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It's definitely red! :)

Hello all :) thank you very much. I think I spoke to soon. Unbelievable! So I go to the library with my kids, I pick up a random book from the philosophy section, being there by mistake. The book name is "Me after You" foolishly I read the first chapter and it's all about her husband, who...

Hello all, I hope you're all doing well. Earlier this year I posted an update on this forum and thanks to all of you, especially pellicle and clchd, I have recognised that I need to sort myself out and I did well. I have also heard a lot of Alan Watts talks via audible and I honestly have to say...

Hello All - I wonder how many of you have experienced the following: Back in 2010 my MRI shown that my sinus of valsalva measured 33mm X 44mm and an ascending aorta of 33. The CT scan, done at the same time measures my sinus at 47mm and aorta at 36mm. Last February my MRI measured my sinus of...

Thank you very much all. I have started a list of things I want to achieve. I have not taken another Mitrazapine and I am trying to live on a day by day basis. I know its a long way to change all my negative thoughts, but I am working on it. I wake up and convince myself that I'm happy, I'm fine...

Pellicle – this is fruit for thought. You have given me something to really think about; I have actually saved your document and your blog links and re-read your message many times, to absorb all value from this. I started reading your blog. Firstly, I am really sorry for your loss. Your...

CYA - I like that cldlhd! I hope you had a great day with your son and you found a car you like. Valdab - you're right, I'm too busy worrying about everything , that I actually have no real hobbies or sports. I need to think about doing something interesting. If I may ask, what do you teach...

Thank you very much cldlhd, I now need to trust my GP and take this medication as I am too obsessed reading the side effects part!!..... What you said is very true and I;m exactly the same finding myself wishing to turn back time and spend more time with kids. I really appreciate your kind...

I am going to download the book you recommended AZ Don, men search for a meaning. Its sounds really good and thank you for your recommendation. I have been to my doctor on Monday. I've talked about my thoughts and concerns. My GP told me that he also has bicuspid aortic valve, so I sort of felt...

Sinus effacement is when the sinuses sort of lose their shape, gets a bit flattened because they are being stretched. I don't think that this is much of an issue to be honest, but it just another prove thta mine is not normal and its doing some element of damage in a way.

When is your surgery going to be held allbetternow ? Your locations seems like mine, the only center specialised, that performs this surgery is by helicopter, which makes me nervous aswell. I have alot of reassurance, but on the other hand, none of them have a crystal ball to hand. On that same...

Hi cldlhd - You're right. Fear of surgery is probably the same level of fear, as living with this condition, as it all comes down to the fear of death. The physical restrictions and being on a daily irbesartan does bother me psychologically, as I'm 32 years old and feel that I'm different...

The confusion is that certain data states that, it is not clear as to when surgery is recommended. It seems that the magic point is always described as 6cm for the ascending aorta, when there is a significant risk of rupture, dissection etc. and therefore, at 5-5cm, surgery is recommended, to be...

Thank you Valdab. As you say, it could be far worse I suppose. Tal Golsworthy is the person who invented the PEARS procedure. He has Marfams syndrome, he is engineer and didnt want to be on blood thinners, so invented a wrap for his aort la which is now being performed in London's hospitals and...

Hi Valdab - I completely agree. Huge part of me, obviously, don't want surgery and at the same time I want to sort it out. But not sure what's giving me the most anxiety, an untoward event on my aorta or facing surgery and life after surgery or just the thought that I have this condition, makes...

I go through cycles cldlhd. I spend 2 months ok then I have a terrible week worrying. Then I forget again and continue in the same cycle. Probably you notice my activity in valvereplaceme. I spend time not asking anything, then suddenly I have all these questions. How are you doing if you...

So I talked to a surgeon here in the UK, who specialises on the PEARS procedure. He reviewed my MRI scan from last February and he said that I may be a suitable PEARS candidate. However, as per NHS regulations, he asked me to talk to my cardiologist and get a referral for further consultations...

Thank you all. I am now talking to a surgeon who is going to look at my MRI images from last February, to see if I could be a candidate for the PEARS procedure. It is surprising that valve sparing does not carry great outcome, is it because bicuspid aortic valve tend to progress with...

I've been searching on aortic aneurysms for the last 2 hours!! I hate it, it's like morbid fascination!! I read the article by Kevin Helliker and I thought he is positive, but the article was not positive. I'm bored of this,really fed up! I need a monitor to see it myself all the time and if it...

You're right. It's a relatively new procedure compared to other traditional ways. I like you analogy about software update. So are you back to normal activities now ? About kids, yes, I am concerned. As usual my cardiologist said nothing to worry about, but I hate the fact that they might...