Wayne,
I was hesitant about replying to your post last night, because my experience was not optimal.
I was in CCF and had a mitral repair in July and had problems with the electrical system. I was told that is the case with 40% of valve patients and that 10% of the patients need a permanent pacemaker.
My heart was erratic. I was experiencing A-Fib for several days, then returning to sinus rhythm. I would be fine for a day or so then return to A-Fib. My natural rate is low so the meds for A-Fib lowered it to a dangerous rate. There was a lot of controversy over whether or not I needed the pacemaker, so they kept me to see if my heart would return on its' own. The electrophysiologists (pacemaker guys) and the cardiologists finally came to an agreement about the pacemaker and it was put in.
A few suggestions:
Ask lots of questions. You might want to make it over to the hospital before 8 a.m. so that you can see all the doctors as they make their rounds. The decision about the pacemaker (if that continues to be an issue) will be a joint one made by the electros and cards. The cards will call in the electros if they feel it is necessary.
The person who was most helpful to my husband and me happened to be the surgeon's clinical nurse. She took a lot of time to explain things to us and help us navigate the system.
If you or Chris would like to talk to someone from pastoral care you have to request a visit. I had stated my religious preferences upon admission and no one ever visited. I finally asked and was told of that policy. I never had that experience in any other hospital.
I think one real disadvantage to going to Cleveland is that the spouse or other family support person is alone. I think my husband felt very isolated at the hotel, despite making many phone calls to family and friends. We live 2 hours away from the clinic, so we did have some visitors. I'm sure it would have been easier for him if he had been closer to home and visitors were more frequent. I didn't really mind the lack of visitors. I didn't feel up to socializing.
One reason that I chose to go to Cleveland for my surgery was that is where I wanted to be if anything went wrong. I've had some peculiar medical problems in the past. You need to remember that you are in the hospital that has been rated #1 for cardiac care for the past nine years. Chris is receiving the best possible care.
My best to you and Chris.