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Ross

Well-known member
Joined
Dec 15, 2001
Messages
25,981
Location
On The Hot Seat
Friday, July 19, 2002 at 02:15 PM (CDT)

This is Ricki and Ruth. Jymme is resting after keeping the nursing staff entertained throughout the night. She was moved out of ICU at 11:30 am into her own little private room. As soon as she regained consciouness and they removed her breathing tube, she struggled to communicate and now she is yapping away. She ate a delicious lunch where the highlight was red jello. She doesn't seem to be in very much pain. She is doing exceptionally well as attested to by all the wonderful staff. More later.
 
Great news

Great news

Sounds like you are doing great Jymme, keep walking. Welcome to the Synergraft club.
Thanks for getting us the update Ross!
 
WONDERFUL news about Jymme. Thanks for letting us know Ross.
Congratulations to her and her family. We'll be waiting to hear the firsthand report.
 
Great news! I hope Jymme is comfortable and has a totally uneventful recovery! Thanks for posting, Ross!

--John
 
Yea Jymmie.....you go girl...can't wait to see your first post. Many congratulations, Evelyn and Tyce
 
Good to hear

Good to hear

from JJ..thanks Ross. Maybe her friends can print off all the e-mails she will get in the next few days and take them to her..Bonnie
 
To JJ - Good to hear everthing is going well. Hope everything is as uneventful as the posting indicates. Hope to hear you in person soon.
 
Sunday, July 21, 2002 at 09:00 AM (CDT)

I just talked to Jymme and she wants you to know that she is doing great! The doctors have commented that her recovery is one of the quickest they've seen.

Yesterday they took the last of the tubes out so she is now free to roam around on her own. She took a few walks yesterday each farther than the last. By the end of the day she did not need any assistance while walking. Eileen was down for the day yesterday and Heron stopped in for a while, Jymme enjoyed the visits. She says she has also enjoyed talking with people on the phone so feel free to give her a call (507)287-4168 rm 5-640.

This morning she had herself up, groomed, and in her chair by 7:00. She expects to be taking about four or five walks today. Maybe one of those will be to Mayo's library to make a post of her own.

Ruth
 
from Jymme's website

from Jymme's website

Monday, July 22, 2002 at 05:19 PM (CDT)

Hello all. This is Jill Meyer writing today. Jymme really, really, really wanted to get to a PC today to write here herself. But "they" wanted her to have an eckocardiogram (sp?) first. That didn't get going until after 2PM and took longer than she expected. She will definitely get to this tomorrow. The great news is that she is doing so well that she'll be out of the hospital by Tuesday afternoon or Wed. morning. A quote from one of the doctors is "you're way ahead of the curve". I was visiting today and will attest to that! Except for the hospital gown and a small incision mark peeking out by her sternum, she doesn't look like someone who had major surgery less than a week ago. In fact one of the nurses asked her if she had even had surgery. She told him that if she hadn't, someone was playing a very cruel practical joke on her.

Spa Seward (our house) happily anticipates her arrival. I asked about groceries that she'd like. All she could come up with was fruits and vegetables--they just haven't been very good at the hospital--go figure. Since she's doing so well and has a good appetite, she'll probably be cooking elaborate meals before too long. We might actually get the better end of this deal.
 
Hi JJ

Hi JJ

This is Tuesday a.m. ..Hope you get home today..Remember to get up and walk, walk, walk...Drink lots of cold juices..You will not want much in the way of food. Taste buds won't be back for awhile..:p Let us here from you soon. We are on pins and needles worring about Ross right now. Hope he does as well as you:D Bonnie
 
Leave it to Ross, LOL!

Leave it to Ross, LOL!

I tried to post this a few hours ago and lost the whole thing when the connection went, so had to just take a break. Now, I'll try again!

Imagine my surprise when I came into this forum thinking, well, lah te dah, I get to post my first post-surgery update only to find that Ross had already been on top of it for me since the day after my surgery. This brought quite a smile to my face and very warm feelings in my heart for our pal, Ross, who has done so much for many of us in a short time here. How typical that he just took it upon himself to post from the updates my friends managed on my website. I believe Ross's good karma will come back and help him heal steadily and thoroughly through this trying time.

