Severe aortic stenosis replacement thoughts

Valve Replacement Forums

Help Support Valve Replacement Forums:

This site may earn a commission from merchant affiliate links, including eBay, Amazon, and others.
G

Guest

Hi Everyone! This forum is very informational and I appreciate all of the feedback that I have read here. In one week I will be having AVR with tentatively a mechanical valve. I am 68 years old and have always considered myself to be in good health but with a few vascular problems that my primary care discovered in 2000. I have diabetes but usually always have managed my A1C around the 7.0 range that the diabetic guidelines recommend. In 2000 a vascular surgeon diagnosed me with a 100% right ICA occlusion and my left ICA was about 90-95%. These were verified by a Echo, followed by a MRA and then an angiogram a few days before surgery. I ended up with a stent in my left carotid artery. Things went well for about three years until I had experienced a TIA one evening at home. A Cat scan revealed a brain bleed from a blood vessel in my brain. It turned out well for me with no surgery or lingering side effects. At my next appointment with my vascular surgeon it was discovered my left ICA was also 100% occluded. The surgeon told me that because this occlusion process took place over time that my body was using the artery in the rear of my neck and veins in my face to supply the blood to my brain that it needed. He called it collateral activity. Since 2003 I have had 4 to 6 brain MRI and have always managed to get approval from my neurologist to drive a commercial vehicle. (18 wheeler) In the ICA occlusion process I never experienced any symptoms other than the Tia in 2003.
Several years ago my cardiologist ordered a Echo of my heart when he discovered a murmur and advised me that I have calcium deposits on my aortic valve and I should have annual echo to keep an eye on this situation. The second year the VA did the Echo and my VA Doctor called me and advised me that the recent echo looked better than the first one. Another years goes by and last September I had my third echo at the VA. It came back as moderate to extreme aortic stenosis. My VA doctor made an appointment for me to see a VA cardiologist. The meeting with him went fine and because I have had no symptoms he recommended we keep an eye on it with 6 month echo tests and a visit with him for the results. Searching Aortic valve stenosis on the web I found info speaking of possible death from the AO stenosis without symptoms. My wife asked me to get a second opinion from my previous cardiologist. I met with him about a week later and gave him the radiology report I received from the VA and why I needed a second opinion. He told me that AOS never gets better and only gets worse. He scheduled me for a cardi catherization at the Maine Medical Center about a week later. He performed the procedure and I met with him again about four days later. He told me it was confirmed that I did have a severe aortic stenosis and he thought I should talk to a good Thoractic surgeon and set up an appointment for me.
About 10 days later my wife and I met with the surgeon. I explained to him my medical history and told him I would rather undertake this surgery when I’m feeling healthy than wait for my condition to change in some way. He advised me that taking care of this serious health issue now would be what he would advise his brother if I was him. He also mentioned that sudden death with no symptoms is a possibility with AOS.
I will say I am not afraid of this operation which will be a full opening of my chest and being on a heart and lung machine for the replacement process. I am nervous as heck about it because of my previous ICA vascular issues and the recovery maybe much longer that I expected. I’m scheduled for preop tests in a couple days and the operation as of right now is set for next Monday morning the 21[SUP]st[/SUP]. Any thoughts would be welcomed.
 
Hi there sounds like you got alot on your plate ! And you are right about this site being a wealth of information. I'm sorry no one has responded yet and l wish you all the best at your pre op appointment. I actually just had mine last week and am having double Valve replacement surgery mechanical in January. You have a history l cannot speak anything about as l have not experienced any of your medical issues although l can relate to it being nerve racking. Please keep us posted and hang in there. And hope you get some real answers to your questions and the solutions you need to get through this.
 
Hi - I just read your post. I too have diabetes (manage to keep my HbA1c around 5% with extremely low carb diet and repaglinide). I had severe aortic stenosis as a result of being born with bicuspid aortic valve. Once the stensosis is severe, whether it's from the kind of calcification you have developed or from bicuspid aortic valve, then the only option is a valve replacement. Sudden death is often mentioned. As long as you let the preop staff and medical staff know your medical history and about your diabetes then you should be well looked after. Nearly everyone, diabetic or not, is put on a sliding insulin scale following this kind of surgery as blood glucose levels rise a lot due to cortisol and other hormones the body releases during surgery. It may take some days for your blood glucose levels to get where you normally have them. Mind you, do take care for yourself - take your blood glucose meter in with you and check for yourself - the nursing staff were only checking mine pre-meal when they should have checked them post meal (not that I could eat much at all, still my bgs rose loads). Also they weren't too good at doing the finger prick, not knowing how to do it as well as most diabetic patients. Make sure too you have arranged good follow up post surgery once you are at home as recovery takes some time.
 
Hi

firstly welcome aboard. I'm glad to read someone taking a pragmatic approach to the surgery. I agree with your points, particularly that Aortic Stenosis does not get better. I agree that your TIA is an indicator and that operation while still healthy is the best way.

Your post seems well thought out and shows you are well across this.

Best Wishes for your surgery and I'm sure you are already mining the site for data like "what to take" to hospital and other small things like that.

Don't forget the Kimchi :)
 
I agree with pellicle"s comments. It seems you have done your research and are well prepared for this. I bet it will turn out that you start the new year feeling much better than you realize. Good luck and let us know how you make out.
 
Welcome to the forum. I'm glad you have found it helpful. Sounds like you have all your bases covered and have received some good advice from Paleogirl. Any surgery is risky. In most our cases, not having surgury for severe stenosis is riskier. My husband died at age 49 from sudden cardiac death. He was born with a bicuspid AV and his history was complicated, but he was experiencing TIAs for about six month before his death.

Wishing you the best for Monday. When you return to the other side, we will be here to support you in your recovery. Just remember, baby steps. Tell your wife we will be thinking of her, too.
 
Wishing you the best on Monday. It's normal to be nervous as it is a big surgery, yet this surgery is kind or routine to surgeons these years. I had severe aortic and mitral stenosis for years before surgery was recommended. I'm glad you're doing it now while you feel strong!

Good luck and welcome aboard.

Look forward to hearing your good news next week😊
 
Just a update ........... After my pre op cat scan was examined by my surgeon and a associate vascular surgeon they discovered my internal carotid arteries were fully blocked. I have known that since 2003 and told my heart surgeon that in my first meeting with him. Seems it went over his head. Told today my Aortic valve is too calsified to be clamped for AOV surgery and too high a risk for the surgeon to operate. So surgery is off. He wants me to meet with him and another specialist to discuss TAVR. At least I'll be home for the holidays and thinking maybe I should get a 3rd opinion.
 
Back
Top