test results

ericaj · Feb 8, 2005

Hey guys - Just need some prayers! Got part of the MPS test results back - the urine test which show slightly elevated mucopolysaccharide levels. Have ot wait for Enzyme test results to come back yet for the diffinitive answer though. The urine test is just a test to either completely rule out mps (normal levels) or to give an indication that there is something going on whether it is mps or something else. Will keep you updated!

Erica

Harrybaby666 · Feb 8, 2005

You Have Mine Erica

You Have Mine Erica

Hi Erica,
I am sorry that I haven't been able to talk much these past couple of weeks, as I have been dealing with my friends heart attack and dealing with a bunch of other garbage. Anyway, I just wanted to let you know that I have you in my thoughts and prayers and hope your feeling better. Harrybaby

Abbanabba · Feb 8, 2005

Will be keeping you in my thoughts Erica.

A : )

gijanet · Feb 10, 2005

Please do............

Please do............

You stay in my prayers. Please let us know what you find out, and I hope it is all good. Hugs. Janet

Sherry · Feb 10, 2005

Keep us informed, Erica. You're in my thoughts.

ericaj · Feb 10, 2005

Appts. Today

Appts. Today

Hi Guys,

Thanks for the warm thoughts!! I had my appts today both with my Psychol. and with my Pulmol. and both went well. Counseling will help I think, although each week I leave I look fwd to going back. I don't know though how do you tell if you are depressed though? Sometimes I really think I am - my Therpaist is working with me on this - all hte issues but wants me to be the one to decide really if I can cope or if I think I need some extra help (med).

Pulm. was fine - PFT's continue to look good only mildly abnormal and my Pulm doesnt think that my particular case will be progrssive at all. She will monitor me though and will follow up with her in 4 months. Of course will talk to her in between there too. She started me on a multi-vitamin w/iron as well as keeping me on the Neurontin and to let her know in about a month how I am feeling. In the mean time she is looking into other options for the PLMD. She believes that with the Periodic Limb Mvmnt. Dis. I have the Restless leg syndrome so thats why trying the Mlti Vit. with Iron.

Social Worker helped me to get the paperwork I need for my College so that I can have the med stuff on file and make a Acoomod. Plan with the Learning Support Speci. for those days I will miss and incase anything would come up.

Re-did Genetics Lab work today they sent it to 2 different labs this time and should have results in about 2 - 2 1/2weeks. Have Opthalm. appt mid March and EP cardio appt next Tues. as well as ACHD Cardio appt March 9th.

All for now. Again thanks for keeping me in your thoughts!!
Niki - what did your Echo show????

Erica