June 09, 2007 at 09:31 AM CDT
Yes we are still alive and kicking. Sorry to have not updated the last couple days.
I did take Nathan and Joel to the museum and thanks to Nathan's better memory and navigational skills we made it there. We had a good time and the day went fairly fast. I did not like that I had no cell coverage in thst big stone and cement building but everything was fine with Andrew. He gave me up for the day and allowed the other two to have some mommy time.
Andrew had visitors when we got back and enjoyed his time with the Fontanas. John is his teacher in highschool and Nancy was his kindergarten teacher. Great people and I know it meant a lot to him to see them and their kids. It made me feel better that he wasn't alone the whole time I was gone and also that he slept quite a bit of the time we were gone.
Andrew had his last JP tube pulled yesterday so he looks better and better with fewer things hooked up to him. Monday he is suppose to have a skin graft put in his arm and also, drum roll please, his PD cath removed! His kidneys are doing great and we no longer feel he will need dialysis.
Today we are starting a new drug to see if it can control the pain in his feet and also something different to try to lower his heart rate as it is staying high inspite of a large dose of his betablocker. It is by iV but I can't remember what it is. Apparently the Rifampin he is on for his BE treatment interferes with all betablockers so this is a different kind of med to slow the heart. I know it's not Digoxin but didn't write it down yet so of course I don't remember the name.
So once again my appologies. Andrew requested my presence last night and I had planned on catching up when I came back to the RMH for the night. Had I known I was staying I could have done it at dinner. Who's to know?
So we had a pretty good night. The feet continue to plague him so I do hope this new pain med helps. He was a little nausious yesterday and didn't eat much. He did eat a couple bites of my pizza and at 11PM I got him a fried egg sanwich from the grill and he ate almost half of that. This morning nothing sounded good on his tray so I am bringing him back some cereal.
We are still waiting for his bowels to settle down but it seems to be getting less frequent. We added some probiotics to try to restore some good bacteria to his gut. A month of so many antibiotics is not so good for your intestianl floara.
So anyways we continue to be encouraged and trust God to finish his healing work in Andrew. Baby steps as he regains strength and looking for His wisdom for the right drugs and timing for what lies ahead. I really think we will be getting out of ICU soon. We will remain at the hospital until after Andrew has a new ICD placed but that is to be expected. I believe July 2nd will be 6 weeks from the valve replacement surgery and cleanup of his heart. Then we can do the ICD. He's my million dollar baby, and worth all of it!
heart hugs,
Wendy
Yes we are still alive and kicking. Sorry to have not updated the last couple days.
I did take Nathan and Joel to the museum and thanks to Nathan's better memory and navigational skills we made it there. We had a good time and the day went fairly fast. I did not like that I had no cell coverage in thst big stone and cement building but everything was fine with Andrew. He gave me up for the day and allowed the other two to have some mommy time.
Andrew had visitors when we got back and enjoyed his time with the Fontanas. John is his teacher in highschool and Nancy was his kindergarten teacher. Great people and I know it meant a lot to him to see them and their kids. It made me feel better that he wasn't alone the whole time I was gone and also that he slept quite a bit of the time we were gone.
Andrew had his last JP tube pulled yesterday so he looks better and better with fewer things hooked up to him. Monday he is suppose to have a skin graft put in his arm and also, drum roll please, his PD cath removed! His kidneys are doing great and we no longer feel he will need dialysis.
Today we are starting a new drug to see if it can control the pain in his feet and also something different to try to lower his heart rate as it is staying high inspite of a large dose of his betablocker. It is by iV but I can't remember what it is. Apparently the Rifampin he is on for his BE treatment interferes with all betablockers so this is a different kind of med to slow the heart. I know it's not Digoxin but didn't write it down yet so of course I don't remember the name.
So once again my appologies. Andrew requested my presence last night and I had planned on catching up when I came back to the RMH for the night. Had I known I was staying I could have done it at dinner. Who's to know?
So we had a pretty good night. The feet continue to plague him so I do hope this new pain med helps. He was a little nausious yesterday and didn't eat much. He did eat a couple bites of my pizza and at 11PM I got him a fried egg sanwich from the grill and he ate almost half of that. This morning nothing sounded good on his tray so I am bringing him back some cereal.
We are still waiting for his bowels to settle down but it seems to be getting less frequent. We added some probiotics to try to restore some good bacteria to his gut. A month of so many antibiotics is not so good for your intestianl floara.
So anyways we continue to be encouraged and trust God to finish his healing work in Andrew. Baby steps as he regains strength and looking for His wisdom for the right drugs and timing for what lies ahead. I really think we will be getting out of ICU soon. We will remain at the hospital until after Andrew has a new ICD placed but that is to be expected. I believe July 2nd will be 6 weeks from the valve replacement surgery and cleanup of his heart. Then we can do the ICD. He's my million dollar baby, and worth all of it!
heart hugs,
Wendy
