Heart problems for grandson

[Mr V]

My son and his wife are expecting another baby. They discovered during an ultrasound that he has transposition of the great arteries. He also has a large ventricular septal defect. The plan is to keep a close eye on things and then perform surgery right after delivery. He is due early February and right now the plan is to deliver him a couple of weeks early. There is hope the septal defect may at least get smaller the closer he gets to full term. They said they don't think it is genetic but makes me wonder since my grandfather and I both had valve issues. Just thinking of OHS on a newborn is extremely scary. Then there is the possibility of developmental issues being caused by this. Just wanted to ask for prayers for a good outcome.

Thank You

 

[Beach77]

Mr V, So sorry to hear about your new little one that is coming in 2023. It must be super scary. Go with what the doctor said, it's not genetic. No use stressing about that now, sounds like there's a good plan in place for the little one! I can't imagine the roller-coaster of emotions you'll be?are going through. He has my prayers, along with his parents and you. There is a little girl at our church who went into OHS when she was born. She is doing awesome! I believe she's about 9-10 months old and so adorable. Sometimes they sit in front of us and I get to smile/play with her until they take her to the nursery! she has the sweetest smile. Have faith in God our father, know there's a plan for your grandson, trust the doctors, and be there for your son/wife with lots of love. I hope loving on them and your grandson, the love will flow back to you. Sending prayers Ellen

 

[Mr V]

Mr V, So sorry to hear about your new little one that is coming in 2023. It must be super scary. Go with what the doctor said, it's not genetic. No use stressing about that now, sounds like there's a good plan in place for the little one! I can't imagine the roller-coaster of emotions you'll be?are going through. He has my prayers, along with his parents and you. There is a little girl at our church who went into OHS when she was born. She is doing awesome! I believe she's about 9-10 months old and so adorable. Sometimes they sit in front of us and I get to smile/play with her until they take her to the nursery! she has the sweetest smile. Have faith in God our father, know there's a plan for your grandson, trust the doctors, and be there for your son/wife with lots of love. I hope loving on them and your grandson, the love will flow back to you. Sending prayers Ellen

Thank you

 

[henkac]

Hi Mr V.

Our daughter had OHS three days after her birth. She had transposition, interrupted aortic arch, a leaking aortic valve and vsd. We also found out during a standard ultra sound and I can fully relate to the thoughts and emotions you and your family is going through.

She's 15 now and has lived her life just as any of her friends (except for the boring check-ups at the hospital) Only a handfull of her friends even know she has had a major OHS early in life and she's playing soccer at youth national team level.
I'm very well aware everyone's story is different but there are many stories like her's where the rough start in life with OHS turns out very well.

Her grand parents carried our daughter and us in prayer and love through it all and it means everything to have that support. I'm sure it will for your son and his family too.

We'll pray for your family and trust the skilled hands of the doctor's

 

[Mr V]

Hi Mr V.

Our daughter had OHS three days after her birth. She had transposition, interrupted aortic arch, a leaking aortic valve and vsd. We also found out during a standard ultra sound and I can fully relate to the thoughts and emotions you and your family is going through.

She's 15 now and has lived her life just as any of her friends (except for the boring check-ups at the hospital) Only a handfull of her friends even know she has had a major OHS early in life and she's playing soccer at youth national team level.
I'm very well aware everyone's story is different but there are many stories like her's where the rough start in life with OHS turns out very well.

Her grand parents carried our daughter and us in prayer and love through it all and it means everything to have that support. I'm sure it will for your son and his family too.

We'll pray for your family and trust the skilled hands of the doctor's

Thank you for the prayers. Stories like yours help keep us optimistic for a good outcome. The doctors are from the University of Minnesota Children's Hospital which are some of the best in Minnesota along with Mayo.

