Brain Haemorrhage

[catwoman]

Patrick:

Liz Campbell says to e-mail her, that she knows a lot about adaptive computer equipment and can probably put you in touch with someone in the U.K.

 

[Patrick]

Thank you Marsha,
I will drop Liz a line.
Patrick

 

[Dan W]

Patrick, I am just curious but how common is the AVM and what were the symptoms that let you know something was wrong? I had an aneurysm which led to an AVR in January. All of this is still new to me and I just want to make sure I am not overlooking anything. Thanks, Dan

 

[aussigal]

Hi Patrick...this is a wonderful place full of great people...Marsha sure sounds like she has the person to help you near or in your own country,,,excellent sharing spirit amongst our little community

good luck in your quest...I also know quite alot who use the dragon-voice and find it a good program once you train your dragon and maybe somebody could re-set your computer settings so that if you have some vision you are able to use what you have.

NOW you are not alone in the UK on a MAC my cousin who is a Merchant-Banker at the stock-exchange uses a MAC and finds it great!...I shall contact her too and see if she doesnt know of any local places to get stuff for you as well...she lives in London and also travels frequently for work.

By the way my mum just returned from Ireland a few weeks ago DUBLIN is her new favourite place! she just loved travelling around Ireland researching our family history.

 

[Patrick]

Patrick, I am just curious but how common is the AVM and what were the symptoms that let you know something was wrong? I had an aneurysm which led to an AVR in January. All of this is still new to me and I just want to make sure I am not overlooking anything. Thanks, Dan

Dear Dan,

I believe there is no link between my AVR and my AVM, which was in my brain. The AVM was simply a congenitally malformed vein that should not have been there. It formed a mass going nowhere and eventually ruptured or opened etc. I believe it is fairly rare in the brain and I have not come across anyone else with a similar history. The fact that 60% of people with my bleed die probably cuts down my chances of meeting someone with my history. I have asked our National Council for the Blind in Ireland to try put me in contact with someone similar in age and history to myself but that has been this blind for a long time. I reckon I should not have to reinvent the wheel and could draw from their experience enormously. Time will tell.
As to my symptoms, I was waiting for a taxi to take my family and myself to the airport as we were supposed to be flying to France for a holiday. I woke with a bad migraine (headache and loss of some sight) which was not unusual for me. Unfortunately the pain and blindness increased and I developed vomiting and intermittent loss of consciousness. I had absolutely no previous symptoms that could have been attributed to the AVM prior to the bleed. It had been happily sitting there for 48 years so God knows why it decided to happen. Obviously my Warfarin was not an advantage to me once the bleed started but I certainly do not blame it in any way.
So the bottom line for you should be to forget about it as you are infinitely more likely to win the Lottery than have a bleed from an AVM. For what it?s worth I consider myself very unfortunate to have had the bleed but extremely fortunate to be alive and only lost 60% of my sight!
Keep well Dan.

Patrick

 

[Patrick]

Hi Patrick...this is a wonderful place full of great people..By the way my mum just returned from Ireland a few weeks ago DUBLIN is her new favourite place! she just loved travelling around Ireland researching our family history.

Hi there Gal!
I agree full heartily with you about our community and I am still very new to it. How did your parents get on in their search here, well, I hope?
Did you look on our national archives, etc. online? http://www.censusfinder.com/ireland.htm is interesting but this site http://www.nationalarchives.ie/topics/transportation/search01.html is really good. I was able to find some of my relatives so perhaps you may also.
Take care,
Patrick

 

[jenny]

Juntional Rhythm

Juntional Rhythm

Hi everyone, I had the Maze operation for afib about a year ago and was told that I was in juntional rhythm, I should have asked my doctor what that meant, but I had so many other questions that I let this slide. Now I am wondering what this meant and if it is dangerous. Would any of you happen to know anything about this? Thanks. Jen

 

[Patrick]

Hi everyone, I had the Maze operation for afib about a year ago and was told that I was in juntional rhythm, I should have asked my doctor what that meant, but I had so many other questions that I let this slide. Now I am wondering what this meant and if it is dangerous. Would any of you happen to know anything about this? Thanks. Jen

Sorry Jen,
No idea about it, but perhaps you should submit it as a new topic with? Maze operation? as a title? I am sure there is the knowledge out there in our community.
Best of luck,
Patrick

 

[KimC]

Patrick,

Here's an ironic twist for you: my father, a brain surgeon lost peripheral vision in his right eye several years ago after a hemorrhage related to a retinal tear. (He was hit in the eye with a tennis ball).

I could tell he felt low about it, but then adjusted over time. He still performs surgery, plays tennis and uses a voice-recognition computer program to write. (He has written a book and produced other media popular in his community). He can drive during the day only. He compares his adjustment to losing partial mobility of a limb, then not even being conscious of its absence.

Welcome to the VR.com community.

Best regards,

 

[Nancy]

For jenny:

Here is a website for Maze people. Maybe someone there could help you with your question.

http://www.mddietofutah.com/maze/index.html