I won't go into huge details here (more available on the website at www.caringbridge.com/mn/jymme). Somehow it doesn't feel quite right to "brag" about how "easy" this process has been for me when Ross is having the hard fight right now. But suffice it to say I'm doing extremely well. One of my surgeons said it was the fastest recovery he had ever seen from an Aortic Root Replacement including his pediatric cases. (No, I don't feel recovered, of course.) Another of the surgeons told me on Monday that I was so far ahead of the curve that I could just go home because there was nothing they were doing for me at the hospital right now. Yikes. I stayed another night and went home Tuesday morning. Basically my heart is functioning completely normally and the L. ventricle has already returned to normal size. I have my normal (healthy) low blood pressure and an increased pulse that is gradually calming down. I had no loss of appetite and am being having pretty normally within the weight restrictions of course, I never would have believed this possible. I?m only on baby aspirin and an occasional Tylenol.

For those who want all the gory details I?ll post them later but nothing could have gone better for me in this process than it did. (If we ignore the insurance debacle.)

Thanks to all of you who offered me so much in this journey. This sight has been invaluable and I?m sure will continue to be for me. Many times, including with that ventilator tube down my throat, I thought of what you all had shared with me of your experiences and thought, this is just like what they said. I can get through this. So thank you so much from the bottom of my newly mended heart!

Specifics thanks must go to my co-horts in the Synergraft Club.

Brooks, I told you that you were going to be my mentor in this journey with your smooth sailing through your own surgery and recovery. I thought of you often in the hospital and remembered your admonitions to walk and use the spirometer. I was never able to go to the courtyard because it was so hot and humid over the weekend they didn?t want us going out and then I left! I did imagine following you and Jennie?s footsteps around the same halls as I did my walks from sunroom to atrium and back again. Thanks for all your support and inspiration.

Jennie, you gave me so much helpful information in this process. I may not have found my way to the Synergraft without you. The card you sent me at the hospital was just a real treat to get and again thinking of you there not long before me was comforting and inspiring. Thanks for your continued support via email, my website and here.

John, I will call you sometime soon to say a proper hello. Your supportive voicemail the day before surgery was very heart warming and much appreciated. Your professional and personal help with the insurance debacle was above and beyond anything I?d have imagined. I?ve enjoyed and appreciated your emails and the web postings. Thanks and congratulations on being back on that motorcycle!!

I?m glad to be a full fledged club member now!
 
JJ-

It's wonderful to hear your upbeat post. You've done so well! It's just great. I hope there are no rough spots and all your skies are sunny.
 
Congratulations Jymme!

Congratulations Jymme!

It's good to be home, isn't it. How are you sleeping, the only problem I had post surgery was night sweats messing with my sleep patterns. I felt the same way about posting after surgery, I really empathize with our forum members who have difficulties after surgery and I was doing so well that I didn't want anyone to feel worse. Be as active as you want to be, your body will tell you when to slow down. In the week or two after surgery I was told about 50 times a day to sit down and take it easy, but I felt too good and had too much energy. It's amazing how much better you feel when your heart is actually pumping all the blood back out instead of just a little bit.
My email is [email protected] if you want to compare notes further.
Welcome back!
 
Hi Jymme!

I am so glad to hear that everything went so fantastically, and that you breezed through there with no problems. Your website updates were great, after the first day or two I realized there was nothing to worry about with you! I hope you have a really good recovery. It sounds like you have a great bunch of friends that are taking care of you from all sides, so hopefully you will have all the physical and emotional support you need to continue sailing through with minimal bumps. And we'll be here too, of course! So, really, no transfusion or anything? Do they have you on iron pills or anything? Just curious!

