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HarryG

Well-known member
Joined
May 20, 2004
Messages
102
Location
Townsend, MA
I have just looked at some of my records which I requested since I am looking at a 2nd opinion. My symptoms as mentioned previously are of being extremely tired, shortness of breath especially under slight excersion, some chest pain, dizziness and nausea. My cardiac diagnosis are Bicuspid Aortic Valve and aortic ascending aneurysm of estimated between 4.6 and 4.9cm and the aortic root 3.4cm. The bicuspid valve and the aneurysm worry me and I feel I need to go for surgery. My family history my father passed away at the young age of 46 (heart) his brother at 36 (heart), I am 53. Does anyone have a clue to where I go from here, I do have another appointement with an aortic surgeon next Thusday the 24th. Somebody help me PLEASE.....!
 
Harry

Harry

Wish I had some answers for you..other than try to take it easy until next Thursday when you see another surgeon...Do you have a PCP who could give you something to relax you?....You sound like you are really uptight..and I don't bame you..with your family history.......Hope all turns out well...if surgery..then go with it...We will be here for you to deal with that.....Don't be shy to post anytime..That's why we are here....Bonnie
 
Hang in there till Thursday. No one can help you but a surgeon. If the aneurysm is at 4.9, he should have no problem recommending surgery asap.
 
You are on the right track - it does appear that surgery is in your future. Like the others have said, you have an appointment in a week. If you feel it pressing enough to get in sooner, you'll have to drive it with his/her scheduling staff. Did your first surgeon say no surgery?
 
You're close enough to Brigham and Womens or Mass General to talk to someone there, if you're not already doing so. Both are well-respected facilities, with excellent surgeons.

My unrequested two cents' worth: Your tempo is that you feel you are in an increasingly desperate race against time. You see the handwriting, and you are shocked that the doctors can't read it. Remember that your numbers are moving up, but are not at panic level, and there is some time yet.

Stress is your enemy right now. It will make your symptoms seem worse than they are, and you don't need that distraction right now.

You need to find your way to some sort of peace with yourself for right now, while the very appropriate plans you have made for a second opinion go forward. Stress feeds into itself, and fear feeds stress. Everyone here has felt that fear of realization, those leaps to panic, so we know what it's like. Distract yourself until things are moving again. All the players sit on the bench between quarters.

When you speak to this doctor, I would bring up your family history, and as much information about the causes as you may have. While your numbers are only borderline for surgery (could be 4.9, but could also be 4.6), the family history might add weight to the decision toward surgery. However, you should not be surprised if the initial recommendation is for still more tests.

If this surgeon also says it's too soon, ask his reasons. They might be valid, and you might surprise yourself and agree. Also, if you push too hard, the surgeon might back off and try to deal with your urgency, rather than with your symptoms.

Enjoy what you have now, while you look forward to what you will have.

Best wishes,
 
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