R
rossmom
A book that I just purchased a few days ago. Has anyone read this book, or heard of the MVP syndrome/Dysautonomia? Im trying to get any information that i can on mvp, but it seems the more i read the more i get nervis. The Doctors have so many different openions on what exactly is Mvp. I dont know if anyone remembers my post about going to the emergency room with jaw pain and numing on the left side of my face and down my left arm. Well i went to my doc, and he says that my mitral valve is very mild case. I had a big list of questions for him and his response was he only set up 15min. aside for me. Now he went through the list very fast and skipped around. But get this. I was born in 1955 -- At the age of 4 yrs. i fell out and my brother rushed me to the hospital. There i stayed for three months. They said i came very close to having surgery due to three holes in my heart, I had rhumatic fevor. I went to this Hosp. till the age of eighteen every month. they had me on penacillan every day.When i moved to this area at the age of 22 thats when i had an episode with MVP had no clue what that was. I went to this Doctor for at least 7 yrs. he retired and they gave my case to a new Doc, there. I have been seeing him sence. Now when he reads my list , one of my questions was did my Rhumatic fevor have anything to do with my MVP, His reply was some doctors diagnose people with rhumatic fever when in fact they dont have it. ??????? I was so suprised to hear him say that, i couldnt speak. He telling my i spent all those yrs. at the doctors and took medication and spent 3mth in hospital for nothing? Did he not have my records, Forgot, or am i crazy. Doctors, think that when you have Panic disorder that no matter what you tell them, Oh, its just her panic disorder.
From what i read from one sorce or another, They dont seem to have a clue. They all have a different story, You are fine , its nothing to take serious, or You could die in rare cases.
Im here to tell you that i know that there are some of you that have hade surgery, right? Right now im so frustrated, Im short winded off and on, tired to where i dont want to do anything except sleep. But i do feel depressed, My Husband well if he would show at least some interest in what im telling him. He to thinks its my panic disorder, because the emergency room doctor said i had a mild case, after talking on the phone to my doctor. The die that was done about 4 yrs ago showed that the valve wasent leaking as bad as they first thought. But they had me scheduled for surgery til that test showed it was not as bad as the first two test showed. How dose that help me feel better about there openions.The funny thing is i felt fine back then but now im short winded, neck pain. And worried that my doctor is a money man. How could he not know that i spent all those yrs with rhumatic fevor. I know that my records were sent to them The last time i saw them it was at least 4inch thick. This book its telling me that i can change diet, living habits, exercise even if im short winded because it will help it in the long run, and it says that most doctors dont even agree that there is such a thing as mvp syndrome/D Any thoughts? Have anyone read this book. Im looking for a new doctor. I just want to know that my doctor knows what the crap is going on and listens to me, you know!!!!!!!!!!!!
From what i read from one sorce or another, They dont seem to have a clue. They all have a different story, You are fine , its nothing to take serious, or You could die in rare cases.
Im here to tell you that i know that there are some of you that have hade surgery, right? Right now im so frustrated, Im short winded off and on, tired to where i dont want to do anything except sleep. But i do feel depressed, My Husband well if he would show at least some interest in what im telling him. He to thinks its my panic disorder, because the emergency room doctor said i had a mild case, after talking on the phone to my doctor. The die that was done about 4 yrs ago showed that the valve wasent leaking as bad as they first thought. But they had me scheduled for surgery til that test showed it was not as bad as the first two test showed. How dose that help me feel better about there openions.The funny thing is i felt fine back then but now im short winded, neck pain. And worried that my doctor is a money man. How could he not know that i spent all those yrs with rhumatic fevor. I know that my records were sent to them The last time i saw them it was at least 4inch thick. This book its telling me that i can change diet, living habits, exercise even if im short winded because it will help it in the long run, and it says that most doctors dont even agree that there is such a thing as mvp syndrome/D Any thoughts? Have anyone read this book. Im looking for a new doctor. I just want to know that my doctor knows what the crap is going on and listens to me, you know!!!!!!!!!!!!
