stand in the way of you finding the really good ones that are really dedicated to healing.
Lori
 
Yay, Lori, I am proud of you & SOOOOOO glad for you .... I was not kidding when I said I was really worried when I read that list of symptoms. I just couldn't believe you didn't get a referral to a cardio ages ago. Hope it is all good news for you from now on in.

But then I guess I was basing my reaction on my own experience. I was sent to cardiology right away. I wonder if I had had a different experience -- if I'd had the same experience with doctors that you had -- would I have said to myself, Oh well, they are doctors, they know better than me. And then who knows what would have happened down the road. Your story makes me more and more grateful to the PCP who caught my problem without even any symptoms and sent me to the cardio, who ordered a cath and sent me RIGHT AWAY after that to the surgeon. I am so lucky. I am seeing the PCP next week and I will try to tell him how appreciative I am.
 
It is unfortunate that the medical profession has deteriorated to the point that it has, I'm seeing it everywhere. What really upsets me is those folks who cannot, for one reason or another, go Doctor shopping and are stuck with these incompetents.

Glad it's all working out for you in the end here. Keep us up to speed with whats going on.
 
Lori-

Your post brought tears to my eyes. It just felt that you had someone looking over your shoulder and guiding you. Here was all this help in the most unexpected situation. Congratulations, and what a gem of a doctor you have in that wonderful G.I. doctor. She is one in a million.

I am so relieved for you, you can't imagine.

Never just "settle" for terrible care. Good doctors do exist.
 
That's the Stuff!

That's the Stuff!

I'm so proud of you, Lori, for taking charge! This is promising, and if this kind of attention continues, it will make your care a lot less stressful. I have seen several stories recently about doctors not taking women's heart symptoms seriously - in many cases they have categorized it internally as a "Men's problem" so they don't go down the road of checking out the cardiac health of a woman with clear heart symptoms.

I count myself fortunate - VERY fortunate. My cardiologist speaks to me with respect, answers my questions to any level of detail I want, and even responds to my emails on the weekend, for cryin' out loud. :D . I also have seen so many situations like yours where the doctor thinks that if the paperwork is in order, and the file is put away neatly, their obligation is fulfilled.

I hope it continues to go well for you.

BTW - what part of Washington? I gather from previous posts you may be down around Vancouver. I have family down that way.

Johnny
 
Lisa,

I'm so relieved that you are getting tested and will have everything reviewed by a cardiologist. Whew!

How about getting your PCP's e-mail address for us so we can all flame him? ;)
 
HIP HIP HOORAH! I was worried about you. I am so glad you are on a path towards recovery and feeling better! :)

Way to go!! That is great news!
 
Lori, you are an inspiration. I was so happy to read your post! Congratulations!

I've found the VR.com community tremendously supportive, especially a few experienced individuals who push and push for a proper diagnosis and treatment plan.

It's amazing how women are treated in the field of cardiology. My former cardio (whom I fired) used to compare me to a marathon runner who had moderate aortic insufficiency but could still run miles upon miles. I reminded him that I'm female and have had three children! That has to equate to about a ... hmmmmm ... a 3x10 months marathon!

Keep us posted and take care -- someone above is looking out for you, mah dear.
 
LoriSue - I am SOOO glad and relieved to hear that you are finally receiving proper medical attention. Please let us know the results of your tests and treatment plan.

In the meantime, DO NOT PUSH Yourself. We want you to get through those diagnostic tests first!

Best wishes,

'AL'
 
LoriSue

LoriSue

I, think, Cardiologist are the last doctor's..that your PCP'S think you need to see...:eek: My PCP sent me to every doctor..for 3 month's..thinking, acid reflux..Nope, GI doctor, nope..ENT Doctor, nope, ..all test normal..then ..he finally said..Cardiologist..Yup..heard a murmur..MRI..Cat scan and Cath of heart and 3 days later surgery..5.0 Aneurysm..:eek: :eek: :eek: Could have burst during those 3 months..looking for something:mad: :mad: :mad: :mad: But, I still love him..He (PCP) watches me like a Hawk now...See him every 6 months and he makes me take all tests..All turning out normal...Never once..did he tell me..I was just pretending something was wrong? He just didn't see the aneurysm..So hard to detect.:mad: :mad: :mad: :mad: :mad: Hope all turns out well for you. Bonnie
 
You know what, Lori Sue....I think that GI doc is probably your guardian angel :)
I'm so glad to hear that you are hopefully on your way to proper treatment.
It angers me so when I hear that yet another doctor has told a women that the heart symptoms she is experiencing is "anxiety" or "just all in her head"!:mad:
I have had a few run ins with PCP's in the past that have really floored me.
Just last week, I went in for a sinus infection and as he was listening to my lungs he asked "do you smoke?" I said "ARE YOU KIDDING....do you think that with all I've been through with my heart that I would start doing something STUPID like that??!!:eek: :confused: :eek:
His response...."well, I guess not".:rolleyes:
Keep us posted as to what you find out...AND please if you have anymore of those fainting spells....have someone get you to the ER!:)
 
Thanks guys! I feel so much more emotionally stable tonight. Physically I am still exhausted but for some reason right now....I am okay with that.

