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  1. L

    Getting to the front of the waiting room

    I think having a nice holiday booked a few weeks month or so out is a good thing. Especially if it is as relaxing a place as I am imagining, with beautiful scenery to gt all your post op walking thru. I think it can help and be even more motivating to have something special to look forward to...
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    Ross Young

    I was so sad to hear Ross left us, Until the last minute I prayed in a few weeks we would all be talking about how once again Ross beat tremendous odds and was back in forn of his computer. As others said Ross was quite the person, one if you were lucky enough to know him, you will never...
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    Radiant # too lo

    Not o alarm you, but I really wouldnt be comfortable with "I asked the cardiologist what he meant he said it was like there was an obstruction, but he wasn't worried about it" I would ask where he thinks the obstruction is, what could it be? clot/ pannus (tissue) or at least for him to explain...
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    Getting to the front of the waiting room

    I know I'm a little late but there is one http://www.valvereplacement.org/forums/forumdisplay.php?18-Significant-Others-Forum Its pretty slow, but usually if someone posts people respond
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    Radiant # too lo

    I agrree w/ both Bina and Otta, most likely it is the gradient that he is talking about. which pretty much is the difference of pressure between the left ventricle and Aorta. Altho if I remember right 51 is on the high side not low, so maybe he was talking about something else. I would...
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    Any Post Valve Surgery Hospital Stay Tips?

    I dont know if you found them, but at the top of both the pre and post surgery forums are some pretty useful "stickies' Heres on that has alot of things people took or wished the took to the hospital...
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    Hi

    I thought since Mary let me know about Ross and i posted in that thread, id say Hi since its been a while. Things are doing well for us. Justin is doing well, actually better than I hoped. When he got his last bovine pulm valve and conduit in 05 when he was 17 and even needed that conduit...
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    Ross

    I want to thank Mary for letting me know about Ross. What a shame, he has been thru so much and fought thru I keep praying once again Ross will amaze all the medical experts and be back online doing what he loved and enjoyed, helping others and even arguing. altho I know the chances get harder...
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    Need new medical alert bracelet, and imput on what needs to go on the emblem!

    YES, well necklace anyways. When Justin was in about 8th grade he broke his arm badly skateboarding and an ambulance was called. He was awake but when they started asking medical history he said he had a medic alert necklace and not only did the ambulance call, but by the time he got to the ER...
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    "Think you might have AF? There's an app for that"

    I thought this was pretty cool and really interesting, and nice to post "happy" no big risk trials Hope it works and is affordable Here is part of the article the rest is at the link http://www.theheart.org/article/1487817.do "Worchester, MA - Innovative researchers have developed a...
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    Heart of the Sunrise- AVR in the Early Spring

    April 12th is a very good day, Justin will turn 25 next year. Honestly living in the area and Justin having several heart surgeries at all different times of the year, spring is a much better time for recovery than your earlier hopes of Jan or Feb. Its much easier to get all your walks each day...
  12. L

    Study of dabigatran in mechanical heart valve patients halted

    That would be my guess, or a clot in the valve etc. Just like they do in all the studies for Valve choice or articles on long term use of certain valves or INR ranges. Of course there can be small clots that don't do any damage so they wouldnt look for clots, just count ones they know about...
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    Adult congenital heart disease a new subspecialty

    http://www.theheart.org/article/1486811.do "Chicago, IL - A new subspecialty of adult congenital heart disease is to be introduced by the American Board of Medical Specialties (ABMS); it will be available to internal and pediatric medicine cardiology trainees in the US within the next three...
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    Study of dabigatran in mechanical heart valve patients halted

    No Ski has it right, they started the trials and stopped them because the results weren't good. (JUST MY guess but, most likely werent as good as Coumadin with normal INRs. Kind of like the asperin trials ON-X stopped in germany that were stopped for clots/death a few years ago) I dont think...
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    Study of dabigatran in mechanical heart valve patients halted

    The trials weren't in the US, but Canada and several European countries. I know this was one of the drugs some were hoping would be approved to replace Coumadin for valves, so it's a shame it doesnt look like it will any time soon. http://www.theheart.org/article/1487131.do "Boehringer...
  16. L

    Onxy vs St Jude Regent?

    Ijust wanted to point out this thread was started in 2007 so is now over 5 years old. many of the people who posted on it, including Boo, no longer are members or active
  17. L

    Feeling Like a Victim of the System (Negligence?)

    Ask them. Also if you havent, you should request copes of all your test results you MIGHT have to pay for them, if you get them from medical records, so ask your doctors first.
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    Feeling Like a Victim of the System (Negligence?)

    No, but I did word it badly. What I meant was unless he met the criteria for surgery and due to the fact he did not have surgery in 11 there is permant damage, I do not believe (in my non professional opinion) he would have a case, or at least a winable case.
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    Feeling Like a Victim of the System (Negligence?)

    I'm sorry to hear youve gone thru so much how scarey that must have been. This is just MY opinion and Im not a lawyer or medical person but... It's hard to say with out more details, but from what you've written , probably not would be my guess. If I have this right, since your transient...
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    the wires are bugging me

    I don't know If it helps, but Justin's infection was in quite a bit of sternum and the tissue around it. It was quite scarey at least for me the Mom,google isnt always your friend, I learned not to look things up in the middle of them. BUT after his surgery and weeks of antibiotics, Justin did...
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