Update, Decision, and Ross Procedure

Valve Replacement Forums

Help Support Valve Replacement Forums:

This site may earn a commission from merchant affiliate links, including eBay, Amazon, and others.
T

TXpoison

It?s been awhile since I have posted and I wanted to let everyone know what I have found out and have decided. I have talked to three surgeons in Dallas, the last being Dr. William Ryan at Presbyterian Hospital. My wife and I met with him two weeks ago. I was very impressed with all three and would feel comfortable with any of them performing surgery on me. The first two surgeons I spoke with as well as my cardiologist all told me that they thought the mechanical valve was the way for me to go. I had pretty much concluded that mechanical was the way to go and entered my visit with Dr. Ryan expecting to just talk to him about replacement surgery with a mechanical valve. I knew he was well known for the Ross Procedure but didn't think it was for me. Of course he spoke about the Ross Procedure but he didn't push it. He took a lot of time to explain the pros and cons of all of the options. He did say that he thought I would be a good candidate for the Ross. He also told me he would do a modified Maze Procedure to eliminate the atrial flutter I currently have and prevent possible atrial fibrillation in the future. We talked about closing off the Left Atrial Appendage as one of the other surgeons had mentioned this, but he said since he would be doing the Maze there was no need or benefit of closing off the LAA. I left his office thinking that maybe I should consider the Ross. My decision making had just gotten more complicated.

Dr. Ryan has performed about 175 Ross Procedures and has had very few problems with them. One thing that gave me some confidence is that he told me that through experience, he is much more selective about who he performs it on. Once he looks at the heart and surrounding tissue, if there is any indication of tissue disorder or anything else that concerns, he abandons the idea of the Ross and goes to the backup plan.

After a couple of weeks of praying and contemplating I have decided to go with Dr. Ryan and let him do the Ross Procedure if possible with a porcine stentless valve as the backup. I believe this is the best option for me at this time. The clincher came last Friday night. After my meeting with Dr. Ryan I had a few questions I thought of that I wanted to ask him. I had talked with his assistant earlier in the week and she said she would have him call me. Friday was an off day for me and I hadn?t heard from him so I called his office back. His assistant again told me she would have him call me back. I had to run one of kids somewhere late in the afternoon, and when I got home I had a message from Dr. Ryan and he said he would try back later. At 8:30 Friday night he called and we talked for over half an hour. He fully answered all of questions all of my questions without ever sounding like he was in a hurry and needed to go. In fact he did most of the talking; telling me repeatedly that he wanted me to have as much information as possible so that I could make the right choice for me. Needless to say I was very impressed that he called and talked as much as he did.

I go in Tuesday the 25th for a heart cath to check for arterial blockage. I was told to pack an overnight bag in case they found minor blockage and decided to put a stent or stents in. I really hope that they don?t find anything. I am looking at scheduling the surgery around mid November.

I know several members have had the Ross Procedure and have had Dr. Ryan do their valve surgery so any comments would be appreciated as always.

Sorry this is so long. I have been acquiring a lot of information lately.

Ken
 
Ken,

I have no experience with the Ross but just wanted to say that whatever your decision is - even it you change your mind - it's the right one for you at this time in your life. I am impressed that the Dr. called you well 'after hours' and spent so much time talking with you. Sounds like you've made a good choice. Best of luck.

Cris
 
Ken,
Just wanted to chime in here to let you know I had the Ross Procedure done last year by Dr. Ryan at Dallas Presby. I live in the northern part of Fort Worth and I was 42 at the time of the operation. My surgery went very well and I had a fast, uneventful recovery. Like you, I had mulled over the VR options and chose the Ross after speaking with Dr. Ryan. My back-up was also the porcine. Anyway, just went to see my cardio last week and my post op results were very good. Pre-op I had severe aortic insufficency/ stenosis and I believe the Ross is a good choice for those that meet the selection criteria. In any case good luck with your final VR choice and PM me if you have any questions on the Ross or the post op recovery.
Doug
 
hi ken (and doug),
my husband joey had the rp done in nyc by dr. stelzer about 4 years ago.
it makes a huge difference if you trust and like your surgeon and feel that he is not pushing nor rushing you into anything (which seems to be the case with dr. ryan and was the same for us with dr. stelzer).

dr. stelzer, at the time, told joey that he was a perfect candidate_ no blockages and only 49 yrs old _ he did mostly 18 thru about 54's).joey's bav was severely stenotic and he also had insufficiency. got to the point where he became severely sob (he's a runner) even going upstairs to our bedroom.

it's great that you have a backup plan/valve, just incase.

must feel great to have these decisions behind you, right?
now it's just a matter of time. try and keep busy and you should be fine.

please let us know how you're doing.
be well,
sylvia
 
I too had the Ross three months ago.I went into the Surgeon's office to discuss mechanical valve replacement ( I never wanted to do this again!!!!)and was told of the Ross Procedure. Dr. David Bull from the U of U said I was a perfect candidate, spoke with me at length, He ha spreformed hundreds of these.He answered all my questions and would not let me commit until I had thought it over for a few weeks. After much thought,research and PRAYER, I knew this was right for me. It went off without a hitch and I feel GREAT!!!! Dr. Bull gave me the name and phone number of another patient in my area that he had preformed a Ross on two months prior to mine. We talked alot and it was very comforting before surgery and especially after so Please feel free to contact me if you have any questions pre-op or post. My thoughts are with you at this most difficult time.
 
