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I'm curious, what is the purpose of this poll and what do you plan on doing with the results

I'm sorry the echo was so off, but honestly even IF you find a cheaper MRI, which I doubt, it will be VERY hard to get insurance to cover MRIs every year because 1 echo wasnt accurate. Justin does not have echos, yearly because his chest has been open 7 times and they cant really get a good look...

Sorry to hear that, I know it stinks to have surgery postponed even a couple days. I think I said earlier I personally believe you have surgery when you are "supposed" to have surgery. IF it helps at all, dont blame NHS, it pretty common especially in larger centers that do alot of ER cases or...

Hi leah, yes it sounds like you are really preparing well. First off have you checked the "stickies" at the top of the pre and post op forums? there is alot of really good info there, questions to ask, what surprised you etc http://www.valvereplacement.org/forums/forumdisplay.php?4-Pre-Surgery...

Oh ok yes Justin has had alot of caths , maybe not alot but I lost count pretty early (which I felt bad about). Some were "just" looking around measuring, but he had a few interventional ones where they opened holes or tried to balloon open arteries and even was able to put off another surgery...

Am I reading this correctly your doctor is NOT against home testing, but wants you to be stable a couple times before they will give you a prescription for one? If that is the case it stinks, and as you said it probably be easier to get/stay in range if you could test a couple times a week until...

Hi Katie, There are quite a few members who home test and love it, There is alot of good info and the home testing section http://www.valvereplacement.org/forums/forumdisplay.php?14-Home-Anticoagulation-Monitoring and anticoagulation...

Thank you. Yes Justin really kept us busy the first 2 years especially. he turned blue the day after he was born while feeding, so we had to pick a hosp to transfer him to and he had his firs heart surgery at 10 days, then when the finally got off the vent and could use a bottle, he had horrible...

Hi, My son has had 5 OHS and a few other heart related surgeries, his 3rd was when he was 10 and 5th when 19 he is now 25 so I spoke with quite a few surgeons about the risks etc, especially since we knew going into both his 4th and 5th OHS that his heart was fused to his sternum, (luckily for...

Oh how beautiful he is!! I am so happy for you. I know how much you wantted another Baby.

Yes that wouldn't be much help at all. But I was thinking of the frames that are more like a sofa that you also can open flat to sleep on -I didnt look for good prices or in the UK , this is just an example http://www.amazon.com/Black-Metal-Futon-Frame-only/dp/B001UW8FQI I dont know if your...

Going up and down the stairs 20 times a day might be tough at first, but unless you have some bigger complications, going up and down a few times a day, shouldnt be a problem.. Along with the idea of borrowing a recliner, or buying one, is there a furniture rental place anywhere near you? that...

Wow can' believe it has been 5 years since Deb left us. It doesnt seem like it was that long ago, we were discussing what she should wear for her wedding to Joe. What a beautiful couple they made that day w/ their beaming smiles and Joe in his kilt. Does anyone hear from Joe anymore? I think of...

its fine where you posted. Sorry to hear about your tooth, but I guess in the plus side, it happened now and not next week. Often people have to get dental clearance before surgery, so even if you end up postponing, at least you will know there aren any problems with your teeth afer his ges...

I'm not sure what they ended up deciding, but I remember a couple years ago, there were quite a few articles on people on Coumadin who had bad bleeding etc, because their INR increased quite a bit when they took tamiflu.

Hi Drew, Sorry to hear you ran into a bigger bump post op ...(AND you had to drive 7 1/2 hours back and forth) but glad to hear it sounds like CCF was really proactive and things are better now. It kind of sounds like what happened to Justin after his 1st OHS when he was 10 days old. They called...

Thanks guys, Allison is a VERY good friend of mine and has been or years. I think Derek was about 6 when we "met" Allison I wouldn't really worry about that, I am sure they have plans A-Z and if for some weird reason I cant imagine, they cant get that valve in they will keep working until they...

Brittainy, I am so happy for you hat you were able to find docs to work with you and soon Parker will be here. I remember a few years ago you were asking about it. I'll keep you and Parker in my prayers that everything continues to go smoothly the rest of your pregnancy. and you have a perfect...

I was thinking most people I know who had chylo were children. I'm glad they wre able to figure out it ws chylo and not the regular effusion so got the right treatment. I'm glad to hear you are home now. You must have been getting quite bored.

Can't help w/ ThaT, but waned to say i am very happy for you that you found a doctor you have faith it and believe he will take care of you. That is such a relief. Enjoy life Lyn