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mike anthony
Joy, I believe that Jane was referring to an early e-mail from someone that was very offensive. I see that it has been removed,thank God. We don't need that type of material on this site.
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shana23
post surgeory
post surgeory
Jane, was just reading around sorry to hear about you new problem will keep my fingers crossed and pray you don't have to re-operate all the best Shana
post surgeory
Jane, was just reading around sorry to hear about you new problem will keep my fingers crossed and pray you don't have to re-operate all the best Shana
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alicia
Jane, I hope all will be well. I've had 2 open heart surgeries in less than 2 years and will possibly be needing an LVAD (heart pump) or heart transplant in the future due to my declining heart function. I know its devastaing to hear you may need the surgery again.
After my recent surgery (7 weeks ago today) they did an echo and saw that my tricuspid valve is now leaking but they are not very worried about it. They said it will probably get better over time and its common for that valve to leak after surgery.
Try not to worry too much about it. It wont help matters. If you have to face another surgery God will help you deal with it. He only gives us as much as he feels we can take. Take this from me the woman whos had 2 heart surgeries and possibly facing a transplant. I also have cardiomyopathy,congestive heart failure,left branch bundle block and left ventricular disfunction. As my cardiologist told me...we can only take things one day at a time.
I will pray for you my friend. Best of luck to you. Hold your head up. It could be a whole lot worse.
After my recent surgery (7 weeks ago today) they did an echo and saw that my tricuspid valve is now leaking but they are not very worried about it. They said it will probably get better over time and its common for that valve to leak after surgery.
Try not to worry too much about it. It wont help matters. If you have to face another surgery God will help you deal with it. He only gives us as much as he feels we can take. Take this from me the woman whos had 2 heart surgeries and possibly facing a transplant. I also have cardiomyopathy,congestive heart failure,left branch bundle block and left ventricular disfunction. As my cardiologist told me...we can only take things one day at a time.
I will pray for you my friend. Best of luck to you. Hold your head up. It could be a whole lot worse.
J
Jane
I have just logged in after the weekend. Joy, I am so sorry you thought my abrupt answer was directed at you. No, it was to the sick idiot who had added a reply with a really horrible link. Thanks for all your warnings about frusemide. The first day I took it, I was going to the loo every 7 minutes!! It has got much better now, Just about every 30 minutes for the first 3 hours after taking it.
Alicia, thanks for your long and reassuring post. I didn't know that the tricuspid valve commonly leaked after surgery. It would nice to think that this latest problem is only temporary. Also I am feeling so much better since I have been on both the diuretics, that I am hoping that they will be able to control the problem medically rather than surgically.
To all the other people who replied, many many thanks for your love, support and information. Whatever happens I know I will be able to handle it. Rehab is going really well, too.
Alicia, thanks for your long and reassuring post. I didn't know that the tricuspid valve commonly leaked after surgery. It would nice to think that this latest problem is only temporary. Also I am feeling so much better since I have been on both the diuretics, that I am hoping that they will be able to control the problem medically rather than surgically.
To all the other people who replied, many many thanks for your love, support and information. Whatever happens I know I will be able to handle it. Rehab is going really well, too.
joy
Well-known member
Hi Jane, I forgot to take it until bedtimes like 5 times...I kept saying I would never do it again, and then...it happened! every 15 minutes! The first night I actually had trouble remember where the bathroom was! Hope you feel better, Jane!
hi jane!
i was so sorry to read about what you are going through_ what a big load to carry!
i just wanted to let you know that you will be in my thoughts and prayers.
please keep us posted.
be well, sylvia
i was so sorry to read about what you are going through_ what a big load to carry!
i just wanted to let you know that you will be in my thoughts and prayers.
please keep us posted.
be well, sylvia
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Ms. Ramsey
Things going a little better
Things going a little better
I hadn't checked in for a little while. I'm glad that things seem to be going a little better for you. I've been thinking about you. It's great that rehab is going well.
Hopefully this will mean a change for the better for you.
The best to you.
