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Well my surgery got moved back to monday instead of wednesday(they had an emergency) And i ended my period on saturday so THANKFULLY i did NOT have to deal with it in the hospital!!! I was very happy about that, even though i was only there for 4 days it was still nice not to have to worry about...

Hello everyone!! I am back!!! My surgeon was able to repair my aortic valve. Which is good, because they did not have a cadaver valve available for me and all other tissue valves are to small for my heart. I would have had to get a mechanical valve which i DONT want, at least not yet! The repair...

Hey, So i am going in for surgery on wednesday. Problem is i have my period. I know they will still do surgery, but i was wondering has anyone been in this situation before? Im assuming i can use a tampon as soon as i am able to get up and use the bathroom but what about during surgery and...

Hi everyone! My surgery got pushed back till wednesday(instead of today) For those who want to follow my progress here is my caringbridge: http://www.caringbridge.org/visit/carlysmith I have asked my mom to keep it updated during and after my surgery!! My surgery is scheduled for wed. at noon

So my surgery is now only a week away!!! Starting to get nervous! i have pre-op thursday and then monday the 9th is the big day. It seems surreal I am getting an aortic valve repair, hopefully, though it may need to be replaced. Any tips or suggestions? Prayers and good thoughts are much...

I was told i need antibiotics, but my cardiologist has been having me do that my whole life anyways so no big deal there. Other then that no restrictions

Hello! I met with my surgeon june 7th and my surgery is scheduled for july 9th so about a month in between. My surgeon said he did not feel comfortable waiting even 6months. I have known about my heart since birth and have seen a cardiologist once a year and this will be my 1st surgery at 19...

Numbers arent always right on the echo!!! I have had severe symptoms for awhile, SOB, chest pain, dizziness, fatigue ect. The whole deal. My echo's showed moderate stenosis, mild regurgitation, mild enlargement of my aorta and my BAV. So my cardiologist kept telling me i was fine!! Switched...

"Cort is away taking care of other things but he is doing well. I am sure he will be back when he is ready.." that is the latest reply on the page, apparently he doesnt have texting on his phone so thats why he didnt reply to those

Ahhhh ok, see thats why i dont understand, they were already in my chest fixing my valve, not sure why they arent doing my aorta also!!! I just emailed my surgeon with my questions. If you are interested you can add me as a friend on facebook, i would love to talk to someone my age who is...

Alot of people in one of the fb groups im apart of are looking for him too. They say they have called and texted him and got no answer

Thanks everyone!! at this point, i do not think my surgeon is doing any work on my aorta(though i am not 100% sure why they arent doing it well already in there??). I did NOT want the mechanical valve because of the blood thinner issues, to me its not worth the risk for my future children. I...

Anyone else getting an aortic valve repair??? I am 19 years old(i have Aortic stenosis, aortic regurgitation, a bicuspid aortic valve and enlargement of my aorta(both ascending and root) My surgeon is going to attempt a repair of my valve, if that doesnt work they will replace it(with either a...

Just got the date! My pre-op will be July 5th, Surgery will be July 9th!

So i just got back from my surgical consult! Apparently my valve is pretty bad, they said not to wait even 6 months to do it, they want to do it this summer, probably early summer. I called his nurse to schedule a preop date and a surgery date. I am just waiting for the call back. He is going...

I did get my results back! Thankfully my coronary arteries look good, so no bypass for me!! I have a surgical consult on the 7th to talk about possible valve options and to pick one. Hopefully i get to schedule my surgery that day, or at least im going to push for it! im sick of this waiting game :)

thanks everyone!! I am having a cardiac CT scan tomorrow morning at 10am to look at my coronary arteries!! After i get those results back i will be scheduling my surgery i believe

I am not sure exactly what they are looking for. All they said is that something about my EKG suggested coronary problems. My pediatric cardiologist is going to talk to an adult cardiologist and then they will do a PET scan of me before and after exercise to look at my coronary arteries. So an...

Im 19 years old and i have a bicuspid aortic valve, aortic stenosis, aortic regurgitation and an enlarged aorta. I was born with the BAV and AS. I have had issues with shortness of breath, chest pain, palpitations, fatigue, and dizziness for the past 7 or 8 years. All of my echos have showed...