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So glad to hear that it worked out and Sammy got the test. I've heard too that the MRI is more accurate than the echo (Matt's MRI numbers actually came in lower than with the echo, so I love MRIs). Best of wishes that the results are good. And hope tests were normal for your two other boys as...

Happy Holidays, everyone! Such a beautiful picture of Emma and wonderful update. Wishing the VR family the healthiest and happiest of New Years.

Your dad is in my prayers, Lyn.

So sorry you are dealing with this, Niki. Good that the pain is not as bad now and you are closer to having your cardio on board to expedite things. Hope you have a pic of the two sweeties right next to you. Their little faces have to be the best medicine. All the best, Jane (the girl of...

I'm so very sorry you have this worry. When I read your post it reminded me of what our cardio has mentioned a couple of times. He says that every year he evaluates a quite a few teenaged girls for suspected heart problems, and it turns out to be that they are dehydrated, and that is what is...

Good luck getting in on this study. It sounds like a great opportunity. I haven't been on the board for quite awhile as I've been more on the college search and admission boards (it will come faster than you can imagine!), but I'm glad to see that you might get this break. Hope you and Sammy...

I will continue to send prayers your way. It is reassuring that you are in the hands of the Cleveland Clinic--when it comes to the new and the best, they are ahead of the everyone else. Glad that Brian is out enjoying with his dad. All the best. You're an incredible mom and patient advocate.

Sorry to have just seen this. Lyn, you and Justin have my prayers for a surgery that takes care of everything and is smooth and uneventful. I hope that the bactrim takes care of so much of the infection and that the rest will be minor. Justin is so strong. He is an inspiration. Plugging for...

Hi Julie, I would recommend a pediatric geneticist, since both boys seem to have something. My older son Matt, with the BAV and dilated AO sees the geneticist every other year, and younger son with just the mildly dilated AO sees her now every three years or so. It has been very supportive...

Thoughts and prayers are with you, Deanne. You are doing an amazing job. It sounds like the CCF really knows what it is doing--so glad you are hooked up with them.

Hi Lyn--I know, isn't it crazy? I can't believe Justin is 22. And how old is little Katie now... Can't believe how time flies! All the best to you and Justin. Jane

Hi again, I forgot to mention that my younger son, almost 14 yrs, has a normal AV, but does have some dilation of the aortic root. He got yearly echos for three years and since it seemed to be stable, is now on an every three to four year echo schedule. My husband also has the dilation along...

Hi Julie, Welcome to this great forum. It was a life-saver for me when I found out about my 11 yr old son's BAV and dilated aorta. The shock was immense for me, and the only thing that seemed to help (besides the incredible generous people on this forum) was informing myself as best I could...

Have to say that I'm kind of relieved that I didn't know about this before it was over and you are safely home, Bob. I'm so glad it went well. All the best wishes for a continued smooth and uneventful recovery!

I just stopped in again after a longish absence, and am so sorry to see any unhappiness on such a truly wonderful and supportive forum of friends. From the somewhat "outsider's" perspective of someone who doesn't post very often (I have no idea what the disagreement is), I'd like to predict...

Your son's doctor sounds a lot like my son's first doctor--who also did not feel it was necessary to share facts like "dilated aorta." We changed to a doctor we really liked and have been with him ever since. The good thing about the experience with the first doctor though was that it led me...

Brian and you will be in my prayers. Lisinopril is a great drug. My thoughts will be that it does what is needed. The very best of luck to you. Jane

Bryan--I just wanted to say that I am so sorry to read that you are up for another surgery. I remember your kind and reassuring posts well from when my son was first diagnosed and I was scared and clueless. If it's any help at all you have another person out there rooting for you. All the best.

My vr.com family-- Thanks so much for the wishes! This year has been one of the best yet--I highly recommend the fifties as a desirable decade. It's also been a good year because of Matt's awesome echo in Feb. You guys are truly the best!

Best of congratulations on your extremely beautiful twins!!! Don't forget to sleep when they sleep...and hang on for a wild and wonderful ride. All the best to you and Nathan and son and daughter.