Mary
Things going a little better
I hadn't checked in for a little while. I'm glad that things seem to be going a little better for you. I've been thinking about you. It's great that rehab is going well.
Hopefully this will mean a change for the better for you.
The best to you.
Mary
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Bob
I dont know what to say other than I understand a little of what you are feeling because I fear the same thing might happen to me. I guess we just go on because there is no alternative. Keep talking to us it helps and you will get a lot of prayers. Bob
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mamsram
Jane,
Your last post sounded so much better. I hope you are calming down and adjusting to" grabbing the bull by the horns" as they say over here.
I thought about your situation and how I would handle it. I would ask the Dr. What is the worst likely situation I will face? What is the best likely situation? Where am I between these two points or/and where do you think I am heading? Then I would try to accept my fate and deal with whatever I had to, to bring myself back to good health.
Wishing you well, and I'll say a little prayer
Your last post sounded so much better. I hope you are calming down and adjusting to" grabbing the bull by the horns" as they say over here.
I thought about your situation and how I would handle it. I would ask the Dr. What is the worst likely situation I will face? What is the best likely situation? Where am I between these two points or/and where do you think I am heading? Then I would try to accept my fate and deal with whatever I had to, to bring myself back to good health.
Wishing you well, and I'll say a little prayer
J
Jane
Still none the wiser!!!
Still none the wiser!!!
Just to let you know that I am still waiiting for the repeat echoscan, so I still do not know the extent of the problem, except that I am feeling quite unwell - exhausted on minimal effort and with severe throbbing on the right side of my neck and at the back of my head when I am tired. I am going to rehab still, but have had to miss the exercise part on a couple of occasions due to feeling exhausted.
I have phoned the consultant's secretary twice to see how long the waiting time would be. The last time I phoned, she was so rude and unpleasant (at a time when I felt really vulnerable) that I sat and cried for 2 hours after putting the phone down, and I was still none the wiser after talking to her. The rehab nurses are trying to chase the appointment up for me, especially as I have a normal outpatient appointment on 17 April. This appointment will be pointless if I haven't already had the echo beforehand.
I am not back at work as I am not well enough (I also have bad sciatica and some gynaecological problems as well), and to be frank, I don't know when, or even if, I will be able to return.
Sorry to sound so gloomy, but the future seems a little bleak at the moment. I try not to look ahead and to enjoy what I can out of each day and this attitude does help, but do worry about what will happen to my husband and son if I am not longer here.
Still none the wiser!!!
Just to let you know that I am still waiiting for the repeat echoscan, so I still do not know the extent of the problem, except that I am feeling quite unwell - exhausted on minimal effort and with severe throbbing on the right side of my neck and at the back of my head when I am tired. I am going to rehab still, but have had to miss the exercise part on a couple of occasions due to feeling exhausted.
I have phoned the consultant's secretary twice to see how long the waiting time would be. The last time I phoned, she was so rude and unpleasant (at a time when I felt really vulnerable) that I sat and cried for 2 hours after putting the phone down, and I was still none the wiser after talking to her. The rehab nurses are trying to chase the appointment up for me, especially as I have a normal outpatient appointment on 17 April. This appointment will be pointless if I haven't already had the echo beforehand.
I am not back at work as I am not well enough (I also have bad sciatica and some gynaecological problems as well), and to be frank, I don't know when, or even if, I will be able to return.
Sorry to sound so gloomy, but the future seems a little bleak at the moment. I try not to look ahead and to enjoy what I can out of each day and this attitude does help, but do worry about what will happen to my husband and son if I am not longer here.
Nancy
Well-known member
Hi Jane-
I'm so sorry to hear that you are having these problems, and even more sorry that you are hitting a "brick wall" when trying to get an appt. for the repeat echo. I think at this time, you need to get someone else to run interference for you. When you are sick, it's hard to muster the necessary energy to butt heads with nasty secretaries or nurses. In spite of their nastiness, you still have to have this problem taken care of, and they are not the ones who are suffering, you are, and you need to have someone help them to stay on top of things, so that your conditions will be properly taken care of.
