root replacement-valve OK

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gary47

I am a 47 old male and an avid runner-I was rear ended in a car accident-aortic root is dialated at 4.7 cm-my Dr. says I will have to be on Beta-blockers and restrict my activities unless I have my Aortic root replaced-he says my valve is normal no leakage (not a bicuspid)---I want the surgery anybody out there been in a similar situation??? Any advice will be appreciated!!!!PS it appears the dialation is not going down.
 
Welcome, Gary. You've come to the right place for answers. I can't answer because I had bypass but everybody else in here has had valve replacement and they will be along very soon. This site is so supportive and will stay with you all the way and beyond. God bless
 
Hi Gary

Welcome. There will be someone along soon to answer your questions regarding 'root replacement'. I have not personally heard of just the root being replaced.

Is this necessary due trauma to that particular area or do they think it existed prior to your accident?

Take care
 
Welcome Gary-

Welcome Gary-

This is a wonderful site and you'll find lots of friends here, some of whom may have had your particular problems. But we will all do our best to help you through. So ask away and you'll be sure to get some answers for your particular questions.
 
Thanks it is great to hear from everybody-this internet is great-I am willing to listen!!!!!!!
 
Hi Gary47.

I just had an aortic root replacement on May 21. Like you, my valve was fine but my root was dilated to 5.1 cm. This procedure (inserting a dacron graft into the ascending aorta without replacing the valve) is known as the David Procedure. I flew to Toronto to have it done by the man who invented it, Dr. Tyrone David. That was the best choice I've ever made! Not only is Dr. David an incredible surgeon, my recovery was much quicker and easier than I could have ever imagined. I was back in the gym working out (albeit lightly to begin with) three weeks later. Honestly, the worst part of the whole thing was the anticipation beforehand. If you have any other specific questions for me, don't hesitate to ask - I'll give you all the information I can.
 
Thanks Freddie24! That is the kind of info I was looking for. How vigorously do you work out-I want to start running again-you are right the anticipation is terrible.
 
Hi again Gary47,

I am a very fit and active person. I love to workout and do so daily. I was originally diagnosed with an enlarged aorta about 2 years before surgery. I was desparately hoping that it would shrink back to normal with time. That didn't happen and it became clear that I would need surgery. I was petrified. I'd never had surgery before and was in amazing health. Who'd have thought, huh? Well, as I'm about 4.5 months post-surgery now, I can tell you that I'm back to working out normally again and feel as if I'd never had surgery. In fact, at about 10-12 weeks post-surgery, if I didn't have the scar, I would never have known that I went through surgery.

I think recovery is very lifestyle-dependent so be sure to check with your doctor but since you sound very fitness oriented, I'm sure you will also have a very speedy recovery. I was back in the gym, as I mentioned, three weeks post-surgery. It started out being mainly riding the lifecycle and doing some power-walking on the treadmill. At 6 wks post-op, I began doing some LIGHT weights and stretching, to get my joints and muscles back into the swing of things. And once I hit 12 weeks post-op, my doctors gave me the green light to start working out normally again. The only caveats I have are to stay away from very heavy weights. I still lift weights, only I tend to stay more in the moderate category and not push it into the heavy category these days. The doctors said I can do as much cardio as I want. So all in all, having had open heart surgery, I was very pleased that the only limitation I now have is to stay away from heavy weight lifting.

As for your running, the doctors told me to stay away from any jarring motions (like running) until at least 6 wks post-op. And not to get back into them fully until 12 weeks had passed. The theory is that after 12 weeks, your sternum should be fully healed so as to allow you to put stress on it again. But until that point (and especially before the 6 wk point) you need to let your chest fully heal so you don't run the risk of cracking it back open and having to go through the same thing all over again.

I know from personal experience that the anticipation was FAR worse than the reality. It really wasn't that bad. Honestly. It was MUCH better than I thought it would be. If you have any questions for me at all, please don't hesitate to ask. This forum was a wonderful source of information for me before surgery and I'd love to help others out. Have you scheduled with Dr. David yet? It took me about 6 months to get in for surgery but it was well worth the wait. Most of that time though was due to my insurance having issues with the fact that I wanted to go to Canada for surgery. Hopefully you won't face the same problem. Let me know if you have any other questions - I sure did!
 
Thanks again-I can stand the wait-as long as unrestricted running is a reality-I am thinking about Dr. Deeb at the university of mich. doing my surgery-he is the best in mich. I will ask him about the David technique-he probably is aware of the technique and may actually use or something similar to it---what was your aorta dialated to-mine is at 4.7 and it doesn't look like it is going down. I will be patient as long as get back to my current level of fitness--I am not a fitness fanatic though I eat lots of pizza and have an occaissional beer-I ma47 but I like a lot of the newer music-matchbox 20 etc. also like the beatles and the rolling stones-I am a prison counselor--I am scared like you were-but I feel I am doing the right thing!
 
Gina

Gina

oh yea-Gina my doctor thinks i was the result of trauma from the accident.
 
