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Fitzy

Hi to all ,

Well I'm on 'Final Approach'!! My AVR is scheduled for next Wedensday- 01/10/03. Thanks to all of you who replied to me during the past few weeks. Any advice on what to expect on the few days post surgery? And the road to recovery.

God bless.

Fitzy
 
Hi!
All my thoughts go with you on your journey. Think of this as a long run where your legs get to the point of telling you to stop, but your spirit and determination will not allow it! There will be hills on this course but you will go right on past them and join us on the other side of the mountain. Looking forward to hearing from you...
A'dh mo'r ort
__________________
Les AVR '93 / '95
 
Everyone's experience is different, but here's what you can expect immediately after surgery:

-You will wake up in a bit of a fog. Time means nothing for the first few hours. You will be aware of things going on around you, but things will be a bit hazy.

-You may notice a lot of tubes, beeping, noise from other patients, etc. ICU is not a peaceful place. It's noisy and alien. You will have 2-3 chest drainage tubes in your abdomen. These are to unload the excess fluids. They will carefully monitor your drainage and make sure you aren't retaining fluid. You may have a couple of wires sticking out of there also. These are for an external pacemaker which is often used until your heart has proven entirely stable. You might have a ventilator down your throat to help you breathe. More on this later. You will have a cathedar also, but may not even know it's there. Of course, there will also be an IV to replace fluids and administer anything else they might want to give you. You will be very pale and this may freak your visitors out a little. The colour comes back quickly.

-You will wake with the thirst of all thirsts. They won't let you drink because we have a tendency to vomit in those first waking hours. Usually, they will give you a sip now and then and some crushed ice. They will swab your mouth a bit to leave it with the impression that you've had something to drink.

-Sometimes you wake up with the breathing tube still in. If this happens, it is important not to fight it. It is your friend. The ventilator is there to ensure your body is getting the O2 it needs until you are fully stablized. It's a bit of a task to curb your involuntary response to breathe and let it do the work, but do your best to relax and you'll be fine. They will pull the tube within an hour or two of your waking up. If you fight the tube, your stomach could get some air in it, which creates a painful gas bubble. If this happens, they will stick a tube into your stomach to release the air. It's uncomfortably, but not like a major problem or anything.

-Xray: They will Xray you a few times. To do this, they will have to move you around a little. Don't worry. They do it while you are lying down. It's uncomfortable, but it's not that bad.

-You may find yourself surprised that it is not as painful as you thought it would be. It's no cakewalk, but it's not as excrutiating as we think going in.

-After a few hours of stability in ICU, they will sit you up. When I was in for my first one, they let me shave myself. It was nice to sit up and get out of bed and being able to do something felt good because it killed the boredom a bit.

-At some point they will remove your cathedar. Not overly painful. In fact you may not realize it's even there.

-After 8-24 hours (usually less than 10), they will move you out of ICU to your room. You will feel better because it will be much quieter.

-At some point in ICU or afterward, they will start pulling tubes out of you. The cathedar is no problem. The wires from the pacemaker give you a little pinch on the way out, but nothing too serious. The ventilator is easy too. You will feel great after it's out of your throat. You will have a sore throat for a few days. The chest tubes range from "not too bad" to "excrutiating". I had two operations. When they pulled the chest tubes after the first one, I nearly passed out. Not enough painkiller and a slowey who never heard that ripping a bandaid off fast is the best way. The second time hurt, but was not unbearable.

-Once you get those chest drainage tubes out (1-3 days after surgery), you will feel waaaaaaay better. Dragging those beasts around is not painful, but uncomfortable because they pull downward when you are trying to walk.

-There are two things you must do to get better quickly. Walk. Walk more than they recommend. Sitting up, standing and walking keeps fluids at bay from your lungs. The more you walk (within reason, don't tire yourself out too much - you need to build your strength too) the quicker you will recover. The other thing is your breathing exercises. They usually give you a spirometer, which is a funny tube thing with balls in it. You blow out to keep the balls afloat. It's a chore, but it is very important for your lungs too.

-You will have trouble sleeping. Possibly for a few weeks. This is normal. Your body is loaded with drugs and things it is not used to processing. This stuff takes months to get out of your system. You may notice your hair gets super-dry. I even had my curls go straight for about a year. Never did go back quite the same.

-Your memory may play tricks on you for several months. You may not remember certain words. Don't be alarmed. This is due to being on the heart-lung machine. It beats up some of our cells and it takes a while to recover.

-You may find yourself on an emotional roller coaster for a few months. You might cry for no reason; be at peace and glad to be alive and angry as hell - all within an hour. This is normal. It will gradually go away, but it's important for your caregivers to expect a little bit of unusual behaviour from you.

-There are a lot of other things pertaining to recovery over the next few weeks, but this captures some of the things you can expect immediately upon waking.

