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    Trifecta early failure

    Hooray!! Heal up Fred!
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    New here, on the fast track to having a replacement done

    It’s amazing what they can do, as I am waiting scheduling I am cultivating curiosity and gratitude to keep nerves at bay. Back when I had my repair I vividly remember waking up and thinking “Hot damn! I’m still alive!” And the gratitude really seeped in and lasted a long while. Wishing you a...
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    New here, on the fast track to having a replacement done

    Cheez whiz, that is a rough go you had! I am glad they are expediting your care and hope you'll be able to get a replacement and move on quickly. It's unfortunately that Graves happening at the same time contributed to missing the deterioration of your valve. In my case originally my...
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    Back in the waiting room...

    I think Elcarim is in a bit of a tough position with this being a tricuspid valve. From reading the ACC/AHA guidelines Section 8 (https://www.ahajournals.org/doi/10.1161/CIR.0000000000000923) this kind of damage to tricuspid valves from pacemaker leads is an increasing problem. In addition it...
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    Link to ACC/AHA Guidelines for Valve Choice

    Just thought I would drop this in here as I was perusing it today - Section 11.1.2 has guidance from ACC/AHA for choosing between a mechanical valve and a bio valve as well as Ross autograft. It includes data on longevity of bio valves based on age and valve (aortic and mitral recommendations...
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    Experience with 2nd MD benefit

    Just thought I'd drop in my experience with 2nd MD, which is part of the benefits offered by my husband's company (separate from medical insurance). It's a free benefit wherein you can submit your tests and care plan and they set up a 20 min video visit with an expert in that field to just give...
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    New Member

    Let's say I had moderate stenosis for 21.5 years without symptoms or progression. :) Last 6 months have been increasing symptoms and tests, verified severe in August and headed to surgery most likely in October, pending scheduling. You can't predict what's going to happen in any individual case...
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    New Member

    Chuck handled this so well but I will just add one thing - the progression of valve disease is not linear and it is important to intervene at the right time. So make sure you DO follow your care plan in terms of echos, appointments and any other tests. For many people this would just mean...
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    Back in the waiting room...

    Yay!! Glad the acute issues passed and you are in a good place. You got this!
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    Trifecta early failure

    Best of luck Fred! Hope everything goes smoothly and you get a great result.
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    Two Weeks Ago Today

    Music to my ears as I am headed to surgery real soon! Glad to hear you are recovering well.
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    Back in the waiting room...

    I've felt the emotional turmoil in my run-up to imminent surgery -- I was actually about to start therapy anyway, but I postponed because I don't want to start and then immediately have my care disrupted by heart surgery. But I DO want to "set aside" or really to just improve my emotions. I...
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    Clinical trial

    Definitely rooting for you Gail! Hope the path becomes clear at the right time.
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    Clinical trial

    Yeah, I know your situation is complicated. : ( I wish you had more options. Totally get that you would be hesitant about a trial. The trans-septal puncture part of it at least is not new, and is part of a few different interventional cardiology procedures. As I said I had one 22 years ago...
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    Clinical trial

    So - a clinical trial for a new TMVR valve? Are you not a candidate for one of the existing ones? My original cardiologist who did my mitral repair (now retired from clinical) was involved in this Tendyne trial starting in 2015 and it seems to now be on the market. It seems like SOMEBODY...
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    One year in Iowa, USA

    Congrats! Wishing you many more years of life and health.
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    Surgery is officially recommended

    I am 56 and having mitral valve replacement within a month, pending scheduling. I'm getting a mechanical based on my surgeon's strong recommendation and completely agree with him on this decision. 56 is young by valve standards. The whole calculus changes based on age because a) if you are old...
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    Another one for the stats....

    I mean, valve in valve is a thing, but will leave you with a smaller valve opening which is not ideal. I still don't see how old you are? From reading on here it seems like TAVR (let alone valve in valve) is more often recommended for people who are older and have more contraindications for...
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    Acetaminophen and Warfarin

    It’s interesting, since being put on Eliquis due to afib (vs the 325 mg aspirin I was on before) I actually have fewer problems with bruising. Will be on warfarin soon post valve replacement so will see how that goes.
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    Another one for the stats....

    Welcome, I hope everything goes well with your recovery! I had a valve repair via balloon 22 years ago and the cardiologist DID tell my husband that he felt it didn’t go well, so in that case at least he didn’t blow sunshine. But, can’t say it wasn’t pretty durable. Headed for OHS this month as...
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