Ken,

Didn't have Dr. Ryan, but I had an RP exactly 2 years ago today. I'll be 42 in December and I'm doing everything I was doing before surgery. Still running with the local voulnteer fire department and also on the brigade with the day job. I'm also available through PM if you have any questions on the procedure or recovery.

Good luck if I don't hear from you.

Paul
 
Ken,
It is always stressed by everyone on this forum that you must make your own decision, based on what you think is best for your own situation. Your message carries the tone of someone who has done just that! Now you just have to wait, but at least you have confidence you are doing the right thing.

I don't know anything about Dr. Ryan, but Dr. Stelzer did the same thing with me. I was driving home from work when he called. I had to pull over. We talked for at least 30 minutes and I came away confident I had made the right decision.

I had a Ross one year and 9 days ago, and I'm feeling great. I thank God every day for Dr. Stelzer and the gift I've been given. Best of luck to you!

David
 
That's right Marsha. Good to hear from you. I had it done two years ago in November. Hard to believe it's been two years. Dr. Ryan is a talented man and I would say if you're near Dallas and want a Ross he's the man to do it. I feel great and will turn 42 on Nov. 1st. I always celebrate for about a week out in Big Bend at the Terlingua chili championship cookoff.

Regards,

Jim
 
Dr. Ryan

Dr. Ryan

Dr. Ryan is all you said. I was scheduled for a Ross but my pulmonary was straited (sp) according to Dr. Ryan. He replaced my aortic with a Medtronic porcine which was the backup plan. This was October 22, 2004. Last Sarurday was my one year birthday and I celebrated by refereeing 3 youth football games making a total of 8 games for the week.
Dr. Ryan makes you feel as if you are the only patient he has in the world and he WILL take the time to make sure you understand. I was 56 when I had the operation, but he said I was in great shape and was a good candidate for the Ross (must be 10 years of soccer refereeing).
I feel great and the only pain I had was when Dr. Ryan's partner put three stiches in after removing the drain tube (XXXXX). Dr. Ryan is wonderful and the nurses at Presby will take super care of you. Make sure the nurses tell you where the ice cream is located--great for late night snacks.

Best Wishes and God Bless,

Bobby
 
No blockage

No blockage

I had the heart cath yesterday and there wasn't any sign of blockages, so no by-pass surgery. What a relief!!

I also have my surgery date - November 14 with Dr Ryan in Dallas. Fortunately there are some distractions between now and then: Church and School Fall Festivals; Halloween; and a business trip. I hope I stay well until then. I really would hate to have to postpone now.

Thanks for all of the information and responses.

Ken
 
Glad you have a date and that the cath came out clean- that's always a great feeling. Wishing you the best!
 
I had my Ross procedure done a little over 2 years ago by Dr. Lagerstrom in New Mexico. I too was not considering it until meeting with my surgeon. We talked a few times for extended periods of time over the phone before the surgery and he was always there to answer my questions. I think so much of the decision depends on the surgeon, comfort level, etc. Be sure to have a backup plan though, since once they get in they can't always make things work. I was 46 at the time of my RP and so far all is well.

Congrats on making your decision and best of luck with the surgery!

Heather
 
Welcome Back Ken

Welcome Back Ken

Ken-

I wonder when you will read this. I am also 42, with a congenital bicuspid AV murmur discovered at 3 months. It seems that the time for my AVR is drawing near.

This is my first post on the board. I saw this site for the first time today, 11/14, the day of your surgery. You are in my prayers tonight. I look forward to seeing your next post here detailing how wonderfully your surgery went.

Be well.
 
Update, decision and ross procedure

Update, decision and ross procedure

Would someone please explain to me what the ross and maze procedures are?
I am the mom of a mitral valve regurg. son pre-op but am anxious to learn about everything I can.
Susan innercalm
 
Good Doctors are Hard to Come By

Good Doctors are Hard to Come By

Ken, Sounds like you've found a really excellent surgeon, and you came through the cath with flying colors! The catheterization was worse than the OHS for me. I didn't have any complications, just tremendous discomfort during the procedure. Very glad you seem to be on such a good course! Hope all is well! Brian
 
Innercalm this may explain the Ross and Maze

Innercalm this may explain the Ross and Maze

Susan innercalm a Ross procedure is a specialised form of aortic valve replacement. The patients own pulmonary valve is transplanted in to the aortic position and a donor pulmonary valve is used to replace the patient pulmonary valve. Here is a link that explains it. http://ps4ross.com/index.shtml I have also included this link that explains the Maze Procedure. http://www.sts.org/doc/4511.
 

Latest posts

Back
Top