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  1. L

    Question for US members about legal support for getting home if disabling stroke occurs after TAVar or SAVR

    I know we've gone a bit off topic and this isn't a mental health forum, but the following states have established a Psychiatric Advanced Directive statute: Arizona Hawaii Idaho Illinois Kentucky Louisiana Maine Maryland Michigan Minnesota Montana New Mexico North Carolina Oregon Ohio Oklahoma...
  2. L

    Question for US members about legal support for getting home if disabling stroke occurs after TAVar or SAVR

    You're correct, which is why I began my post with, "Every state is different, but in Texas,"
  3. L

    Question for US members about legal support for getting home if disabling stroke occurs after TAVar or SAVR

    Because you should go ahead and get it while you're getting the others. They're all good until you say they're not. If you don't have it if you ever need it, your family will have to go to court to get guardianship or you will become a ward of the state.
  4. L

    Question for US members about legal support for getting home if disabling stroke occurs after TAVar or SAVR

    Every state is different, but in Texas, there are at least 6 forms that you should have: Durable Power of Attorney (mostly financial stuff) Medical Power of Attorney Medical Directive In hospital DNR Out of hospital DNR And the 6th one that most people don't know about is a Psychiatric Advance...
  5. L

    Question for US members about legal support for getting home if disabling stroke occurs after TAVar or SAVR

    It is unrealistic to think that if you have a stroke and aren't able to take care of your daily needs, either because of physical or mental deficits, they are going to send you home without someone there to take care of you. There aren't enough pieces of paper in the world for a physician or...
  6. L

    38/M - 5.5 weeks post AV/Root Replacment (Surgeon Selection, Recovery & Pericarditis)

    Not very often anymore, maybe once or twice q year, and when I feel it coming on, I take medicine immediately that knocks it out. The first round of colchicine didn't completely put it into remission, but it did slow it down immensely.
  7. L

    Ebay drops all listing for Roche Coaguchek XS PT Strips

    You might want to correct the first link and perhaps the email address. I believe both are missing an e that the second link has.
  8. L

    It’s me again. Praline

    Hello Praline! You might remember me as Lisa in Katy. Good to hear that all is well.
  9. L

    Not doing surgery

    I didn't realize that was an option. Done!
  10. L

    Not doing surgery

    I've always heard that if someone wants to commit suicide, they're going to do it quietly so no one can stop them. If someone says they're going to do it, or want to die, it's a cry for attention. Perhaps this person really needs an outlet. Perhaps the person is being enabled by being allowed...
  11. L

    Is an aneurysm common for people with a bicuspid valve?

    They haven't checked in since shortly after the funeral. Hard to believe it's been almost 11 years. I noticed that he still has the most posts on this site by far. If memory serves me right, it's been about 15 years since he left.
  12. L

    Is an aneurysm common for people with a bicuspid valve?

    His dissection was in 1994 so long before he was here. He had the Bentall procedure then. His valve was damaged, so he had a valve repair. It was replaced in 2001, which is what brought him here. The end of his life started with a GI bleed and ended with total organ failure. I don't know...
  13. L

    Is an aneurysm common for people with a bicuspid valve?

    Those of you who remember Ross may also remember that his dissected at 4.7 cm.
  14. L

    38/M - 5.5 weeks post AV/Root Replacment (Surgeon Selection, Recovery & Pericarditis)

    Do you have autoimmune issues? I've had recurrent pericarditis since my surgery in 1998. It's nothing like it was the first couple of years and I always feel it coming on, so I take colchicine and Aleve immediately, but they say it's an autoimmune issue, just like a few other things that I have.
  15. L

    Is an aneurysm common for people with a bicuspid valve?

    It's very common. Jet of blood hitting same spot on aorta causes it to weaken and an aneurysm to form. Once the valve is replaced, the jet goes away, but the damage to the aorta doesn't so it will continue to weaken over time. They should have done a root repair at the time of surgery so...
  16. L

    Mitral Valve Replacement in Austin, Texas!!! Your comments/experience please!

    Hey Janie! It's been a long time. You'll remember me as Lisa in Katy, but we moved so when I re-joined, I changed my name. Glad to hear things are going well. I really miss the old group. This one is very helpful, but not near as fun!
  17. L

    Anyone had 3 valve replacement surgeries?

    I was 36 when my St. Jude's mitral was implanted and I'm 62 now, so that means it's 26 years old. I've had zero issues with the valve. My brother has a mechanical aortic, not sure which brand, but it's not St. Jude's, that was implanted in 1993 so he's 5 years ahead of me. He is a difficult...
  18. L

    Back in the waiting room...

    Here is my biggest concern: "The surgeon said she has never actually put in a mechanical tricuspid valve." I feel that "It's the way I've always done it and I"m not willing to change now is the problem."
  19. L

    Back in the waiting room...

    As a woman who knew I'd eventually be having valve replacement from the age of 14 on, and who made the decision at 28 and again at 30 to get pregnant before the replacement, even though it could have ended with an early baby and me in the OR, I know that. I just hope the surgeon told her that...
  20. L

    Back in the waiting room...

    I know you're at peace with the decision and probably don't want any more delays for a second opinion, but at 46, tissue vs mechanical is really important. Did you choose the tissue for your first surgery or was it recommended by the surgeon? I really can't believe anyone would recommend...
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