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MarciaB

Hi People!

It looks like I'm a new member but I was in a couple of years ago, got bumped, and have been ghosting around again for a while. I have mitral stenosis from silent rheumatic fever. I had a balloon valvuplasty 12 years ago which probably saved me a surgery.

I had been talking to my cardio about doing surgery this winter sometime. I was feeling really tired even though my echo hadn't changed much. I made it through the Grand Canyon (dinner party for 16 people - 18 days, see if that makes you tired) numerous horse shows, pond building, and working full time for the last two years managing my symptoms with Cozaar and Norvasc.

When I found out that IBM was closing down my husband's division here, I called my doc and told him I wanted to go ahead while we still have decent insurance. Before we got to the angiogram, it was discovered that I am anemic. So on to a colonoscopy (fun!), an upper GI (more fun!), finding and (hopefully) zapping H. Pylori bacteria in my stomach (which may or may not be causing the anemia, finally making it to the angiogram.

We decided to keep me awake this time (my 5th angiogram) so they could exercise me if they needed to. Everything was almost the same as angiogram #4 two years ago during the first part. I told my doc that he was going to have some 'splainin' to do if there was no difference. You really get some good "face time" with your doctor during a cath, probably why they usually knock you out. So they whipped out the weights and got me moving. Pressures immediately when sky high. They were all standing there going, "wow".

So that explains why I always did well on the tests but felt like crap. I seems my valve gets really "sloppy" when my heart rate goes up, but is pretty good when I am still and quiet. Also explains a lifelong avoidance of anything that makes me sweat. Of course there is the premise and if you can't hold a beer while doing it, it's not worth doing.

I meet with the surgeon my doctor recomended (actually he said "Dr. Kessler is your surgeon") on Wednesday and the Hematologist on Monday.

It doesn't feel scary yet, but I'm sure that will kick in as soon as I have a date.

I'd love to have any advice for questions to ask, or anything at all really. I've learned a lot from reading entries on the site. It's a wonderful thing.
 
Hey ya Lady where ya been? I think somethings wrong with Colorado. We have what seems to be, a good percentage of heart patients from there. What is that state doing to all of you?

As far as questions, my brain is on vacation this weekend, so I'll leave that for others to answer.

Didn't you get the email a little while back about keeping your account alive? Hank tried to warn everyone and those that didn't respond got deleted. Oh well, your back. That's all that matters. :)
 
Hey MarciaB
Welcome Back, I am one of the other people from Colorado. Glad you are joining in. As far as asking questions, there is a very good thread in the PreSurgery and look for questions to ask surgeon. Betty (bvdr) has some very good questions to ask.
I hope everything turns out OK for you. Again Welcome Back.
Take Care

Dave
_________________________
Surgery: 4/21/03
Aortic Aneurysm Repair
AVR, with a St. Jude Mechanical
 
'Bout Time

'Bout Time

Marcia,

Bout time you were posting :-D

You know what I've said, now get some other advice from our wonderful members.
 
Thanks guys,

Ross, I don't think Colorado has anything to do with it. (Except that so many cool people live here). There is something about being tall and thin and female with mitral valve problems, though. Also, the name "Marcia or Marsha" seems to be an indicator. Actually, someone told me about "Chick Flick Syndrome" that studied that very thing - OK, not the Marcia thing, but the tall, thin, female thing.

I wonder when you mitral guys are going to wise up and have a "mitral only" reunion?

(Thanks Kristy for all your help)
 
Must be a female name thing with M's in general. We can't forget my evil sis Melissa!

Wish I could put a finger on the problem there. You folks have the heart patients, we have the cancer patients.
 
Hi Marcia-

Welcome back to the site. Sorry to hear that you're having problems, but that's the name of the game here.

I want to wish you all the best, and please keep us well informed about how things progress for you.
 
Hey, Marcia

Hey, Marcia

Welcome to the site.

Sounds like you're well in control. All the Colorado folks will gather around and take you out to eat, etc. Good people out there. And you're right - an awful lot of them considering the relatively small population. Perhaps they're just smarter and better at finding really really good websites, huh?

Glad you finally got diagnosed. Know what you mean about the insurance - it's a bear. The thought of losing it kinda puts other considerations on the back burner and gets ya moving to have the surgery, for sure.
 
Welcome back. I'm new since you have been here before. I live just outside of Albuquerque which has similar elevation to yours. The altitude question is an interesting one. My old doctor in Tucson said me moving to higher altitude definately figured into the equation for a valve replacement, perhaps sooner than expected. Who knows.

Going ahead while still with insurance makes sense, just remember your followups afterwards. They are important too. It's great you made it through the Grand Canyon though....did you go from the North rim or the South? Either way, it's quite a trek! Stay in touch and the best of wishes.

Heather
 
welcome back!

welcome back!

hi marcia!
sorry to hear that you are going through this, but i'm glad that you've found your way back here.
please keep us posted on all your test results and new updates.
wishing you all the best, sylvia
 
Hey Heather, you've got to be kidding, HIKE the Grand Canyon! No, no, no, we RAFTED the Grand Canyon, You know, the kind of thing you can do and keep the beer intact. It was a private trip (12 years an the waiting list) but since it was our trip we also got to plan the whole thing, buy and store the food, maintain the food on the trip, boss people around on the trip, still do a majority of the food related work. I did manage a couple of slow hikes, though, Deer Creek was one. It was very hot in early June , but nothing like July, I hear.

I just found out my appointment with the surgeon has been moved to today. AHHH!
 
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