bav/uav and Brain Aneurysms

[Froller2]

so I read a study that found that people with bav are more likely to develop
brain aneurysms compared people without, i must admit that the study chocked me and send me into anxiety fuelled panic.. article
though i did find a study from aha that disputes that claim. article from aha.
now to my question for you fine people! do you get screened for intercranial aneurysms? have your cards ever mentioned anything regarding ic aneurysms? personally this article/paper is the first i ever hear of it but it does make me anxious as i personally feel like ive been through enough healthwise..
im looking forward to you guys opinion and take on it and your personal experiences/talks with cards about such things. love and kindness froller2

 

[pellicle]

Hi

so I read a study that found that people with bav are more likely to develop
brain aneurysms compared people without,

unsurpirsing ... it is after all a connective tissue disorder and we're more prone to aneurysm in the aorta too.

i must admit that the study chocked me and send me into anxiety fuelled panic..

Please, seek professional help, this is not a healthy response. How old are you? (its not in your about), but I don't recall ever seeing any contract telling me I was going to live forever. I'm 60 and have had quite enough of my friends die of cancer, car accidents and other really significant issues. From the study

Methods: Magnetic resonance angiography or CT angiography of the brain was used in 61 patients with BAV (age, 29–70 years [mean 48 years]) and in 291 controls (28–78 years [mean 56 years]).​

Results: Intracranial aneurysms were detected in 6 of 61 patients with BAV (9.8%; 95% confidence interval [CI] 2.4%–17.3%).​

To me this means that a small number of those with BAV had some sort of brain bleed ... but were still alive ...

So?

I didn't see anything indicating if it was "so minor as to need modern sensitive instruments to even discover" or fatal ... no pointing to early death, nothing ... so why the panic?

article
though i did find a study from aha that disputes that claim. article from aha.

same numbers or there about

now to my question for you fine people! do you get screened for intercranial aneurysms?

I think that you're blowing this out of proportion ...

have your cards ever mentioned anything regarding ic aneurysms?

never ... I suspect this is a new finding ... tell me, what good has learning about this done for you?

Long ago I read a Confucian proverb: a coward dies a thousand times, a brave man dies only once. I took that to heart as a very young lad and it has stayed with me since.

personally this article/paper is the first i ever hear of it but it does make me anxious

I suspect you're pre-disposed ... however I believe that the longer you let anxiety rule you the harder it is to ever get it under control. Genuinely, I would earnestly guide you to seek professional assistance to get your anxiety under control. I totally believe it can be done; all that is required is will.

as i personally feel like ive been through enough healthwise..

me too ... which is why after 3 OHS, 2 debridement surgeries, some bicycle motorcycle and car accidents and many other issues (some of my own making) I just don't give a rats arse anymore and just do what is needed day to day, make the usual plans and don't worry about stuff which is both out of my control and in all probability might never happen.

One day I'll be dead ... if its not now, then I'll have some chocolate.

Some thoughts from a fellow called Epictetus and me

Death and pain are not frightening, it's the fear of pain and death we need to fear…

No man is free who is not master of himself. which to me means get a grip on the throat of anxiety so that it does not get a grip on yours.

“I have to die. If it is now, well then, I die now; if later, then now I will take my lunch, since the hour for lunch has arrived – and dying I will tend to later.”

I'm having dark chocolate ... because its evening, and the fire is nice and warm. Its cold outside and there'll probably be a frost tomorrow. I can't do anything about that, however I could do something about the cold inside which I did. I planned and laboured to insulate my house and install a solar (water based) energy transfer system.

It basically heats my house back up in the day (green line) bringing down my energy costs and keeping the warmth much longer into the evenings.

I could change that situation and my working on what I can change has brought me comfort. I can't change if I die tonight or if I die tomorrow in a motorcycle crash (although many years of honing skills in riding may mitigate that risk).

I've always preferred to focus on what I can control rather than what I can't.

Soon I'm going to bed, I may not wake up ... I'll post here if I do.

Best Wishes

 

[Froller2]

Hi

unsurpirsing ... it is after all a connective tissue disorder and we're more prone to aneurysm in the aorta too.



Please, seek professional help, this is not a healthy response. How old are you? (its not in your about), but I don't recall ever seeing any contract telling me I was going to live forever. I'm 60 and have had quite enough of my friends die of cancer, car accidents and other really significant issues. From the study

Methods: Magnetic resonance angiography or CT angiography of the brain was used in 61 patients with BAV (age, 29–70 years [mean 48 years]) and in 291 controls (28–78 years [mean 56 years]).​

Results: Intracranial aneurysms were detected in 6 of 61 patients with BAV (9.8%; 95% confidence interval [CI] 2.4%–17.3%).​

To me this means that a small number of those with BAV had some sort of brain bleed ... but were still alive ...

So?

I didn't see anything indicating if it was "so minor as to need modern sensitive instruments to even discover" or fatal ... no pointing to early death, nothing ... so why the panic?



same numbers or there about


I think that you're blowing this out of proportion ...


never ... I suspect this is a new finding ... tell me, what good has learning about this done for you?