Nancy:
You are right, my G.I. doc is one in a million. I plan on letting her know that too. I was kind of in awe at the time but I feel it is important to let her know how much it means to me for her to listen. And by the way....Your slogan, Never give in and never give up is now my screen saver!

Johnny:
I live by Olympia. I thought about finding a cardio at UW but sometimes the traffic up there makes me nuts. Did you guys get to enjoy the hail this afternoon? I know my horses hated every minute of it. LOL

Bill:
LOL, I can just see the look on my PCP's face if he got all those e-mails, LOL.

Marge:
I was worried too. Do give your PCP a big hug! It is comforting to know that not everyone has had such horrible experiences.

Ross:
Thank the lord I am not stuck with one Physician! I know there are a lot of complaints about medicare coverage but it doesn't seem to be posing me any problems. It would be nice to have prescription coverage though.

Marsha:
Maybe the solution to bad cardiac medical care for women is for me to apply to medical school and in 7 or so years I can specialize in treating women with cardiac issues! LOL

Bethanne:
This is phenomenal news for me and I will make sure to post the results when I know something. I am also considering getting a copy of the echo video for my class. Next quarter I start with the Cardiovascular system and I have some students that will be going into echo tech programs. I plan to emphasize how important it is for them to do a very thorough job and what the implications are if they are not meticulous.

Kim:
I think you are right, someone was looking out for me today. As a side note.......for some reason I put my Saint Christopher around my neck before I left this morning. I hadn't worn it in months but I looked down while I was sitting in the waiting room and noticed I was wearing it. I didn't even remember putting it on. I thought it was odd at the time but maybe it wasn't so weird after all.

Al:
I definitely am going to take good care of myself and not push it this week. You have a good point, I was so happy today that I wanted to go out and ride my horse and I put my boots on and everything and then it started hailing. It went from sunshine to hail in about 30 seconds....probably for the best.

Bonnie:
Didn't those 3 months drive you nuts? It has only been a month or so for me and it was really getting to me.
"Never stand afar and view with fear and trembling that which lies in your way. Face it boldly and see how very small it is, after all" - I LOVE THAT! I am going to make a poster with that and hang it in my office for my students.

Julia,
If I faint again my fiancee will drag me to the ER. I don't really have a choice anymore. I think I am definitely on the right path now. Keep your fingers crossed for me!

Thanks Guys!
 
I'm SOOOOOOOOOOO glad you found a GP who is taking you seriously and has made sure you are getting the proper medical attention you require.

I've been lucky to find a gem of a doctor like this and it really does make such a difference when someone PAYS ATTENTION to what you are saying and doesn't just dismiss you as some mentally unstable, hyperchondriac. My GP is of the opinion that all options should be examined - even if only to eliminate them as culprits of symptoms.

YAY for you LoriSue :D :D

Cheers
Anna : )
 
Anna, You are definitely right. I feel so much better. I feel like I have been validated. I never doubted my symptoms.....just my sanity. It amazes me how easily I am affected by a male attitude I always thought I was a stronger woman than that. This is opening my eyes to a few flaws that I have.....and I don't mean the bivalve! LOL
Thanks Anna, Take Care,
Lori
 
Is funny, I was just chatting to my Aunt about this earlier today and we both agreed that you can talk to your friends and family about these things - no problem, but get me in a doctor's office and I start falling apart. I don't know why.... maybe it's because they're the "experts" and are ultimately responsible for what happens to you (..this is why they think I'm depressed and anxious - but I think it's pretty normal to be anxious when you're at the doctors..).

Again - so glad you've found a winner!!

All the best
Anna : )
 
Always remember that everyone person on the planet is a human being first, in spite of all of the "trappings". We ALL have flaws and foibles and fears and inadequacies. That applies to the mightiest of us as well as the lowliest.

Every magnificent statue can have "clay feet".
 
Nancy said:
Always remember that everyone person on the planet is a human being first, in spite of all of the "trappings". We ALL have flaws and foibles and fears and inadequacies. That applies to the mightiest of us as well as the lowliest.

Every magnificent statue can have "clay feet".

Wrong! I'm perfect, unblemished even. :D
 
Ross and Nancy.....
Maybe I should post that in big letters on my wall, so that I don't forget it! LOL
Lori
 
Lori is you knew me like Nancy does, you'd really appreciate the joke on this one! :D It's still worth printing out and living by though. ;)
 
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