I was like you in that I was SO happy to be at Mayo Clinic. I didn't want a sedative beforehand, I wanted to take a good look around the OR (they didn't give me much time for that, though!). It was a very long, difficult journey for me to get there, a maze of doctors, I felt like a pinball being bounced from one place to another, different opinions about valves, different opinions about timing, different opinions about meds, you name it. Then, after a year of this, unbelievable, BANG!, I suddenly got shot out of the mess to Mayo Clinic (after my own insurance scuffle). Never in all my dreams would I have come up with that. Then, another seven months of "wait and see, things are complex" until I got to meet with the surgeon in December. It was the week before Christmas and the day after my birthday (such as it was), and he said SURGERY. NOW. But - unbelievable! - he offered me (1) a repair if possible or (2) the CryoValve, and while it was a very upsetting day, it was also one of the happiest of my life. What I am trying to say here is that for me, to have a part, along with everyone else here on this board, in helping someone like you to bypass some of your mess by sharing what I've learned: this helps me to look back on this dark time in my own life and tack something positive onto it, get a little more "good" out of it, to say "it was worth it," to be able to help someone else.

And I am done waxing philosophical for the day.

Welcome back!!
-Jennie

p.s. I never got to the courtyard either. It was snowing, raining, high winds when I was there. I didn't even know about it until the day I was discharged!
 
1 week anniversary

1 week anniversary

Thanks for all the supportive words. I can't believe at this time one week ago I was in the middle of surgery and now I'm entering my 3rd day at my home away from home. It boggles my mind.

I got out for a walk around the block earlier this morning. The last few days have been pleasantly cool but unfortunately also very rainy. I had an important lesson yesterday. I didn't eat enough during the early/mid part of the day and just spiraled down quickly and thoroughly. Part of the problem was that I had gotten here so much earlier than expected, people weren't signed up on my "calendar" and the food wasn't really organized for the first couple of days. So I probably had the most intermittent help when I needed it the most. Oh well, no harm done and today I feel great. I got two excellent meals and lots of groceries in the cupboards yesterday afternoon and evening and it perked me right up. My appetite is better than pre-surgery when I lost about 20 pounds.

I'm staying in my friends lower duplex and it has steep stairs to their floor. It's great exercise during the rainstorms. I run up and down - I'm just kidding - but a slow climb back and forth seems to be a good workout.

I slept downstairs alone last night (with easy access to the upstairs friends) and slept the best so far. I have some special reclining cushions from my massage practice that I have on a futon and they are very good. I can sleep 4 hours at a time on them. I do have nightsweats but not nearly as bad as when I had to do chemo therapy, so I'm handling it ok. I actually laid on the flat part of the futon for awhile this morning and my middle spine did a major adjustment ("crack") which felt great.

My biggest complaint is muscle soreness around my back and thorax. I guess I need to just round up some of my bodyworker friends to get to work on me. Also need to do more upper body stretches and exercises. I have some in my Mayo book. Does anyone out there have any they've found helpful?

Time to go eat some more again...
 
JJ - Its great to hear you are doing so well. I guess your persistence with the insurance company really paid off. Keep us updated with your progress. There is a lot of good news with the valve surgery that people that have not been through it can't appreciate. I am so happy that yours went well and that you can explain to others that might cross your path.
 
Hi JJ,
Congratulations on your successful surgery and all the best for a speedy and uneventful recovery. The worst is behind you now. And look foward to every day feeling better than the last. About the stretches and exercises, Did you speak with your doctor about cardiac-rehab or physical therapy? All the best, Take Care!
 
Congratulations Jymme on your super recovery. Wishing you the best to continue that way.

I also had a remarkable and quick recovery very similar to yours. In fact, I did exceptionally well for 8 months, but then hit a roller coaster for a while. That's unusual, because most of the problems usually occur fairly early in the recovery process.

In any case, I'm sure my special circumstances, receiving a pulmonary SynerGraft, was responsible for that and you don't have to worry about anything of the sort.

As I welcome you to the SynerGraft club, I'm also pleased to announce that I should be able to remain a member of the club for a good while to come. I saw my cardiologist today and he could barely even hear my murmur anymore! My recent TEE showed mild leakage through only one cusp and my heart size returned to the normal range. He said that I should be able to keep this valve for a long time to come and that he would not need to see me or have me get an echo again for 6 months.

Wow, I feel like I've just come through my SECOND recovery!:D I guess I won't have to be the black sheep in the SynerGraft club anymore.

Again, Jymme, welcome to the club and this side of the mountain and, if you do encounter any little bumps on the road, take full advantage of this great bunch here to help you through it, as they've already done for me and so many others.

God bless.
 
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