The waiting game

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DianeB

Hello everyone,
I am new to this forum, and have found the information and support here to be amazing.

I found this site while doing some research on AVR for my Dad who was scheduled this week to have AVR surgery at the Cleveland Clinic.

My Dad who will be 71 next week, was scheduled for pre-op testing and a meeting with the cartiologist on Tuesday, a meeting with his heart surgeon (Dr. Lytle) on Wednesday, and then AVR surgery on Thursday January 5.

As it turns out, there were some bumps in the road. The cartiologist said that he was in great shape (he has always been physically active: world traveller, bike rider, lots of grandchildren, etc.), but when the doctor looked at his EKG he said that it was worse than he was told. His heart had weakened, it was functioning at 35%, when it should have been 55% or better. He was told that with that level of functioning, he may not make a full recovery. I am not exactly sure what that means, as I can think of several ways of interpreting that.

Then he went back the next day, and learned that his pulminary capacity was only 45% when it should be 50% of better. The pulminologist decided to put him on Prednisone to improve his lung capacity. He was told at that time, ideally he should be on that for 10 days, but he could be on it for a little as 5 days and still have the surgery. He left his office being told that his surgery was postponed until Monday January, 9.

When he met with Dr. Lytle later that day, he was told that he would not be available to do his surgery in 5 days or 10 days! The earliest there was an opening on his schedule was February 14, 2006, but if something opened up on his schedule before then, the surgery could be done at that time, provided my Dad's lung capacity had improved.

Then on Friday, he experienced vertigo (perhaps from the prednisone??) and vomiting. My mom could not get a blood pressure reading on him, so she called 911 and he ended up with an unexpected run to Timkin Mercy's ER. They got him stabalized, gave him a prescription to help control the vertigo and instructions to let his doctors at the CC know what happened and what medication they gave him for the problem.

This has been a roller coaster week. My father, throughout it all has had a wonderful attitude. He was psychologically prepared for this surgery and feels a little let down that it didn't happen when it did, but he of course doesn't want to have the surgery if his lungs are not in good enough shape to get through the recovery process without additional problems.

I have told him about this forum, and he was come and read some of the posts here, but was a bit hesitant to post anything himself. I thought I would get the ball rolling by sharing his story in hope that he would then jump onboard, as I have seen how tremendously supportive those of you who have been through this, or are in a similar situation have been.

Any words of encouragement would be appreciated!
Diane
 
Diane,
I'm glad you posted for your dad. I can think of several members who had to be hospitalized before surgery so they could be treated in preparation for their upcoming valve replacement.
The dizziness and vomiting probably were caused by the prednisone.
We have learned from different forum member's' stories, that a postponement in surgery, for whatever reason, always seems to work out for the best. While your father waits, I hope he will read all he can about his condition, so he can anticipate what he will undergo not only during surgery but also during his recovery process.
Welcome to the site, and please post away!:)
Mary
 
Hi Diane, your in my neighborhood here somewhere's. I'm up by the Akron Canton airport. Who is your dad seeing here in Canton?
 
Diane, welcome to you and your Dad. It's very disappointing when you prepare yourself for the inevitability of surgery and then the date changes for whatever reason. Cleveland Clinic is the Valhalla of valve repair/replacement hospitals so I'm sure he's in good hands and the doctors there are making wise choices for your Dad. It's a good thing that they found out these things. Going into surgery not knowing about them and correcting them would have made for an even more upsetting occurance, should the surgery have been done and recovery was unexpectedly difficult.
 
Hi Diane and welcome to this forum. It sounds like you really have been on roller coaster with the postponements and lengthening list of your dad's medical problems. If it helps any, many people here have also had their surgeries postponed for various reasons. If the treatment he is now on improves his surgical outlook then it is really good it was discovered pre-op.

I didn't see where you mentioned what the underlying problem was necessitating your dad's valve surgery. How long has he known that he had heart problems?

I'm glad you came across this forum since it is such a source of information and support from people who have gone through this themselves or with a family member. If you don't fine what you are looking for then please ask and someone will point you in the right direction. Again, welcome.
 
Hello Betty,

The reason for my dad's valve replacement was that about 9 years ago it was discovered that he had a bicuspid aortic valve. He was asymtomatic and therefore put off valve replacement.

This past Fall at an annual check up, his cartiologist said that he really needed to have his valve replaced by the end of the year. My dad said that he still was not experiencing symptoms and wanted to get a second opinion.

He was referred to the Cleveland Clinic for that opinion. As a result of the second opinion, he was put on their surgery schedule for January 5.

I agree that the pre-op testing that determined that his surgery should be delayed is a blessing. Better to discover these things prior to surgery. It will also give him a chance to spend some time reading many of the posts at this forum and benefit from the wealth of information and support offered here.

Thanks for your response,
Diane
 
Diane beleive it or not, some people never have symptoms, they just drop dead. Sounds like there is a definate rush to get this done asap, so he must be in some trouble.
 
Hi, Dianne! My surgeon postponed my surgery due to congestive heart failure for about 2 weeks. They want you in the most optimal shape possible to have ohs.

Tell your dad to check in - we don't bite!
 
Thanks Georgia! My Dad registered today, so hopefully he will post soon! I appreciate your story and your support:)

Diane
 
Like Georgia my surgery had to be delayed by a week and the type of operation changed from a Ross to a normal AVR due to CHF. While I was being treated for CHF there was a guy in my ward that had an AVR at 87 years of age. He was in good shape and was discharged from hospital quicker than I was and I was only 41, less than half his age. :eek:
 
This is the best place I have evr found on the web in terms of support from the members...

the guys and gals here are upf4oront and honest and between us all we have gone thru just about evrything you could have done to your heart...

and even better we have all survived these operations and some of us were emergency dissections and were lucky to get a 2% chance of surving...

this place is so full of hope and joy and love...

we would love to hear from your Dad in person...I recall my grannie at 91 in the hospital learning to use a computer, she did amazingly well...
 
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