 

[TGM]

I know how scary this is for the family. I too, have a child who had surgery in infancy and 3 more throughout childhood. It’s not an easy road but outcomes keep improving. It sounds as if you are at a great institution and your family will be in good hands. By the way, my son is a college sophomore and is doing well. There is a support group for families called Mended Little Hearts that may be helpful for your kids. Wishing the best for your son and his family

 

[carolinemc]

My son and his wife are expecting another baby. They discovered during an ultrasound that he has transposition of the great arteries. He also has a large ventricular septal defect. The plan is to keep a close eye on things and then perform surgery right after delivery. He is due early February and right now the plan is to deliver him a couple of weeks early. There is hope the septal defect may at least get smaller the closer he gets to full term. They said they don't think it is genetic but makes me wonder since my grandfather and I both had valve issues. Just thinking of OHS on a newborn is extremely scary. Then there is the possibility of developmental issues being caused by this. Just wanted to ask for prayers for a good outcome.

Thank You

Just keep being hopeful, for you know that genetic defects are not a death sentence these days. They have done much research and such on newborns and on up. I had my first bypass at age 8 back in 1973, aortic replacement with St. Jude's leaflet at 36 years old in 2001. Still alive and kicking. Might face a future bypass again due to mitral valve calcification, which they are keeping an eye on in the Cardio office. I am trying to walk more to help the circulation flow going. ut your baby has better chances due to research and hard work saving babies with genetic defects these days.

 

[dornole]

My 27 week Preemie daughter had a PDA ligation at childrens Minneapolis when she was only a couple days old. Very skilled team there. You have my empathy and best wishes for a great outcome like hers. She’s studying at UMN now and considering going into medicine herself.

 

[dornole]

Minnesota was unbelievable with early intervention for my kids too. I can’t say enough good about it.

 

[Mr V]

Good news from the last ultrasound. They are no longer seeing a septal defect. So looks like just surgery for the TGA. Thank you for your prayers.

 

[dornole]

Good news. Keeping her in prayers!

 

[cp172]

I hope she is doing well. Prayers that the news keeps getting better!

 

[Mr V]

Thursday is the big day. They are hoping they can wait a couple days before they do surgery so baby can eat and stuff. Baby is over 7 pounds so lungs should be fully developed. Thanks again for the thoughts and prayers.

 

[TGM]

Thursday is the big day. They are hoping they can wait a couple days before they do surgery so baby can eat and stuff. Baby is over 7 pounds so lungs should be fully developed. Thanks again for the thoughts and prayers.

Best Wishes!! Please update us. This heart mom is praying for a great outcome for your little one

 

[Beach77]

Best wishes and prayers!

 

[carolinemc]

Prayers.

 

[dornole]

Wishing her a smooth and successful procedure, hugs to the family.

 

[Chuck C]

Thursday is the big day. They are hoping they can wait a couple days before they do surgery so baby can eat and stuff. Baby is over 7 pounds so lungs should be fully developed. Thanks again for the thoughts and prayers.

Best wishes for a successful operation. Please keep us posted on how things go.

 

[Mr V]

Monday is surgery day. Evan is doing ok. They did the balloon procedure to help mix the oxygenated blood in his heart. There is another complication that came up though. They discovered he also has coarctation of the aorta (narrowing). They will try to fix that when they do the TGA but is does increase his risk now. There is a chance they may have to leave that and do that with a separate surgery later.

 

[Survived03]

Mr V, I have a nephew who was also born with transposition of the great arteries, septal whole, but not sure about the coarctation of the arch. He had his first surgery as an infant (i don't remember how soon) and they made some corrections. The did not correct the transposition at that time and felt survival was good. Ironically, the septal hole actually help mixing of oxygenating blood. He grew to about 20 years old before they felt it was time for the more complex surgery. The thinking at the time of infancy was to allow him to grow and for his organs to mature In size. He had a very successful surgery as a young adult, completed university, worked and led a fairly normal life. He is now around 39-40 years old. They did implant a pacemaker but besides that he is doing quite well. Modern medicine is amazing. Good luck and enjoy a long life together.