Heart Talk (still in the waiting room)

[Marie-62]

In July of 2016, found out I had aortic stenosis. Did a lot of research, got unto this wonderful website for the heart valves. I might not say nothing, but I read a lot of what you all went through. It encourages me for when it will be my time.
I am in the waiting room, nothing has change with the stenosis. I have a wonderful heart doctor that is watching me. I see her again in 6 months, push the echogram to one year unless changes come.
Here is my Echogram report:
Calcified bicuspid aortic valve with moderate to severe aortic stenosis. Normal-sized thoracic aorta. Normal right heart pressures suggested. No significant change compared to the echo report of July 24, 2017.
So, I will live my life and be ready when the time comes. Keep researching, you never know when something new will appears in the medical field.

 

[honeybunny]

Good to hear from you Marie. You sound very much at peace with being in the waiting room. My cardio to,d me I could wait a year in 2015 with moderate to severe stenosis but I wanted the surgery done and over with ASAP. Had I waited I might still be there as you are. Be well!

 

[epstns]

Hi, Marie. It does sound like you have the right attitude. That will make your journey much more calm and safe for you.

My own journey started similarly -- I was initially diagnosed with moderate-to-severe aortic stenosis. We monitored mine, and I did not need surgery until almost 11 years later. No guarantees for others to hold out that long, but I just wanted to mention that sometimes it can be that long. This can be a good thing, or a bad thing.

If you can handle to unknown for that long, it is a very good thing, as there can be many developments in valve technology and techniques over the years. If you cannot handle that big unknown. . . it will be difficult. I learned many coping mechanisms, and I think I did fine. Either way, you will, too.

 

[Marie-62]

Thanks for the respond. I will keep you posted. I am being watch from my doctors. My Cardiology, and primary doctor. I have s surgeon in mind, Dr. Grosner at Gates Vascular in Buffalo. I heard from many who had him for a surgeon. I am sure there are many in this waiting room. I something wonder is it good to know or not to know about your heart valve. But, it is people like you that makes it easier for us to carry on. I thank you all