Dilation can result from car accidents but they are usually quite serious ones. Was your accident a bad one? When they first diagnosed my aortic dilation, about 2 years prior to surgery, it was 4.7-4.8 cm. When I had surgery, it was 5.1 cm. I was desparately hoping that it would shrink back to normal but that didn't happen. Apparently, once the aorta expands, it doesn't shrink back. It either stays at its newly expanded diameter or continues to expand - obviously neither option is very good.

As far as your surgery goes, I would definitely seek out the best surgeon available - not necessarily just the best in Michigan. I'm not familiar with Dr. Deeb but I know there is a really good one at the Cleveland Clinic - Dr. Toby Cosgrove. He used to work with Dr. David before going to the Cleveland Clinic. If I were you, I would try to go to one of these two men. There are many surgeons out there who are capable of handling the David procedure but since it's not one of the more common types of heart surgery, why not play it safe and go to an expert? That's my opinion anyway. Talk to your doctor and see what his/her opinion is. They would probably know more than I would anyway.

As for unrestricted running, I would imagine you would have no problems with that. Surgery is a very scary thing. I was scared to death. But now looking back on it, the reality was so much better than the thought of surgery. I can't tell you how much easier the whole process was for me than I had anticipated. Obviously, you're not going to be back up to speed overnight but it really doesn't take all that long to start getting it back. The pain is pretty much a non-issue (except for sneezes) because of the drugs they give you. And as far as lifestyle changes go, I haven't had any. Once you go through surgery, you'll truly be amazed at how much of a weight is lifted off your shoulders. I know it sounds crazy, but once you get through surgery, the rest is downhill. Have faith - it'll be MUCH better than you think!!!

Have you discussed surgical options with your doctor yet? If so, what did she say?
 
Didn't really go into the technique he would use---next time I talk to him I will ask him about the David technique. If you talk to your Doctor tell him about my situation-my E-mail is [email protected]--my healthcare is Bluecare Network(of Mich)an HMO-he might know something about U of M--it sounds like you had a good exp.--He did mention the Cleveland Clinic ? If U of M is using a similar technique I am OK with that---You have been very enlightning-Thanks again.
 
I sent Dr. David a brief E-Mail-your right the anticipation-is tough-but the replies and interest of others has made this so much easier!
 
If any body knows of anyone who has had aortic root repacement and or valve repalcement that is a runner -that is currently running I would like to talk to them about their recovery and training.
 
My surgery date has been set for Jan 8th-this website has been a real blessing-the people have been great-informative as well as supportive-when I get through this I will not forget this-I will stay active-I am not going to have a valve replacement-just an aortic root reconstruction-so I have been counting my blessings-THANKS AGAIN EVERYBODY!
 
Hi Gary47,

Just curious if you've heard back from Dr. David yet???
 
Yea-Freddie I heard back from him-and like you said he is very approachable--he didn't seem to enthustiastic about me having the sugery at 4.7cm-I kinda would like the wait and monitor approach but I don't want to be a couch potato on beta-blockers-their is so much liability on doctors-I think Dr. Deeb wants me to restrict physical activity if their is the slightest chance of disection.By the way how are you doing? My surgery is schreduled for Jan. 8th.Do you have any info.on the long term durability of dacron repair?
 
Hi Gary47,

From what I've been told, the Dacron will last MUCH longer than we will. It's supposed to be nearly indestructable. If you're not comfortable with their suggestions, get a second (or third, or fourth) opinion. It will only give you more information and a greater perspective of your situation. I know that the apprehension beforehand was the absolute worst but the reality is MUCH better. I'm back to 100% and wouldn't even know that I had surgery 5 months ago were it not for the big scar on my chest. After the surgery, whenever it is, you will be back up to speed much faster than you think. Keep me updated..... Good luck!!
 
Nice to hear from you again Freddie-what is all the hype about antibiotics and dental work---I hear that they are taken a precaution-would you take antibiotics for teethcleaning? Yea Jan. 8th is my surgery kinda want to get it over with-you are very encouraging-were you on coumidin for a litte while after surgery or onbeta-blockers? Maybe you answered that-there are some good supplements to use when you work out-I can give you lots of good solid advice when you work out-----I switched to fish and chicken(very little beef)---iron supplement and b-complex-stay away from bread-a little once in a while is OK-cookie etc....I lost 20 lbs and maintained my strength. Blood type is impotant-I am A negative-my system responds better to grains rather than red meat..etc....take care!!!!!
 
Hi Gary47,

No I was not on coumadin - as I understand it, that's only for patients who receive a new valve. It is supposed to prevent clotting on the new valve mechanism but since I didn't need a new valve, I was not on coumadin. I was on beta blockers after surgery but I didn't notice any effects really. I didn't feel any different and I didn't really mind them.

As for the antibiotics, yeah, that's true. I actually just had a teeth cleaning last week and was advised to take a large dose (2 grams) of ammoxicillin one hour beforehand. And that was it. It's just a precaution and nothing to worry about.

Is your surgery in January a sure thing or still tentative at this point?

Keep the faith....
 
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