There has to be a better way

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bvdr

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Mar 13, 2003
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Pinehurst, NC
Some days I really feel like I am out of warranty. Short version. I've been sick for days with what I think is just a flare-up of colitis with pain in the same area that was damaged by a clot a couple of years ago. As much as possible I like to stay away from the health care system until I have done what I know to do first. The last couple of months I have reason to believe I've had an increase of brief periods of AF. Yesterday AM I was more aware of it and not sure if I was getting dehydrated or possibly my K+ (potassium) level had dropped which would surely put me into atrial fib. I finally gave in and went to my PCP. My PCP has an urgent care that runs out of his office and if you don't have an appointment you go to urgent care and if needed he comes and sees you on that side of the building. What I was after was finding out what my electrolytes were and WBC to know whether I needed to start antibiotics.

Well, I went and signed in and within a few minutes went into a more sustained rapid AF. I still waited my turn and kept in mind that, unless I was really symptomatic, the agreed upon time frame before having to call my cardiologist was 4 hours. A great deal of that was eaten up while I sat there really second guessing my decision to come in the first place. When I finally got in I told the nurse of what I really was after and she took my vitals. 120/100 (I don't think so!) pulse 72(absolutely wrong!). I told her so and she brushed off my concerns and suggestion that she take an apical pulse. I waited for the PA and nicely let him know that his nurse recorded totally erroneous information. He listened to my heart and got a stat EKG. Atrial fib with rate over 140. My potassium came back at the very high end normal and the CBC wasn't run for some reason. He kept bringing up that my gallbladder was probably causing the pain and I strongly disagreed with him and said wrong place, wrong symptoms, wrong history. Still he said it needed to be ruled out but it would have to be though ER or wait until things were open again on Monday. I had arrived there before noon and by now my 4 hours had long since expired. My PCP had left for the day before I was seen. He asked me what my choice was and I told him I was going to go to the ER and hoped to get back into sinus rhythm. I got copies of all my stuff and drove to the ER. I was still in rapid atrial fib but the rate was averaging a little higher...150-160 and I was starting to feel a little short of breath. I am not an easy IV stick. Several nurses tried multiple times without success(although they were able to draw more blood for labs). While they were waiting for someone else to be available to try I converted back to sinus rhythm on my own. I was so ready to go home and be back in my own bed. ER doc, (nice guy actually) said we may as well check the GB (gallbladder) with US (ultrasound) while I was there. I ended up with an US of everything in my abdomen above my waist and a complete work-up for an MI (Myocardial infarction), liver and pancreatic studies. All came back normal except WBC but even that wasn't really very high. No antibiotics prescribed. Of course my cardiologist was consulted and I have to see him in a few days but need a doppler study first. My flecainide dose is again at the maximum limit and basically still feel like c**p ....but poorer. Today I'm trying to decide how I could have handled it better. I'm glad I didn't opt to just take another potassium tablet since it can be every bit as dangerous to have a high level as a low one. ER doc thought WBC (white blood count) was elevated from the sustained rapid atrial fib. I doubt that also.
There just seems like there has to be a better way to do this. I'm considering changing my PCP because I really am starting to have a distaste for the atmosphere in his office. What do you all do when something comes up and you really want to see your doctor? I'm still wondering if I should be on an antibiotic....

Actually this IS the short version. It was one of those days that leaves one just shaking one's head in disbelief.
 
Betty, I'm so very sorry you feel so yucky. Unfortunately, too many of us know first hand the frustrations of medical practices that you experienced yesterday. Compared to your experience, mine is trivial. But I had some frustrating conversations with my cardio's tech yesterday about dosing and it gets so frustrating when you are trying to explain something to someone who is totally discounting your own personal vast experience and knowledge of ones own body and the way it behaves.

Not to be trivial again, - but it's like having to deal with government red tape. Lots of busy-ness but no answers or meaningful actions.

You are in my prayers Betty.

I would say to change your PCP too, but know it's not as easy as all that, because it just means you have to train a new staff on your condition.
 
Betty,
So sorry to hear that you had this experience. I concur that it is probably time for another pcp and maybe it would have been better to go straight to the ER although I know how trying an experience that can be. Glad that all the tests were negative. Let us know how you make out with the cardiologist in a few days. Wishing you the best,
Phyllis
 
I agree dr hunting time.. and Im with you also that I will try almost anything before a trip to ER, hope you feel better soon.
 
