First post--a few complications

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mwd100

Member
Joined
Mar 19, 2013
Messages
7
Location
FAIRFIELD CA
Hello Everyone,

This is my first post, so I will give you my whole story. I'll try not to make it too long.

In November 2012, I was diagnosed with severe aortic stenosis. My only symptom was a little shortness of breath, which I attributed to being 66 years old. I had been going to the gym regularly for a year, am only 5 or 10 lb. overweight, and I thought I was in pretty good health. On February 25, 2013, I underwent aortic valve replacement surgery. I chose a tissue valve over a mechanical valve to avoid having to take a blood thinner for the rest of my life.

I had a few complications during and after surgery. Upon awakening in the cardio IC unit after surgery, I found that my left arm was weak and I could not move my two little fingers on my left hand. I had also lost my peripheral vision on my right side and I was having problems thinking and remembering. I was evaluated by a neurologist who asked me to do simple functions such as tell her my address or my phone number, or read a simple phrase, or identify pictures of simple things such as a carrot or a table. Most of these tasks I was unable to do. I felt terrible and was still very out of it at this time and do not remember events very clearly. Mostly I remember the anguished look on the faces of my wife and sister who were in the room at the time. I was given a CAT scan, which confirmed that I had had an Ischemic stroke.

The next thing I remembered was waking up the next morning in a regular hospital room. I realized fairly quickly that my vision was back to normal and my left arm and hand were much better. After speaking with the on-duty nurse, I realized my thinking and memory seemed to be OK. Was I ever relieved! By the time my wife arrived that afternoon I was feeling much much better.

Over the next few days, I was recovering normally with the usual pain and discomfort that follows heart surgery. On day 6, I was released from the hospital. The only remaining stroke symptom I had was a very slightly impaired movement of the two little fingers on my left hand. Since then, I have learned that this is probably not due to a stroke but is the result of a pinched Ulnar nerve which can happed during surgery. It will probably return to normal by itself, but may take several months.

After a few days at home, I started feeling really good. On day 10 after surgery, I was up and down the stairs several times, did some work around the house, and did quite a bit of walking. By mid-afternoon, I did not feel very well. I noticed my pulse was rapid and irregular and when I stood up, I would get very dizzy. Around midnight I asked my wife to take me to the ER room at Kaiser Hospital.

I was in atrial fibrillation with rapid ventricular response (heart rate between 140 and 160 bpm). I lay on a gurney all night and most of the next morning with an IV in my arm, an oxygen monitor on my finger, a BP cuff on my arm that would automatically take my BP every half hour, and constant beeping from the machine next to me. It was not fun. I was given several drugs (Digoxin, Metoprolol, and Amiodarone) both by IV and orally. The drugs did not have the desired effect and the on-call cardiologist (this was a weekend) was reluctant to cardio convert me since I was not on anti-coagulation medication and he did not know how long I had been in a-fib. I was admitted to the hospital, given a room, and the next night I was finally able to sleep a little. Sometime during the night, after about 30 hours in ER and hospital, I auto-converted back to sinus (normal) rhythm. I was sent home with a prescription for Matoprolol and Warfarin. I wanted to talk this over with my cardiologist but he was out of town for a week.

About a week went by without any problems. Then, just when I thought my bout with a-fib was a one-time event, I went into a-fib again after overexerting myself again. It was back to the ER. The next morning, at the hospital, I auto-converted back to sinus rhythm again. The on-call cardiologist prescribed Amiodarone this time instead of Metoprolol and sent me home. After reading about the side effects of Amiodarone, I decided I did not want to take this drug. I emailed my cardiologist the next day and he called me within an hour. He took me off Amiodarone and put me back on Metoprolol along with Warfarin. He also stressed the importance of not over exerting myself and keeping well hydrated the first weeks after surgery. I recalled that I had not been drinking much water the days I went into a-fib. I drink lots of water now and have joined the cardio rehab program. I will pace my rehab slowly. After all, what's the rush?

Monday it will be 8 weeks since surgery. I have had no more bouts with a-fib, I have no stroke symptoms and my finger movement is almost back to normal. I feel very good and the chest discomfort is fast fading away. I feel so grateful to God and my family and the many doctors, nurses, technicians and staff at Kaiser Permanente for all they have done for me. In posting this account I hope that others who have complications such as I have had can take heart and not worry too much. The body is remarkable in its ability to heal itself. Good luck to all of you.
 
