Ross vs. AVR - update

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D

Destinova

Thanks everyone for the input on my previous thread.

I met with Dr. David Ross at the University of Alberta Hospital today to discuss my candidacy for the Ross procedure for my surgery. He is one of the premier congenital cardiothoracic surgeons in Canada, and I am very comfortable to have both he and Dr. Rod Macarthur as my surgeons.

He feels that I am a good candidate for the Ross, but feels there may be some concern with the size of the aortic annulus. He says it is showing at around 31mm and there are potential leakage issues with the Ross for an aortic annulus greater than 27mm. He did indicate however that he has done a few with larger than 27mm and has not had any issues.

We discussed the procedure at length and he explained that his personal series of Ross procedures has been successfull because he does not push the envelope with his candidates, he only performs fairly straightforward RP's with who he feels are good candidates.

Before committing to the Ross, they would perform measurements in the OR to determine if the annulus was in fact too large, and if so would proceed with a mechanical AVR instead as a backup plan, with Dr. MacArthur performing that surgery, since they will both be present.

He has performed 37 Ross Procedures, with the 38th scheduled for this Friday. His first was in 1995. He has had only one death in the OR - and that was due to a complication not related to the RP. Of the other 36, only one has died post-op, 8 years afterwards due to a non-cardiac related illness.

The remaining 35 are all alive and well. Only one has had a reoperation, and that was for the aortic autograft. The patient had developed endocarditis and some perforations had to be repaired, the autograft was left in and is functioning fine now - so all 35 still have their full RP.

All but one pulmonary homograft was done with human pulmonary tissue as the UofA has a fairly good tissue bank. The other was human aortic tissue and is still in place with no issues.

I asked him about possible connective tissue disorders causing the pulmonary valve to be unuseable. He disputed the theory that bicuspid aortic valves were indicators of related connective tissue disorders. He went on to explain that almost all of his RP's were bicuspid AV patients such as myself and none had bicuspid PV's. *shrug*

He recommends we plan to do the surgery as a Ross, with a backup plan of doing the AV/AR replacement with a St. Jude mechanical as a backup should the annulus be too large for the PV. Even with only 37 (soon to be 38) RP's under his belt I am leaning that way myself.

He was definitely not pushing the Ross at all, and was clear the entire time that the decision is 100% mine, but he feels that between the AV/AR and Ross, it's a dead heat for which choice is the best for my situation.
 
I am happy you got so much good information from the surgeon. I am wishing you best of luck that you end up with the Ross and things go perfectly.
 
You get an A+ in the Being Your Best Health Care Advocate class. :) What a good example of studying and knowing what to ask the doctors. Sounds like you have a solid plan of attack.

Best wishes!
 
Your surgeon sounds like he has a good Ross series going, my aortic annulus measured around 33mm on both the echo and the MRI -- I had primary AS with mild AR, the Ross seems to have held up well so far.

I think with your history of endocarditis the Ross might be a good option vs. animal tissue, living tissue fight bacterial infection better and homografts seem to be more tolerant as well ( havent got any references but this is what I keep hearing -- you can look it up on medline ). You are at a good age for the Ross -- another question I would ask myself, do you have any familial history of aortic valve issues? If you do then the chances of having a connective tissue disorder producing a bicuspid AV are possibly higher -- I think randomly occuring bicuspid aortic valves ( i.e. without being linked to a familial history ) may be due to leaflet fusing in early embryonic development ( again try searching medline -- I think there may be a few references on this ).

You asked the right sort of questions, the danger with inexperienced surgeons performing the Ross is they often go ahead with the Ross even when it is contra-indicated ( perhaps sometimes to pad their series ). More experienced surgeons might be more cautious, survival is hard in the Ross market -- before the surgeon has a large, successful ( published ) series.

Best of luck with pulling this off, I have my fingers crossed for you,

Burair
 
Your surgeon said the right thing - it seems the key to a succesful Ross Procedure is not pushing the envelope of who a candidate is. If it is a perfect fit, great. If it isn't, it's too involved a procedure (two valve removals & installs) to pursue when re-op is considered likely.

I went in with the Ross as my #1 choice and came out (3/8/2006) with an ON-X mechanical valve. If they had done the Ross with my questionable candidacy, every echo from now till likely re-op would have been stressful. It would not have been wise choice.

Best of luck and health!!!!
 
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