Groan..... It Really Doesn't Get Easier.

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Okay, well, I'm the oddball of the bunch here....

I think I am an oddball as well. I see the echo as my chance to prove I am better than the numbers show. It is with a Stress/Echo that I was able to covince my cardio that I did not need surgery 2 years ago. The numbers said I needed it, but my body told him that I did not need it.

Now as you all can see this year did not work that way. However the odds are in my favor for not needing surgery. About 90% are no surgery needed: Approximately 22 Echos and only two surgeries.
 
Thanks, everyone. It makes me feel better to know it isn't just me. I wasn't so bad the four years between my surgeries as I have been since. I suspect this is just how it's going to be for me from here forward....... one never seems to forget hearing their cardio saying, it's time for surgery.

Fingers crossed my echo looks good.

It is normal to feel worried and NO you are not alone! Hope all went well. Keep us updated once you get results.

:smile2:
 
I met with my cardio and got good news. There were a few changes on my echo from the last one but no regurg and bioprosthetic valve is seated well. No valve problems at the moment but still some of the 'other' heart issues. It was a good appointment and I learned a few new things so that is always helpful. I'm grateful my cow valve is serving me well and don't have to see my cardio again for six months.

Thank you for all your support. It really helps to have people who 'get it'. Our friends and families mean well but they haven't walked where we walk and try as they will, they don't exactly know what our heads and hearts do as these appointments come round each time.
 
Thank you. I really had the jitters this time and was relieved when my cardio greeted me with a big smile. I've seen his expression when the news wasn't good so that smile looked awfully good. :)
 
Exactly the same here.

It seems that I started to have (really) high triglyceride after surgery. It seemed to be somehow tamed in last year's blood test. But this year? Boom. Same problem and more. Now I have (very) high LDH. Therefore, a paravalvular leak is suspected. Now I am waiting for the echo result. The tech unofficially told me it looked fine, but hesitantly. I think it was the same tech who did echo on me last year and she was quite happily telling me things were fine. So now I am wondering maybe things are marginally fine/not fine.

And more, my TSH also becomes high now. This may explain the high triglyceride, though. But heck, one more life long pill to take and one more life long test to do?

I really thought the surgery would cure things. But I have been learning more and more(negative) knowledge ever since. Not sure when I will be pushed over the edge to become a full time paranoid.


Same here folks! I am a WRECK before an echo. I also noticed I am relating any other problems I MAY have to my heart valve. I seem to be getting better in that regard though.
 
For the first 7 or 8 months, ( I am almost at 1 year), I worried about everything, when anything wasn't quite right. A little short of breath, a headache, low blood pressure, high blood pressure, excessive hunger, you name it.....However today was a good day. The news is exciting. The manufacturer of my heart valves, seems to be on the cusp of winning FDA approval for a catheter delivered heart valve. For now, intended for people too frail for OHS. But exciting to learn there is lots more in the works. The news is they are also fast approaching to replace current heart valves (tissue) with the same process. Not sure how this works, but appears to be quite doable. Meaning, a second surgery may not be needed. At least a OHS. I am learning more about this everyday, and this company, also is one of my customers! The bad news is that this type of "re-do" is surgery is a few years down the road, possibly 10 to 15 years. But, they are advanced enough to say that their goal is to replace 80% of exsisting aortic, or mitral, with this process. Very exciting indeed! I don't know if I will benefit from this emerging procedure, but am learning their is a growing consensus in the medical community that this will eventually be a reality. My contacts at this company inform me they are making generous progress on all fronts, form better anti-calcification applications, to even more durable tissue valves, possibly with a expectancy greater than 20 years. Whether delivered by a sternonmy or percuntaneus catherized process. For now, it is only a hope, but thinking of the evolution of heart valve replacements, the hope is sounding better everyday.
 
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