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Bicuspid Aortic Valve Repair: Bryan’s Story http://www.dailylocal.com/article/DL/20180205/NEWS/180209896 By Barbara Curtis A collegiate athlete turned physical education teacher, Bryan Tingle has been physically active his entire life. He was an accomplished lacrosse player and even tried out...

I am glad it is helpful and you may also want to give consideration to Bavaria at Penn who is very experienced. At the end of the day, what is most important is selecting a doctor who has ample experience with this procedure.

This is a piece from mayo on the topic... http://www.jtcvsonline.org/article/S...928-8/fulltext Expanding relevance of aortic valve repair—is earlier operation indicated? Read at the 93rd Annual Meeting of The American Association for Thoracic Surgery, Minneapolis, Minnesota, May 4-8, 2013...

Stefan Struve was recently diagnosed with a bav and cleared to keep fighting !!! https://www.google.co.cr/amp/s/amp.usatoday.com/amp/12165743

I thought some people here might take interest in this study on Composite Graft Aortic Root Replacement (Bentall De Bono procedure). This is a very complete single surgeon (Yale / Dr. Elefteriades) series of 449 patients over a 25 year period. Quite remarkable and perhaps a time to reflect on...

amarG, Stanford is an impressive team and their advice seems most sound. Sadly, as they concluded there is at present not sufficient test data. This article just came out but it is mostly anecdotal and from the daily mail so not at all scientific. It also relates to a 64 year old patient so...

And one thing that could help is if you focus on others. Your loved ones are also anxious for you and sometimes it is harder than being the actual patient. Those hours, I can only imagine, will be the longest of their life. They will then need your guidance so they can best support you...

It must be difficult to deal with this issues at 23 but you should be very proud of the fact that you have been so proactive about your care. There are great people in this forum that can give you guidance and perhaps even perspective on what is the right choice of valve. But most importantly...

This is a good blog from an experienced doctor and much related to your question... http://www.athletesheart.org/2013/09/more-on-athletes-and-bicuspid-aortic/

Sorry to hear and a good option is to search through posts here. In particular, look for "skigirl" who is VERY active with her mechanical valve. And there are many others here who are also very active runners. good luck to you.

WillieR, Here is a video by Alan Stewart from Mount Sinai with a presentation on BAV repair which you might find relevant to your query: https://www.youtube.com/watch?v=x4G_P7JqF4k The leading centers for BAV repair in the US seem to be: - Cleveland - Svennson - Stanford - Aaron Boone had...

This post by SumoRunner related to your initial post (although not BAV) is truly extraordinary and worth reading...

gatorbait, one additional consideration is a recommendation that is often made to inform first degree relatives of your diagnosis. While more often sporadic, it is at times familial and there is a documented 9% probability that first degree relatives may also have a BAV. Although a small...

gatorbait, you may also want to give consideration to diet which may help with valve stenosis due to calcium deposits. There are some studies being done into the role of vitamin K2. There is also some commentary on the role of cholesterol, sugar and soda. But in general it would seem that a...

This could also be of interest to you... http://www.athletesheart.org/2013/09/more-on-athletes-and-bicuspid-aortic/ More on Athletes and Bicuspid Aortic Valve (BAV) September 26, 2013 By Larry Creswell, MD 128 Comments I probably get more inquiries from athletes with bicuspid aortic valve...

On that note Aaron Boone is also another story that may be of interest to you. He played until he had his valve repaired in 2009 and I think went back to play for a little bit longer.

gatorbait, not sure if you saw this story which i posted some time back. Quite interesting and provides perspective on a person who has worked through this issue over many years. It might be interesting to get him to join this forum and offer advice to people who have questions about how to...

There are two medical pieces with good data implying that with good care and no other significant health issues you should expect a normal life expectancy... http://circ.ahajournals.org/content/123/1/31 http://www.annalsthoracicsurgery.org/article/S0003-4975(07)00667-4/fulltext In both the...

There is some additional data here from the FDA on this trial which gives more specifics... https://www.accessdata.fda.gov/cdrh_docs/pdf15/p150048b.pdf

The fact that you posted here is a good sign and something to build on. It is important to get someone with experience to help you through this process. And start with baby steps and small milestones, simple things like making your bed in the morning matter. But as epstns well said, do get...