Wow! You had some journey. Thank you for your story, it will be knowledge that someone may be able to use. I hope you continue to recover in a good fashion. Keep us posted as you get better and stronger each day. :)
 
My history also includes aortic stenosis, but I was 46 when it progressed to a dangerous level. Post op also had a-fib and tachycardia but i was already on Coumadin, so I just had the
Metoprolol added which has now been switched to Bisoprolol.
Try to pace yourself with your activity and recovery. Your heart has been through a huge surgery and needs time to heal.
Best wishes.
 
mwd100, for the fingers, they should have suggested getting a rubber ball or playdough, and flex the fingers as much as you could do everyday. I almost the same problem and went out and bought a rubber ball at worked it everyday. For some, it will take time. It happens when they prep you for surgery, and the nerve gets pinched from being in one position for a time. It will get better soon. You are doing great, keep hanging in there. Hugs for you today.:cool:
 
mwd - The post-op afib is not uncommon, especially for patients who have had their aortic valves replaced. Some have it almost immediately, some a few days later. Some convert back to normal sinus rhythm spontaneously, others need help. Often patients are sent home from the hospital with prescriptions for both amiodarone and warfarin, commonly for up to 3 months. Most cardio's are not concerned about the side effects of amiodarone if the patient will take the med for 3 months or less. Commonly, a month or two suffices. I have a pacemaker, and even with it, I had several episodes of afib during the first month after my valve surgery. After a month, no more problems, so no more amiodarone and warfarin. Hang in there - it usually settles itself down. I guess the heart doesn't like to be "insulted" by people handling it.
 
Marshall,

Thanks for posting your story. I had surgery at the Cleveland Clinic on April 18 to remove an aneurysm, to get an aortic graft, and to have my aortic valve replaced with a tissue (cow) valve. When I woke after surgery, I had the same symptoms as you--weak left arm & side, no balance, foggy headed, no memory--it was scary and it lasted for a couple days. So I definitely get what you went through. My neurologist told me he thought it would be temporary but couldn't say for sure. I had a cat scan and an MRI and they found very slight brain damage (we all knew that anyway, haha) but nothing significant. It was so strange not to be able to control my arm. But by the Sunday after surgery I was like a new man, felt so much better, and the TIA stroke symptoms were mostly all gone. I was told to have my carotid arteries checked for blockages--did they give you that advice as well? They think a loss of blood to the brain may have caused the TIA. After having the big scare, I felt so much better these last days.

I am surprised about the back pain and how long all the chest/neck pain is lingering every bit as strong as week one. I also still have a few 'vision' issues going on, like seeing "shooting stars" or colors/migrane headaches. I'm a little worried about that, and also the fact that my head is not yet 100 in my opinion. But things seem to be improving, slowly. I will see my cardio this month and hopefully he will give me some feedback on these issues and adjust my meds, if neccessary.

Good luck in your revcovery and I hope you've seen the last of your A-fib!
Ron
 
Thanks everyone for your comments.

Ron,
I had had an echo/ultrasound test of my carotid arteries before surgery and they were OK. My cardiologist said the stroke was probably caused by a tiny particle of something; possibly a blood clot or piece of cholesterol that was dislodged during surgery and went to my brain. He said he thought this kind of thing happens about 2-5% of the time with surgery such as mine. I am 10 weeks post surgery now and have had no more a-fib problems. All my TIA stroke symptoms are gone and the weakened little fingers on my left hand, which was most likely caused by a pinched ulnar nerve, is about 60% back to normal.

I'm beginning to think that the last 5% of healing may take a long time. I still have mild pain in my sternum when I use certain muscles and when I get in certain positions. And when go to bed at night, and it gets very quiet, I hear my heart pounding away. My cardiologist says that my heart will always sound louder now because the pericardium, the sack which surrounds the heart, is no longer there. I'm also a bit depressed and more tired than I think I should be. This may be caused by the beta blocker. In a few weeks I will be talking to my cardiologist about quitting the Warfarin and Metoprolol. I am looking forward to being medication free.
 
That is quite a story!!!!!
I am going in Tuesday for my 2nd OHS. I can attest to the last 5% of healing. I suffered with post surgery depression big time last surgery. I think after all of the doctor visits and the "clear" to go home and heal led to a bit of panic. I was "okay" enough to be home and "on track" to recovery, but I didn't feel 100% at all. I was still terrified of some random complication or nervous I would never feel normal again.
But luckily that is a faint memory...otherwise I think I would be MIA on Tuesday...haha
Hope you continue to kick butt in your recovery!!!!!!
 
missaviator,
Thanks for your comments and good luck on your surgery tomorrow Rachel. Wish you a speedy recovery.
 
Marshall,

If you can. try to talk with your cardio about any symproms of depression. Depression is a farily common side effect of major heart procedures. I am surprised that nobody has mentioned it to you in preparation or post-op discussions. If it gets severe enough, seek help. It is just one more item to be managed as you recover, and usually it doesn't take much to get you back on track.
 
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