I urge you to not give up with everything that is going on. You are still here and able to post, so that means that there is every reason to think that your conditions will be able to be taken care of. NEVER give up, no matter how discouraged you feel. There is help for just about everything. My husband is the prime example of that. He's been through more life-threatening things than you could ever imagine, but he's still standing and even getting better. There is lots of hope for you as well.
Wishing you all the best.
I'm so sorry to hear that you are having these problems, and even more sorry that you are hitting a "brick wall" when trying to get an appt. for the repeat echo. I think at this time, you need to get someone else to run interference for you. When you are sick, it's hard to muster the necessary energy to butt heads with nasty secretaries or nurses. In spite of their nastiness, you still have to have this problem taken care of, and they are not the ones who are suffering, you are, and you need to have someone help them to stay on top of things, so that your conditions will be properly taken care of.
I urge you to not give up with everything that is going on. You are still here and able to post, so that means that there is every reason to think that your conditions will be able to be taken care of. NEVER give up, no matter how discouraged you feel. There is help for just about everything. My husband is the prime example of that. He's been through more life-threatening things than you could ever imagine, but he's still standing and even getting better. There is lots of hope for you as well.
Wishing you all the best.
G
Georgia
Hi, Jane. I'm adding my sympathy to all the others'; I kinda liked it better when you said you cussed your way home, to letting those nasty little gatekeepers make your life miserable.
I know your whole system is a great deal different than ours' (oh, wait a minute - we don't have a system; my mistake); but if I were getting the run around on something essential for my well being, I think I'd get an attorney to contact the clinic or office and get an appointment. It'd be a good investment, and attorneys won't make themselves sick getting upset about those who revel in their power.
Try to rest and think good thoughts. Can you call doctors at home? Or have them paged at dinner? I've done that before when my kids were sick. It might work. This is definitely the case of the squeaky wheel.
Best of luck.
Georgia
I know your whole system is a great deal different than ours' (oh, wait a minute - we don't have a system; my mistake); but if I were getting the run around on something essential for my well being, I think I'd get an attorney to contact the clinic or office and get an appointment. It'd be a good investment, and attorneys won't make themselves sick getting upset about those who revel in their power.
Try to rest and think good thoughts. Can you call doctors at home? Or have them paged at dinner? I've done that before when my kids were sick. It might work. This is definitely the case of the squeaky wheel.
Best of luck.
Georgia
hensylee
Well-known member
Hello, Jane - we were just listing those we hadn't heard from in a bit and you were one of them. I am so sorry that you are having to wait. The UK system is one that makes you wait and it must be frustrating for you not to be able to give it a push. Please know that you are in our prayers that all will be well for you. Perhaps your rehab group can get a word in edgewise to help you out on this because, as you say, next week's appointment won't matter much without the needed testing first. Hope you are able to get out to the library to post to us as things move along. Ann
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pegne
Jane
Jane
I am so sorry to hear of your problems. You will be on my prayer list. Please understand that the chance is very very good that you will be around a long time for your family so please try to get those thoughts out of your head. You are in limbo right now so things may seem a lot more gloomy then they really are. Hopfully when you do get your scan and see the doctors things will start to look up. Good luck, Peggy
Jane
I am so sorry to hear of your problems. You will be on my prayer list. Please understand that the chance is very very good that you will be around a long time for your family so please try to get those thoughts out of your head. You are in limbo right now so things may seem a lot more gloomy then they really are. Hopfully when you do get your scan and see the doctors things will start to look up. Good luck, Peggy
joy
Well-known member
Hi Jane, I am also sorry that you are feeling badly. I hope that the rehab nurses are able to get this appt. chased down for you. It's too bad that the secretary and nurses are so nasty... I hate getting those people on the phone. Please don't get discouraged, like Nancy said, your still here, and we are all here supporting you. Good luck Jane, keep us posted.
J
Jane
and I am still waiting!!
and I am still waiting!!
