Pre and Post-Surgery Support

[Michaelena]

I am relatively new (March 05) to this web site, but I must say the I am overwhelmed by the love and support provided to the members. My impression is that everyone has been "best friends" for years. It is so powerful all of the "positive energy" sent to those who are going into surgery.

Kudos to all of you fine folks, and those who maintain this web site.

 

[Debrinha GT]

Couldn't agree more!

Couldn't agree more!

Hello, are you having surgery or have already been through it? When I first joined VR, I expected to get a lot of information and support, but never imagined that I would actually make so many dear friends even though I'll probably never meet any of them in person since I live here in Brazil. However, they've meant more to me than many of the people, including family members sadly enough. I've had three mitral valve replacements, but I'll sure be far more prepared and well informed when the time for my fourth comes.
Débora

 

[hensylee]

Your impression is an absolute fact. Many of the originals are still here - the site began as email swap, evolved into a website that has ended up looking like it does here. I found it in 2000 after heart surgery when there were under 100 members. By accident, as many other members have done. The membership is now well over 1000. The site is populated the world over. Bet there's not another like it on the net. The support is amazing, as you have seen. We worry and care about each other. Much of the information exchanged here cannot be found anywhere else. Members can attend an annual reunion - next one is Las Vegas. There have been reunions in Texas, Illinois, Colorado, Tennessee and a few between members, privately. I met a co-member last year. We form long-lasting friendships on this site. We also tell jokes and argue. When we get out of line, there's always Ross who, we know, is watching from his perch! He just jerks us back to reality. Glad you are here.

 

[gadgetman]

Ann,

Ross is a JERK???????

Michaelena,

This site has been wonderful for a whole lot of folks. Hope us "newbees" can keep up the tradition. I'm trying to do my part.

Welcome aboard and,

May God Bless,

Danny

 

[Ross]

Ross is a JERK???????
Danny

Ah blasting me when I'm not around to defend myself now huh? Well take this:

 

[Sherry]

Michaelena, you are so right about the supportive nature of this site. I have been a member since the beginning and attended the yearly reunion this year for the first time. I felt like I had known these people for years, which in a way, I had. I'm even meeting another member (whom I've met twice before) for lunch today over in Central Illinois. It's a great support system, and we are so glad that you've found us.

 

[Michaelena]

Hello, are you having surgery or have already been through it? When I first joined VR, I expected to get a lot of information and support, but never imagined that I would actually make so many dear friends even though I'll probably never meet any of them in person since I live here in Brazil. However, they've meant more to me than many of the people, including family members sadly enough. I've had three mitral valve replacements, but I'll sure be far more prepared and well informed when the time for my fourth comes.
Débora

Debora
I had my mitral valve replaced in 1984, this site would have really helped. Today, I interviewed a surgeon, the third one, to replace my tricuspid and aortic valves, and I really liked him, so it will be a go; should be scheduled latter part of July.
I could not help but read that you have had 3 mitral valve replacements was it due to valve type, tissue vs mechanical?
I must agree with you, I have learned a lot, and it has reduced some of my anxieties.

 

[gadgetman]

Ah blasting me when I'm not around to defend myself now huh? Well take this:

ANN SAID IT FIRST!!!!!!!!

May God Bless,

Danny

 

[Glenda]

I have to "ditto" what everyone else has said. This site is wonderful and such wonderful, caring people are a part of it. Someone is always willing to share their own experiences. You will find yourself a part of great big "family."

 

[Debrinha GT]

calcification

calcification

Hi again Michaelena, I've only had tissue valves put in. Back in 1975, when I had my first OHS at the age of ten, the surgeon's choice was dura-mater, and as far as I know, I was the first child to survive my type of surgery. My case was awful tricky and chances were very slim. But I made it!! Five years later the valve had calcified and I had to get it replaced. By then, I was in much better condition and that surgery was more routine so my chances of survival were much better. The doctor put another tisue one, also dura-mater which lasted for nearly 16 years. The third time, then at the age of thirty, I was actually given a choice and could've gone mech if I'd wanted. However, I was trying to get pregnant so, I went tissue again (pericardium bovine bioprosthetic cardioprothesis valve). I now have this very cute eight year-old girl who's quite healty, but was recently diagnosed with MVP. I had rheumatic fever at seven, but I know that the doctors also found a congenital lesion on my tricuspid valve which was repaired no problem. Over a year ago I learned that my valve's slowly calcifying again and will need to be replaced within a couple of years. Believe it or not, I'll opt for yet another tissue. Valve choice's something very personal and has been discussed a lot here, but to me, I'd rather face the risks of reoperations than getting a mech. I guess I just feel more comfortable with tissue. If there's anything else you'd like to know, fee free to ask. I'm very happy to hear that you too think this site has been helpful. Take care!
Débora