Subaortic stenosis

[Emma]

Have just scared myself silly.
Having thought I knew everything there was to know about Chloes CHD - complete atrioventicular septum defect (CAVSD), I was shocked tonight when I read a new website that says subaortic stenosis can develope after correction, especially if the mitral valve has been replaced! ARGHH!! Had not heard that one before!! The only things I've ever heard about children with subaortic stenosis are bad and the children havent done too well to say the least! So needless to say, not feeling to happy now! Why do I read everything??!!
Has anyone else ever heard of this???

Emma
xxx

 

[aussigal]

Nope,,,its a new one to me...


just sending you a cyber-hug while you wait for the answers....


and a little bump back up to the top of the page for fun!...

 

[JeanneImp]

Have just scared myself silly.
Having thought I knew everything there was to know about Chloes CHD - complete atrioventicular septum defect (CAVSD), I was shocked tonight when I read a new website that says subaortic stenosis can develope after correction, especially if the mitral valve has been replaced! ARGHH!! Had not heard that one before!! The only things I've ever heard about children with subaortic stenosis are bad and the children havent done too well to say the least! So needless to say, not feeling to happy now! Why do I read everything??!!
Has anyone else ever heard of this???

Emma
xxx

Hey Emma!
You had to know I would respond to this one. I would say the you must be reading old material?? I know quite a few kids including Matt with SAS, who has done great.

There are a few moms you might know from other lists whose child has SAS and has not needed intervention as of yet.

....actually Matt has had 2 myectomies and sadly on Thursday his echo showed increased pressure across his mitral valve again. So we are gearing up for another heart cath. :-( First intervention in 9 years.

 

[Emma]

Thankyou both for replying!
I should have posted and said before, but I didnt think anyone was able to help with this thread so left it alone. lol
Chloe's surgeon replied to me the morning after I emailed him! Hows that for service?!
He completely put my mind at rest and Chloe has only the most remote chance of developing this, he says it is not likely at all. So YAY!

And yeah Jeanne, I think the Sub AS stuff I read was old... OOPS! Trust me to read anything and everything on AVSD on the net... must stop that!

Love to you
Emma
xxx

 

[Emma]

OOoh Jeanne, just reread your mail and saw about Matt. Sorry he needs more intervention. I know how you must feel. Bad enough at any time but after that length its even more of a shock. Hope they dont' want to do anything more than the cath and maybe increased meds!

Love Emma
xxx