I am finding it hard to wait. I have had a heart murmur for my entire life. I am 50 years old. I also have pectus excavatum (sunken chest). I had a traumatic surgery for this when I was 7. I also had high blood pressure for many years. The first time a doctor showed concern about my murmur was about 7 years ago. This is the same doctor I saw while growing up, which is confusing. Why was he not concerned earlier? Anyway, nothing came of it. He was very old and never really suggested doing anything. So a year and a half ago at my physical my doctor put me on new blood pressure meds and cholesterol meds for hbp and high cholesterol and referred me to a cardiologist. They did an echo and couldn't rule out bicuspid valve. They couldn't get visualizations of things like the pulmonic valve leaflets or measure systolic pulmonary artery pressure or right ventricular systolic pressure. There was no valve regurgitation at that echo and my left atrium is mildly dilated. I was diagnosed with moderate aortic valve stenosis and told to come back in a year.
I went to the doctor last month about 18 months later, I know, I know. My diagnosis has moved to severe aortic stenosis. However, my blood pressure and cholesterol levels are now normal. My LV wall measurements went from Septum of 1.1 cm and Posterior of 1.1 cm to Septum of 1.8 cm and Posterior of 1.3 cm. It also states trace tricuspid regurgitation present. Does this mean they ruled out the bicuspid valve? LOL It is very confusing. The dilation of the left atrium is still mild. Oh, and I have asymmetric septal hypertrophy. My ejection fraction has been been over 60% both times, so I guess that is good from what I have read. The doctor has not called me to discuss my results, over a week after the report showed up in MyChart his office called and said the doctor was referring me for a CT.
I am only 50 years old. I am tired all the time. I work out at least 3 days a week though. I was a smoker for many many years and only quit 2 years ago so I really don't know if my breathing is labored. What does regular breathing feel like? I occassionally get dizzy, not often, and sometimes have chest palpitations, but no real pain. That said, we had a power outage here this week and I felt SICK. It was very hot. I had dizziness, palpitations and was icing my chest to feel better. We ended up driving 4 hours away to find a hotel with power where we could have A/C. Thankfully the power is finally back on, it took FOUR days. We live near Houston, so... Thank you Hurricane Beryl. Grrr... Anyway I am just so unsure of what is going on. The info out there is that TAVI is not preferred for those under 65, but with the chest surgery I had as a child and the trauma that caused it is very scary. They broke open my chest and cut all the ligaments before putting the metal bar in there that remained until they removed it 6 months to a year later. A needless surgery since my chest sunk back in. The PE can compress the heart and my heart is not in the normal position due to compression of the chest, which is probably why certain things were hard to visualize on the echo. I also worry about damange inside my chest cavity that could cause problems for a possible operation. Anyway, that is my story in a nutshell, making my CT appointment tomorrow, but still upset the doctor hasn't bothered to speak to me yet. The heat and how bad it made me feel compared to everyone else in my household sort of made this much more real.
Anyone have a pep talk? LOL
I went to the doctor last month about 18 months later, I know, I know. My diagnosis has moved to severe aortic stenosis. However, my blood pressure and cholesterol levels are now normal. My LV wall measurements went from Septum of 1.1 cm and Posterior of 1.1 cm to Septum of 1.8 cm and Posterior of 1.3 cm. It also states trace tricuspid regurgitation present. Does this mean they ruled out the bicuspid valve? LOL It is very confusing. The dilation of the left atrium is still mild. Oh, and I have asymmetric septal hypertrophy. My ejection fraction has been been over 60% both times, so I guess that is good from what I have read. The doctor has not called me to discuss my results, over a week after the report showed up in MyChart his office called and said the doctor was referring me for a CT.
I am only 50 years old. I am tired all the time. I work out at least 3 days a week though. I was a smoker for many many years and only quit 2 years ago so I really don't know if my breathing is labored. What does regular breathing feel like? I occassionally get dizzy, not often, and sometimes have chest palpitations, but no real pain. That said, we had a power outage here this week and I felt SICK. It was very hot. I had dizziness, palpitations and was icing my chest to feel better. We ended up driving 4 hours away to find a hotel with power where we could have A/C. Thankfully the power is finally back on, it took FOUR days. We live near Houston, so... Thank you Hurricane Beryl. Grrr... Anyway I am just so unsure of what is going on. The info out there is that TAVI is not preferred for those under 65, but with the chest surgery I had as a child and the trauma that caused it is very scary. They broke open my chest and cut all the ligaments before putting the metal bar in there that remained until they removed it 6 months to a year later. A needless surgery since my chest sunk back in. The PE can compress the heart and my heart is not in the normal position due to compression of the chest, which is probably why certain things were hard to visualize on the echo. I also worry about damange inside my chest cavity that could cause problems for a possible operation. Anyway, that is my story in a nutshell, making my CT appointment tomorrow, but still upset the doctor hasn't bothered to speak to me yet. The heat and how bad it made me feel compared to everyone else in my household sort of made this much more real.
Anyone have a pep talk? LOL