Long ago I read a Confucian proverb: a coward dies a thousand times, a brave man dies only once. I took that to heart as a very young lad and it has stayed with me since.


I suspect you're pre-disposed ... however I believe that the longer you let anxiety rule you the harder it is to ever get it under control. Genuinely, I would earnestly guide you to seek professional assistance to get your anxiety under control. I totally believe it can be done; all that is required is will.



me too ... which is why after 3 OHS, 2 debridement surgeries, some bicycle motorcycle and car accidents and many other issues (some of my own making) I just don't give a rats arse anymore and just do what is needed day to day, make the usual plans and don't worry about stuff which is both out of my control and in all probability might never happen.

One day I'll be dead ... if its not now, then I'll have some chocolate.

Some thoughts from a fellow called Epictetus and me

Death and pain are not frightening, it's the fear of pain and death we need to fear…

No man is free who is not master of himself. which to me means get a grip on the throat of anxiety so that it does not get a grip on yours.

“I have to die. If it is now, well then, I die now; if later, then now I will take my lunch, since the hour for lunch has arrived – and dying I will tend to later.”

I'm having dark chocolate ... because its evening, and the fire is nice and warm. Its cold outside and there'll probably be a frost tomorrow. I can't do anything about that, however I could do something about the cold inside which I did. I planned and laboured to insulate my house and install a solar (water based) energy transfer system.

View attachment 890407

It basically heats my house back up in the day (green line) bringing down my energy costs and keeping the warmth much longer into the evenings.

I could change that situation and my working on what I can change has brought me comfort. I can't change if I die tonight or if I die tomorrow in a motorcycle crash (although many years of honing skills in riding may mitigate that risk).

I've always preferred to focus on what I can control rather than what I can't.

Soon I'm going to bed, I may not wake up ... I'll post here if I do.

Best Wishes

I have but can take upwards of 12 months.
Im 29.
It matters to me because i have no wish to die within the next 40-50years

Call me a coward but im not going to pretend to not care about life and its a proverb from a time when death was waaay more common and anything and everything were a death sentence.
Frankly you sound slightly depressed, your only 60 that is still young with many (hopefully) years left to enjoy.

 

[pellicle]

Good morning

yep, frost came

I have but can take upwards of 12 months.

I'm not quite sure what this means

Im 29.

that helps a lot .. I've noticed that people under 30 are more prone to this sort of anxiety stuff ... I'm 60 for what its worth.

It matters to me because i have no wish to die within the next 40-50years

nobody wishes to die ... but you must start from a point where you understand its on the cards. Every day, out of the blue ... statistics show you the likelihoods, but in my view focusing on it is a bad thing to do for your mental health. I've never focused on it; although there was that time when I was justifiably concerned. It was a very hard 2 years all in all. Indeed because of the regular follow ups with my infection specialist and some discussions about having to have my entire sternum removed as well as being on 3x daily antibiotics for (what turned out to be 10 years) it was quite the life disrupting event.

Let me just say that picking out a coffin for your wife who was under 40 was not my best day.

Call me a coward

I was concerned about your ability to hear "old language" ... however you aren't facing this bravely ...

but im not going to pretend to not care about life and its a proverb from a time when death was waaay more common

and yet somehow people were more resilient then ... perhaps you can (as I have) develop some resiliance and not be "one of the herd". From an old song:

Honesty is such a lonely word​

Everyone is so untrue​

Honesty is hardly ever heard​

And mostly what I need from you​

I can always find someone​

To say they sympathize​

If I wear my heart out on my sleeve​

But I don't want some pretty face​

To tell me pretty lies​

I'm doing my best to tell you what's true

and anything and everything were a death sentence.

maybe then we wouldn't see so many kiddies doing stupid stuff on skateboards breaking their legs or worse.

Frankly you sound slightly depressed, your only 60 that is still young with many (hopefully) years left to enjoy.

thanks for your concern, but if you look at what I do then its hard to reconcile that with depression.

https://cjeastwd.blogspot.com/search/label/daily life

depression (if you have ever suffered that) is usually associated with immobility, not:

• renovating a house
• working on things that are broken to enable you to go to work
• holding down a job
• making life decisions
• extensively and intensively helping others

Do you want to wallow in finding trivial that in no way changes what happens?

https://cjeastwd.blogspot.com/2015/09/denial-or-delusion.html

Too many kids these days have spent far too much time negotiating with helicopter parents instead of dealing with life. I'm not saying that's you and your history, but I've seen it a lot.

I know one or two people here who I simply can't communicate with because I'm on such a different "frame of reference" and they misunderstand everything I say so that they can remain depressed / morose / anxious

How you interpret things is the only real choice you have in most matters. So you can either pick to take something as simple information or you can let it "send me into anxiety fuelled panic." ... The choice is yours.

I recommend you read that blog post about denial or delusion.


You can't negotiate with God.

 

[pellicle]

You can't negotiate with God.

if one ever feels like a prayer, I believe this is a good one:

God, grant me the serenity to accept the things I cannot change, the courage to change the things I can, and the wisdom to know the difference.

to be honest, you'll actually find it was there all the time, in your unconscious.