I'm sorry you had such a bad experience. What really floored me is that you are a retired RN and they still give you the brush off. You did everything you could, but you said it yourself: you do everything you can to stay away from the medical system. That must be for a reason. Find a cardiologist who is responsive. Sometimes "the best " in the area is not necessarily the best. I say new doctor time. I know I can call mine anytime and they're back to me with clear,concise helpful ifor. Just as important, their techs are fantastic! Hope you feel better soon
Laura
 
I've always found the best ploy to see the doc is to say that I'll just call him at home and mention that the nurse wouldn't bring him in or put him on the line (whichever applies) during office hours. Usually breaks through the iron barrier.

And I have called the doc at home (it's been many years).

I understand that there are nervous nellies out there who could wear a doc out by demanding attention; but I think any pcp worth his while would recognize a patient who KNOWS when s/he needs to see the doc. And the doc should treat that patient with respect.

I'm with you, Betty - get a new pcp. You know I did and I'm a much happier puppy. He even talks with me on the phone when needed. kewl

Hope your weekend goes better.
 
I think it's time we all got together and staffed a hospital with doctors we know listen to their patients. Put it in the middle of the country and its success would have more throughout the nation very quickly.

Betty - sorry for your frustration. I have been there but have no answers for you other than the above. Looking for another doctor is a pain but sometimes necessary and may be the best route for you to take.

I hope you feel better soon.
 
Betty,
I have a PCP of long standing. We've been with him for 27 years, since he started his practice, and when I developed the valve stenosis, I was put in his computer system as a "see today" patient. I call, they check my name and birthdate, apparently see the notation, and I have an appointment that day.

On the other hand, my cardiologist is brand spanking new. My first appointment with him was two weeks after my surgery. He asked why I was changing doctors. I told him that my old cardiologist had grown too busy for my business. The new guy is just starting out as a junior member of a large cardiology group. He needs as many patients as he can get. As a result, when I encountered difficulties six weeks ago and thought I needed to be seen, his office staff got me in that day.

I guess what I'm trying to say is that my good experiences having resulted from having physicians who have initiated a system of appointment scheduling that allows the doctor to designate which patients he wants to see quickly if they are having problems.
If you aren't satisfied with the service you're receiving, then I would shop around till you find what you're looking for.
 
About the only good thing that came out of it was that they diddled around so long that you converted out of afib on your own.

Why won't they listen, when you're the one who's been there before? They might save time.

It's a very common theme with doctors. Even the best GP I ever had put down IBS in my record for what was plainly an isolated reaction to a combination of high doses of prescribed ibuprofen and a particularly nasty prescribed antibiotic. I have had to deal with that two or three times when I was at doctors for other things. And you can't get misleading c**p taken off of your medical record.

So, where do you stand, my dear valve sister? Are you feeling any better on your own? Is there anything you might still hear back from them about?

Very best wishes,
 
geebee said:
I think it's time we all got together and staffed a hospital with doctors we know listen to their patients. Put it in the middle of the country and its success would have more throughout the nation very quickly.

Betty - sorry for your frustration. I have been there but have no answers for you other than the above. Looking for another doctor is a pain but sometimes necessary and may be the best route for you to take.

I hope you feel better soon.

You know, Gina, that might be fun to do. Do you remember a couple of years ago when we made our cyber waiting room into the absolute best? :)
 
*grins*

I remember that wonderful waiting room!!!! I _believe_ we even had a multi-car garage, too.....

Seriously, though, very sorry about how you are feeling Betty. Thoughts/prayers coming your way.
 
Betty sorry to hear you have to put up with that kind of thing. My Doctor is completely different. He's been through so much with me, that if I call, he knows darn well there is a serious reason for it and gets me in no matter what. A couple times I was his last patient of the day.
 
I'm just so sorry that you are feeling so badly........

I'm just so sorry that you are feeling so badly........

AS usual, I don't have much valuable input, but you KNOW how I feel about being blown off by the medical community............sigh! I'd put my feelers out for a new PCP....... I really just wanted to voice my concern and send some prayers and hugs. Hope you get to feeling better soon. Janet
 
hello

hello

Betty, what a rotten day you had! I'm sorry! I have no advice to offer, just a welcome to vent anytime you like!!

Frankly, I wouldn't want to tussle with you, ever!! I would think they would honor the educated responses you give and offer you more respect. Good for you for sticking up for yourself.

Please keep us posted and I do hope you are feeling better.

Marguerite
 

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