Restrictive Lung Disease

[ericaj]

Something else I learned today is that the lung problems are coined as a Restrictive Lung Disease - this along with the Heart probs - the sleep issues - the other muscle issues - has all my Doctors including my PCP thinking an underlying problem. My Cardio has told me yesterday he believes it is a disorder caused by abnormal thickening of something in the blood - but unsure of what he said that was. He did give me hte name of the syndrome so will of course have to do some of my own research so as to go in with questions for the Genetics Doctors.

Peace,

Erica

 

[PapaHappyStar]

was it albumin?

 

[ericaj]

Burair

Burair

Good to see you home!!

It is called Mucopolysarcoidosis. And I think has something to do with excess storage of Glycose. Havent done a lot of research on it yet.

Erica