liza
Well-known member
Well, I just got back from a lovely overnight stay at the Ross Heart Hospital. This pericardial effusion I've been battling for the past few weeks has finally gotten to the point where they wanted to do a pericardiocentesis. We tried steroids for about 2 weeks, but it didn't help. I didn't start feeling crappy or short of breath until the beginning of this week. So, five weeks exactly from my heart surgery, I checked back in to get this taken care of.
Let me just say I'd MUCH rather have heart surgery done again than get a catheter put in my pericardial sac. They gave me a versed ("It'll make you sleepy, don't worry" they said, HA!). The only parts I remember were the most painful ones of course. They drained about 300 ml of fluid and then put in a catheter and kept me in overnight. I drained about another 300 ml over the rest of the day. The worst was when my doctor pulled the drain out. That has to have been the most pain I've ever felt in my life! The end of the catheter was kinked and got stuck on something on the way out. Man, did that hurt.
Please cross your fingers for me that the fluid doesn't come back. If I have to go through that again...I don't know what I'd do.I think I'd make them put me out. I don't understand why they didn't. After it was over, the nice nurse that held my hand the whole time (what a nice guy!) told me that a pericardiocentesis and a bone marrow aspiriate are the two most painful procedures. You'd think if they knew that, they'd prepare for it better. Doctors...geez.
Has anyone else had this done? I'd really like to hear other stories. I found a few pericardial effusion posts, and a few people mentioned they had to have surgery. They said that'd be the next step if it gets worse. But I'm going to be a good patient now. I managed to finish most of my classes the past two weeks, I just have one more test to take and then I'm done with the school year. I think I'm going to take that on Monday, and then rest, rest, rest like a good girl, since I sure haven't since the week after my surgery. Darn this superwoman syndrome...I just have a hard time holding still. But I don't want anything else bad to happen, so I'm going to behave!
Thanks for letting me whine. I'm just so glad to be back home and not having a drain coming out of my heart sac. Ugh!
Liza
Let me just say I'd MUCH rather have heart surgery done again than get a catheter put in my pericardial sac. They gave me a versed ("It'll make you sleepy, don't worry" they said, HA!). The only parts I remember were the most painful ones of course. They drained about 300 ml of fluid and then put in a catheter and kept me in overnight. I drained about another 300 ml over the rest of the day. The worst was when my doctor pulled the drain out. That has to have been the most pain I've ever felt in my life! The end of the catheter was kinked and got stuck on something on the way out. Man, did that hurt.
Please cross your fingers for me that the fluid doesn't come back. If I have to go through that again...I don't know what I'd do.I think I'd make them put me out. I don't understand why they didn't. After it was over, the nice nurse that held my hand the whole time (what a nice guy!) told me that a pericardiocentesis and a bone marrow aspiriate are the two most painful procedures. You'd think if they knew that, they'd prepare for it better. Doctors...geez.
Has anyone else had this done? I'd really like to hear other stories. I found a few pericardial effusion posts, and a few people mentioned they had to have surgery. They said that'd be the next step if it gets worse. But I'm going to be a good patient now. I managed to finish most of my classes the past two weeks, I just have one more test to take and then I'm done with the school year. I think I'm going to take that on Monday, and then rest, rest, rest like a good girl, since I sure haven't since the week after my surgery. Darn this superwoman syndrome...I just have a hard time holding still. But I don't want anything else bad to happen, so I'm going to behave!
Thanks for letting me whine. I'm just so glad to be back home and not having a drain coming out of my heart sac. Ugh!
Liza