Hope this helps. You are going to do just fine.
Keep well.
Kev
 
Okay, the chest tube part scares me - excruciating??? I know you are not trying to scare anyone, just being honest, but are there any other opinions on the chest tube removal out there - what can I do to minimize the pain? Was it painful for everyone??

Thanks.
Chris
 
Thanks for the reply guys! I think I am ready to Climb the Mountain. (As it is one of my hobbies)

Les- I'm getting impressed with your Irish!!


All to best
Fitzy
 
Fitzy -
Setting aside MY selfish fears regarding my upcoming surgery, :(, may God watch over you and guide the surgeons hands - may you have a speedy recovery. As you know, ALL here on this site will be thinking and praying for you on the day of your surgery.

Chris
 
For Christina

For Christina

I didn't mean to freak anyone out, but at the same time I don't think it's appropriate to sugarcoat anything.

Please note that the pull of the tubes for my procedure was not done properly. I was not given enough pain medication prior to them doing so and this is a key factor in the amount of pain. They also did it too slowely.

My second go around was administered by a pro and the pain was not sufficient enough for me to even recall the details. Morphine and a quick pull are the key here.

Through both of my surgeries, it was the most painful part of the whole thing.

The good thing is that the pain lasts for maybe 30 seconds, then subsides to a dull ache for less than a half hour and then everything is good.
Kev
 
Christina,

Because I had heard that removing the chest tube was painful, I asked for morphine before it was removed. I said I had been through enough the past few days and wanted the pain meds before they removed the tube. They were hesitant, but because I still had an IV, they agreed. The pain was tolerable and very short lived!
 
Thanks for the warning Kevin. I will prepare myself for the tube pulling. Of course, maybe if I am expecting the "worst" it won't be that bad. :)

Chris
 
Hey Fitzy,
Soon you will be on the other side of the mountain and we will all be there for you. You are in our thoughts and prayers.

Christina L
Just ask them if they will give you anything before they take the tubes out. At Poudre Valley they gave me something and I don't remember them taking the tubes out. That was the one thing I was not looking forward too but it was no big deal.
Take Care

Dave
____________________________
Surgery: 4/21/03
Aortic Aneurysm Repair
AVR, with a St. Jude Mechanical
Heart Center of the Rockies
 
Hi Fitzy!

Just try and relax these last couple of days....do your favorite things...take a walk, read a good book, spend time with family and friends...or my personal favorite....take a long, warm soak in the bubble bath....aaaahhhh!!;) ;) ;)
You are going to do just great and in the not too distant future you will be able to look back and smile....because you'll be feeling so much better!!
You are in my prayers and we will all be waiting to hear how you are doing!
Take care!:)
 
Hey Fitzy - Kevin did a nice job of summarizing the experience - it will vary a little depending on the patient and the amount of sedative you are given. I was kept sedated until the ventilator was removed so I don't remember a thing about it. I was not sedated, nor on extra pain killer when the drainage tubes were pulled. It was a little uncomfortable, but not painful. Try to find someone to post for you - we'll all be on pins and needles until we hear about you. You're in our thoughts and prayers - Chris
 
Christina

Christina

If it helps, my experience with the chest tube removal was that it was over in a few seconds, and it wasn't painful so much as it was an "odd sensation." Somewhat tickly, somewhat burning.

I was nervous about it, told them, and they gave me a painkiller / sedative of some sort - but in hindsight I think it would have been easy to tolerate without it. You asked if it was excruciating - definitely NOT even close.

Your mileage may vary -
 
Hi Fitzy-

I want to wish you all the best for your upcoming surgery. You'll do just fine. We'll all be here waiting to hear of your news. I hope you have someone who can post for you.

Bon Voyage and smooth sailing!

Talk to you later,
 
Hi Fitzy,
Kevin did a very accurate explanation of what to expect. Of course, everyone's experience is a little different.
My thoughts and prayers are with you.

Christina L,
I too was terrified about having the chest tubes removed. I asked for a sedative, but they assured me I would not need it. When they did it I hardly felt it. And it felt so good to have them out. Let them know that you are nervous about it. When they do it, follow their instructions, and it will be over in 5 seconds. They told me the most important thing is to not tense up. I know it's easy to say but, relax.
 
[slaps forehead] Fitzy - my apologies - I forgot to say good luck on your upcoming expedition. We'll be here at base camp waiting to hear word how it went.
 
If it helps, my experience with the chest tube removal was that it was over in a few seconds, and it wasn't painful so much as it was an "odd sensation."
That was my experience also. It didn't hurt but man did it ever feel funny.
 
Fitzy - a week from now you will be up and walking, believe it or not. We're goin along with you to get you over and help you dodge the truck that's always on the trail but most of us miss it. You'll be in my prayers.

GODSPEED!


Chest tubes: Charlie, the dr's nurse practitioner, was talking to me and suddenly they were out with just a slurp and a strange feeling. No pain.
 
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