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sue943

Well-known member
Joined
Jan 6, 2006
Messages
1,555
Location
Jersey, Channel Islands (British Isles)
I went to the warfarin clinic this morning for my test and casually mentioned this site to the phlebotomist, and how many of you self-test and control your own dosage. She immediately replied that if I was interested she could give me details, how some people in Jersey self-test, however, if I did then I would first need to puchase the machine to test AND the testing equipment - at full price, no subsidies such as diabetic patients get for their equipment and test strips. Er, I think I will give it a miss! At least they didn't say no.
 
Sue, I don't know how insurance is in "the Isles", but many US insurance companies will pay for much of the cost of the machine (I had mine 100% covered), as well as the testing strips.
 
We have a health service a little like the NHS in a way, that is to say that all hospital treatment (unless you opt to be a private patient) is completely free. Being such a small community they cannot cover many procedures locally as specialists need to perform a set number of procedures each year to maintain expertise. For these conditions they have an arrangement with the NHS, we use their centres of excellence, for cardiac patients they mostly use St George's in Tooting which is excellent. They don't do the Ross procedure there so they use another London hospital for that. They also use Southampton General Hospital for some cardiac cases, particularly for children.

Anyway, they provide a free warfarin clinic at the hospital. Medical insurance for private care will not provide home testing equipment and supplies. The NHS might provide such things on prescription but unfortunately our local system doesn't cover primary care nor such things as test equipment. It took them years to decide to subsidise diabetic tesing supplies, warfarin testing equipment just isn't going to happen - we used to have to pay our doctors to test us, the clinic is a great concession.
 
Sue, sorry to hear you won't be able to self test. The NHS is just awful for things like this arent they.
We were lucky that ACE heard of Chloe's story and donated our coaguchek machine. The testing strips are now available on prescription but we still have to buy the control tests from Roche at full price too.The strips are expensive too, if you can't get them on prescription so that would be an ongoing cost for you. Perhaps I should get them on prescription for Chloe and send them to you! lol

Emma
xxx
 
At least our testing system isn't too bad. Officially they don't start testing until 9am, hence my inquiry yesterday. The phlebotomist told me that if you get to the department early and if the phlebotomists have finished the ward rounds early then they will do whoever is waiting so it is possible to be out well before 9am. If there is a problem you get a phone call that day, if not your yellow book comes back in the post next day with the INR and dosage. Mine is 3.2 this week so it is 10mg tonight then 5mg until next time. Next appointment is in two weeks.
 
Sue - Its my understanding that UK and Germany have large population of self testers and self dosers. Before I gave up on self testing, I would seriously check to see that you have the economics correct. Those of us who self test now would never go back. Chris
 
Hi Chris. I don't live in the UK, and yes the information that I have received will be correct, I would have to pay for everything myself. Our health service won't even pay for diabetic testing equipment and supplies although now they are subsidising them to a certain extent - in the UK diabetic testing supplies would be free.
 
Weezie

Weezie

US insurance companies don't pay for meters and supplies either except for "valve" patients - I'm on anticoag for A fib, but prefer to oversee my own care. I bought my meter on eBay. Sometimes you can get a comparatively good price even for new ones. Remember also that the one your clinic uses is a "used" one. Strips are also much less expensive. The physician's office is not going to refuse to "let" you do this; too much legal exposure should there be a consequence of that decision. Has been my experience as a patient and sadly as an NP and observer of office business practices ("see more patients" philosophy) - that it is true that many of the coag clinic fingerstickers are not highly medically trained. Be prudent if you get your own monitor, learn the ins and outs, and be certain to schedule intermittent regular office check-ups to compare results as well as calibration of the meter. Ask for a venous blood draw occasionally to compare results. Study the subject thoroughly because self-monitoring and dosing can be dicey. Someone will be paying and unfortunately ownership will be expensive either way. I just much prefer not having to take time from my schedule every 3-5 days for a 5 minute appointment at the coag clinic! I run my husband's business office solo (now that I'm retired from NP practice) and every missed opportunity to capture a service call costs us, at minimum, $100! I paid $750for the meter, liquid and electronic quality controls, and 3 months of testing strips! They all work great, but you must be prepared to take the risk and check out the seller's reputation. Nearest I can tell, I can buy the test strips 48 count at around $200, they last a long time under refrigeration, and after the initial stabilization period, I don't plan to test daily. Talk to your doctor, not just to the tech.
 
I have my testing done at the hospital pathology department, always venous, never a finger prick, and blood is taken by an experienced nurse/phlebotomist, it then goes to the lab for testing and for the dosage to be calculated.

On Thursday I turned up early and was out before 9am, just, so was only five minutes late for work. It isn't an appointment system, just take a ticket and wait to be called.

I am not prepared to pay for expensive testing equipment when we have a free and fairly efficient service available to us, I cannot afford it.

This island is very small, we have just one hospital and it is literally less than five minutes walk from where I am working this week, and about two minutes from a carpark if I am not working.
 
When I purchased my protime several years ago my insurance company would not pay for it. Even today they will not reimburse me for any of the cost of the test strips either and I have a mechanical valve. First BC/BS said no to the machine and the test strips, I changed to a different co Preferred Care and they wouldn't reimburse either. The first was just regular health insurance and the second is an HMO.
Sharon
St Jude avr 4/97
 
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