Search results

Hi Arlyss, Both doctors at the CC and Mayo told me that a pericardial valve was not an option because they don't come with root graft that I need and that neither of them would last very long in someone as young as me anyway. I trust both of these surgeons opinions. So I am almost certain...

Hi Again All, As some of you may remember I need a second heart surgery to repair an aortic root aneurysm and leaky neo-aortic valve following a Ross Procedure performed a little over six years ago. Dr. Dearani, a surgeon at the Mayo Clinic, recommended a mechanical valve and root replacement...

All, In case you don't remember I had an Ross Procedure back in 2000 that hasn't worked out too well. I went back to the Mayo Clinic last week for a second check-up and my cardiologist recommended surgery within the next few months. He said he thought that Dr. Joseph Dearani would be the...

I'm currently on 100 mg/day. I have not experienced any significant side effects. Although those types of things tend to very from person to person. I had a ton of side effects when I was on a low dose of lisinopril, so who knows. I don't mind Toprol at all. Brad

Excellent article. I was quite amazed someone committed suicide because of the ticking of their valve. Seems like there must have been some other psychological problems that would allow someone to become suicidal because of a tick in their chest, but who knows. Brad

Airport Security Airport Security About half the time I go through the metal detector at the airport my sternum wires set it off. It's a little bothersome because then I have to undergo a personal examination with that wand thing. Once they pinpoint the offending metal in my chest area, I show...

Dear Stretch, I did not know that the Ross Registry domain had expired. Makes me wonder if the data they were posting was up to date if they can't even keep up their domain name. So perhaps my interpretations were misguided. Here's my point with connective tissue disorders: Of course, no one...

Stretch, I am certainly not going to divulge names or phone numbers of individuals who have messaged me on a private basis about their experieces. In fact, I find the request absurd. "Anecdotes" about the Ross are almost always positive (as you said), perhaps because people with negative...

Were they able to visualize the ascending aorta in past echos? If so, and there was no sign of enlargement I wouldn't be too worried. If there was previous enlargement of the ascending aorta I might be more worried. I am bit surprised they couldn't visualize the ascending aorta. Usually this...

Hi, I honestly don't know if the Ross is more popular in the US than in Europe. Even if it is more popular in the States, I still am certain there are great valve replacement surgeons with Ross experience in Europe (especially England and Italy). I believe that they can perform a...

I don't see any reason for you to be in a rush. 38mm for the aortic root is above average, but certainly not life-threatening. Furthermore, even if an echo isn't "accurate," they are usually "consistent." Since your measurement from one year to the next was "consistent" (only a small change...

Hi Ibasar, I don't feel qualified to say who is an "ideal candidate," although I heard that people with aortic stenosis, as opposed to insufficiency, tend to be better candidates. I believe the underlying "cause" of the aortic stenosis is also important. So your son may very well be a good...

last reply, i promise last reply, i promise As for the Ross falling out of favor... I want to carify what I, and the cardios that told me this, mean. In the late 90s everyone seemed to be a good candidate for the Ross. Now surgeons have become much more conservative when determining candidacy...

Bryan -- you wrote "I think when we discuss something as important as valve selection and OHS, it is paramount that we leave emotion and bias out of the equation when discussing these matters with members that are trying to make these difficult decisions." 1. My intention in posting my story...

some info... some info... I said in my first post that I thought that I was born with a BAV...after re-examining my records and talking to my surgeon, he told me that my valve was in fact tricuspid. After performing the surgery he told my parents that two of the cusps were very badly...

Thanks all Thanks all I really apprieciate the empathy and advice that I have recieved from all of you. It is nice to know that I am not the only one who is going through such terrible uncertainty and worry. I cannot tell you how glad I am to have found such a supportive community. I have been...

I wish you both successful surgeries and uneventful recoveries. Brad

Hi all, I am new to this site and wanted to share my story with you all -- in hopes of educating and being educated. I am a 23 year old male. I was born with aortic stenosis (I believe I had a BAV). I was fine up until the age of 17 when I went in for my bi-annual check-up and my cardiologist...