short note- thankful

[newyorker86]

hey, wanted to check in again.

29 bicuspid valve, mildly dilated aorta, no signs of failure at this point. getting followup every 2-3 yrs

life is interesting, sometimes everything is going great, sometimes you catch a bad spot. sometimes i find myself ruminating on my valve and my mortality...

i'm glad this forum exists, so that thoughts and ideas can be shared. when i read about someone's story and being being treated for this disease, I see its no big deal and that people seek the care of doctors, get help when needed and in general move on with their life without major problems.

i guess i mean to say, i see there is nothing to really be afraid of. For this forum, i am extremely thankful.

anything to add dick0236? you know your the man around these parts...thanks for your informative and inspirational posts

-newyorker86

 

[dick0236]

life is interesting, sometimes everything is going great, sometimes you catch a bad spot. sometimes i find myself ruminating on my valve and my mortality...

i'm glad this forum exists, so that thoughts and ideas can be shared. when i read about someone's story and being being treated for this disease, I see its no big deal and that people seek the care of doctors, get help when needed and in general move on with their life without major problems.

i guess i mean to say, i see there is nothing to really be afraid of. For this forum, i am extremely thankful.

-newyorker86

You've said it very well.......and I second your thoughts about the value of this forum.......for the "newbies" and the "old timers" alike.

 

[honeybunny]

And I agree with both of you.

 

[Duffey]

Every year that passes, medical advances make valve replacement a little easier, a little safer. Our 30 year old son inherited his BAV from me as did our 7 year old grandson. I'm hopeful that by the time they need replacement, the surgery will truly be no big deal.My wish is the same for you.

 

[newyorker86]

hey thank you all for replying. yes it is incredible to see how surgeries are becoming less invasive and still effective

 

[epstns]

I can add one other good thing about your situation, newyorker. You have been diagnosed. Some people see that as a bad thing. We, here, do not. We see it as good, in that we now know and can have our condition monitored so that we are able to act before it becomes serious (or fatal).

In my case, I was diagnosed at about age 52. I suspect that I inherited my BAV from my father, but he was never diagnosed with BAV. He just had all the symptoms of untreated BAV with aortic stenosis, and he died from it at age 68. I am now 68, and I can assure you that I have every intention to live a much longer and more useful life. You, too, have the chance to affect your life and your future. Use it wisely.