Going into hospital tomorrow.......

[aussigal]

Prayers and best wishes for you Jacqui....I hope that all goes well with something useful coming out of this.

 

[Eva]

You are definitely in my prayers and stay positive.

 

[kfay]

I hope someone finally tries to help you. Good luck with it all and let us know what is going on as soon as you can.

Kim

 

[CThrock]

Best wishes hope everything turns out and they find out exactly whats going on. You are in my prayers. Keep us update if you can!!!!

 

[tobagotwo]

The journey always begins with the first step. It seems so long now, but as you get past each stage, it will seem like you've moved along quite well. Right now, all you can think of is what's ahead. Soon, you'll be able to put some of this behind you.

Good luck with your tummy. May it be something easy and obvious.

Very best wishes,

 

[zipper2]

(((((HUGS)))))) Jacqui and i'm praying and good thoughts to you
Don't be scared we are here for you and with you

zipper2 (DEB)

 

[zipper2]

Just wondering

Just wondering

Anyone heard any news on Jacqui?
continue my prayers for now and
best thoughts to you .......waiting for update
when able.

zipper2 (DEB)

 

[BDMc]

Thanks for bumping this thread up Zipper. I hope we'll get some news soon. It's been a rough week! Jacqui, love and prayers to you. Brian

 

[EireCara]

Hi there...Im sorry I havent been on before now to 'chat' to you guys. I think I was feeling a bit depressed to be honest....and for me, when I get depressed I become unable to express myself...also sometimes I think all I ever do here is ''moan'' and ''complain'', so I thought I would leave you all alone for a while.

ANYWAY....I went into hospital, they gave me an I.V. of heparin and on Friday I had the scope done. I wont bore you with all the details, but suffice to say I woke up during it and I felt almost traumatised for several days afterwards. I couldnt get the feeling of the tube down my throat out of my head, and almost worse than that, was the feeling of being held down by people, and being unable to use my arms.

They took biopsies, and I am still waiting on the results. The only thing they told me is that my stomach is very inflamed.

I got a bad flu/virus right after I got home and at the moment 12 days later Im still unwell with a chest infection. Im taking an anti-biotic but it still hasnt shifted...yet.

Feeling very sob and listless at the moment, and for some reason I keep thinking of Nancy,(sorry for talking about you as if you are not here Nancy .....she keeps popping into my head and I know it is connected to PH, so Im thinking of asking my gp if I can see a pulmonologist (my EP wont do a right sided cath, he said if he did 4 of them, he would get 4 different results ???) to check out the high right sided heart pressures I have.

THANKS EVERYONE FOR ALL YOUR GOOD WISHES ....THANK YOU DEB AND BRIAN FOR THINKING OF ME. Blessings....(((((((HUGS)))))

 

[Nancy]

Jacqui, I hope you can depend on your GP to get you some answers about the PH. No one can help with that until they determine exactly how high the pressures are. Doing things this way is like playing darts in a Pub with the lights out. How do you know where you are going?

I don't know why they are dragging their feet except to not spend any money on your diagnosis, and thus save money on any treatment. And that's a "fine kettle of fish"!

I NEVER heard any of Joe's doctors say that a right heart cath is so inaccurate. I guess any test can be inaccurate if the wrong person is doing it.

A right heart cath wouldn't be the gold standard test for PH if it were as bad as your doctor said. He's bluffing.

Any other tests would be far less accurate.