Just to say that the cardiac rehab nurses tried to chase up the echo appointment for me and didn't get much joy either - apparently, according to the secretary, there is a 6 month waiting list and I should consider myself very lucky to be fitted in before then. She didnl't give them a date either but said it would be after my appointment. I have decided that I will just go along to my outpatient appointment anyway, whether or not I have had the echo and hope that the consultant will blast the secretary for her inefficiency.
I know that I am being a bit passive, but all the aggro was making feel even worse. I have decide to concentrate on other areas of my life in the meantime to try and keep myself sane !!
I have not got the use of my car at the moment, so I can only get to the library when my husband's car is free - But I am thinking of you all.
Thanks for all your posts.
and I am still waiting!!
Just to say that the cardiac rehab nurses tried to chase up the echo appointment for me and didn't get much joy either - apparently, according to the secretary, there is a 6 month waiting list and I should consider myself very lucky to be fitted in before then. She didnl't give them a date either but said it would be after my appointment. I have decided that I will just go along to my outpatient appointment anyway, whether or not I have had the echo and hope that the consultant will blast the secretary for her inefficiency.
I know that I am being a bit passive, but all the aggro was making feel even worse. I have decide to concentrate on other areas of my life in the meantime to try and keep myself sane !!
I have not got the use of my car at the moment, so I can only get to the library when my husband's car is free - But I am thinking of you all.
Thanks for all your posts.
ALCapshaw2
Well-known member
Hello Jane,
It can be VERY frustrating trying to push a sluggish system.
IF you feel you need to be seen sooner, you may want to investigate to possibility of coming to the USA or Canada for evaluation.
Best wishes,
'AL'
It can be VERY frustrating trying to push a sluggish system.
IF you feel you need to be seen sooner, you may want to investigate to possibility of coming to the USA or Canada for evaluation.
Best wishes,
'AL'
hensylee
Well-known member
Hey, Jane - I skeedaddled outta town the day you posted (4/5) and I missed it til just now. Please let us know how your appointment is going.
As I checked in, your original posting has received over 1100 looks by members! Means we like you and are concerned.
As I checked in, your original posting has received over 1100 looks by members! Means we like you and are concerned.
J
Jane
Much Better News
Much Better News
Well, I am finally sitting in front of my computer in work, and will officially return, albeit on reduced hours for a while, a week today.
I finally got my outpatient appointment last thursday and, to cut a long story short, the consultant did the echo then and there. He says he feels that the leak on the tricuspid valve is moderate rather than severe and that most of my symptoms now are due to the fact that I have not fully got over the operation and am not as physically fit as I might be. He still says "I hope not" when I ask if I will require surgery again, but, to be fair he is a cardiologist not a clairvoyant. He has told me to increase my exercise and of course to lose weight. Pot, kettle and black come to mind when I look at his figure!! He gathered that I was feeling anxious about everything and said this was why he was laying reassurance on with a trowel!!!
I must say that I do feel better, mentally. Much more hopeful about everything.
I have been so moved and helped by all the love and concern shown to me by all you friends at vr.com. I printed out your replies and read then when I was feeling down and/or worried.
Thank you so much. I have really treasured your support and your prayers.
Much Better News
Well, I am finally sitting in front of my computer in work, and will officially return, albeit on reduced hours for a while, a week today.
I finally got my outpatient appointment last thursday and, to cut a long story short, the consultant did the echo then and there. He says he feels that the leak on the tricuspid valve is moderate rather than severe and that most of my symptoms now are due to the fact that I have not fully got over the operation and am not as physically fit as I might be. He still says "I hope not" when I ask if I will require surgery again, but, to be fair he is a cardiologist not a clairvoyant. He has told me to increase my exercise and of course to lose weight. Pot, kettle and black come to mind when I look at his figure!! He gathered that I was feeling anxious about everything and said this was why he was laying reassurance on with a trowel!!!
I must say that I do feel better, mentally. Much more hopeful about everything.
I have been so moved and helped by all the love and concern shown to me by all you friends at vr.com. I printed out your replies and read then when I was feeling down and/or worried.
Thank you so much. I have really treasured your support and your prayers.
