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  1. Rachel

    Spastic Breathing

    I also had them from time to time right after my surgery - I also don't remember when they stopped - after 6 months maybe
  2. Rachel

    First Echo in 18 months is tomorrow....how to calm down advice?

    Of course then there are people like me who are very very small and have never lifted weights......have absolutely no upper body strength at all and still get 5.2cm aneurysms.....at a "young" age......sorry to be the party pooper - not lifting might hasten the growth and then again it might not.
  3. Rachel

    Introductions, questions, frustrations ....

    Hi Coach! I've met a ton of BAV people in person, some on this forum and some through another - and whenever we get together one of the long standing jokes among us seems to be - "yeah, so I went to my doctor for such and such and he/she said: 'has anyone ever told you that you have a heart...
  4. Rachel

    First Echo in 18 months is tomorrow....how to calm down advice?

    Oh Roxx - it's no wonder that you need some "tricks to calm yourself down" - sounds like you're carrying a ton of "extra stuff" that you don't need to carry.....as you can tell I agree with what others have posted - I think you should also tell your wife - in my experience.... secrets are never...
  5. Rachel

    6.5 week post OHS bike ride

    I also had HR restrictions - that was a pain when I tried to "run" - took me a while to get back to normal......but I got there and so will you! Congrats on your progress!!!
  6. Rachel

    Very brief first post post-op from home

    Welcome back!!!! Glad to hear that you're home - I also remember not eating a whole lot right after surgery (and protein shakes are an excellent idea) - when I finally did get my taste-buds back I could eat all day long and not gain any weight for the first few weeks - it was GREAT! Take your...
  7. Rachel

    Pretty water glass....

    You too!!! I wish the same for everyone - health and happiness!
  8. Rachel

    Race 5km X-country most Sundays

    That's excellent Brian! Keep running - keep living!!!
  9. Rachel

    GymGuy 22-months update - Powerlifting, 10k runs and other fun stuff

    GymGuy - so great to hear from you again!!! I also agree - you're just so inspiring - keep it up! Oh - and the running?!?!?!? How cool is that??? You know what would be super fun - is if you joined us for our runs in either March (Cincinnati) and/or in October (Grand Rapids) - bunch of heart...
  10. Rachel

    Half marathons - Medtronic Twin Cities marathon

    Congratulations!!!!! How VERY cool!!! Rachel
  11. Rachel

    new to forum need AVR

    Hi Leah, Welcome - hope you get some good recommendations for a Cal doc. My advice to you entering surgery is to take really good care of yourself right now - the better shape you're in - the better shape you'll be when you get out. Also please remember that we're all different - I'll share...
  12. Rachel

    Date set

    Deb and Anne, What a coincidence - same day for the "Brit Girls" - I'll be thinking of you both on January 6 and looking forward to hearing from both of you afterwards! In the meantime stay well, keep a positive attitude and enjoy the holidays! Rachel
  13. Rachel

    Just joined the club

    Welcome to the club!!! Wishing you a smooth and uneventful recovery!!! Rachel
  14. Rachel

    Member Meet-Up At The Cincinnati Heart Mini Running Event

    So glad that you'll be able to join us!!!
  15. Rachel

    Post Surgery: High Pulse - low BP

    Wow your BP and resting HR sound almost identical to what mine was after surgery!!! I was on BB's for about 3 days but they took me off due to low BP. My HR stayed high for about 3 months....... then after I was able to run and work-out more it did drop - it's now about 48-50 I understand that...
  16. Rachel

    What meds are usually given post-operatively ?

    I have no idea what meds they gave me - all I remember is that I had a two wrist bands - one for each wrist - I gave my left wrist to the tech so they could scan it and take my vitals - when I saw a nurse I gave them my right wrist so they could scan it and give me my meds...... whatever they...
  17. Rachel

    Second opinion questions

    I agree with the others - most likely you're more aware of your heart now since your diagnosis than before. I also had a thoracic aneurysm - but mine was 5.2 cm when it was discovered and I remember feeling similar to you in that I thought it would dissect at any moment - for the first time in...
  18. Rachel

    Sept.19 AVR Surgery. Lots of setbacks

    I agree - 22 minutes is excellent! Keep moving forward!
  19. Rachel

    Fear

    Totally agree with that, brother!!! To Anne, I think that this is one of the many reasons why I feel such a kinship towards others who "have been there" you know? Ultimately we are very fortunate to not only be eligible for this life saving surgery, but we also get to experience things that...
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