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Any updates on Foldax anywhere?

Agree with this all strongly! A lot of the Ross information used in discussions on this forum is dated. There’s some good info, as well! This forum is a really good SUPPLEMENTAL resource. But nobody here is a heart surgeon and they don’t know the specifics of your situation. Valvereplacement.org...

Pellicle this was just absolutely remarkable insight. Would love to see an expanded discussion of this with you and a cardio published. Would be really informative and helpful. Great stuff.

All good! When my time for surgery comes, I’m sure I’ll lean on your experience and will be very thankful!!

Lol easy Pellicle! I wasn’t being passive aggressive—I don’t do that. Just disagree on some things! I genuinely appreciate your input and work over the years. I don’t come here to argue with anyone! Thanks for your help and input, as always.

as always, you’re the mechanical valve guru and I respect your opinion/data.

I smoke “dope” regularly now and still workout 3 x a week while running 25ish miles a week. Think we have a different perspective on this lol...but appreciate your opinion

Hey everyone, I am a marijuana user and saw some research online about people on blood thinners not being able to use marijuana? It seemed like the info/data was sparse, but the overall takeaway seemed to be it’s risky. Anyone in here on blood thinners use weed and can speak from experience...

What classifies an “over” event or “under event”? And how dangerous is it having such an event? I’m sure this is a dumb question but I’m interested and will likely be a self tester eventually!!

This was a great thing to follow throughout. Congrats on your recovery and you made having a mechanical valve seem not as intimidating as many think it is!

Hi everyone, Was wondering if it’s common to get multiple mechanical valves? Does that change life expectancy or make you more at risk in regards to blood thinners? my cardio only ever discusses my BAV regurgitation which is mild to moderate. But reading my test I saw it says “trace mild...

Hey everyone, How common is low HR in this forum? I’m resting of 47-55. Assume lower during sleep. That’s not a predictor of needing a pacemaker is it?? My Cardio says not at all. I have no symptoms or issues with energy and it rises properly with exercise. I run a good amount but not a ton.

Good luck!! Looking forward to following your recovery. Best wishes and happy holidays!!

Just curious what age those with BAV Regurgitation(AI) required surgery? thanks!

Agreed that may be a ways away based on the links/studies I’ve read. Good thing is good or bad we will get data on all of this in the next couple years as they begun human trials.

https://www.cathlabdigest.com/content/jenavalve-transcatheter-aortic-valve-replacement-tavr-system-designated-fda-breakthrough-device

Jenna valve update from this year is super encouraging with the FDA labeling it a breakthrough device and wanting to expedite the trials. Not sure how that affects low risk patients, though.

That’s correct. As someone who has regurgitation and not stenosis, TAVR is a bit behind for me anyway. The JennaValve gives some hope for us regurgitation patients to get TAVR, but I’m not sure how far away that technology is from being used in low risk patients.

Hey Bill— I couldn’t find it online yet but I assume they will post it soon. I attended a live version. The trials aren’t happening at Cleveland Clinic, their cardios just found the approvals and studies encouraging and said they’d anxiously be following the trials as they continue. My links...

This is at least reason for optimism! Hopefully it does match the marketing enthusiasm, though only further studies will tell. Looking forward to that data.