Parents....how did your kids react?

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aussigal

Well-known member
Joined
Oct 6, 2005
Messages
2,354
Location
Perth, Australia
I am seeking some answers on how all the mums and dads have gone with their kids...middle sized ones especially...

mine are 10,13,15. and the 2 on each end also have BAVD...

I am wondering what sort of reactions might be forthcoming...

would it matter to the boys if I had this surgery inter-state or would they prefer me to have it local? where they can visit each-day and see I made it thru!? or am I overdoing it and they would just be happy to know I made it?


all thoughts and experiences are most welcome...

thanks all
ton
 
Kids....

Kids....

My son is 7, so a bit younger than yours but I have had my eyes opened quite a bit with his reactions to surgery and recovery (and I am a child psychologist)! I think seeing you in the hospital is reassurring, but also frightening. My son could only tolerate the shortest of visits ( or maybe it was me...) and I think the hospital is a bit scary with all the bells & whistles. I had a collection box for my pleural effusion that was pretty gross and I think he was disturbed by all the blood contained within. I would think if you could have a better outcome at a distant hospital that the increase in child comfort with you close is not worth it.

What has suprised me is that my son has had a fair amount of anger towards me regarding the surgery - we have several discussions where I must reiterate that it wasn't a "choice" in the true sense of the word. He also has been pretty exasperated (sp?) that my recovery hasn't been quicker (as have I) and is angry that I am not "all better." Alternatively, he wants to take care of me and be the grown-up which isn't too great either...

Older kids, I think, would have more realistic expectations but I don't imagine that the anger and impatience will be totally absent. We are the moms and it seems that they expect us to keep on keeping on. Which we do, but this surgery does limit one's options.

Hope this helps!

Kristi
mitral repair
11/30/05
 
Hi Ton! (is it Ton or Toni??) I'm right where you are in the scheme of things, so I don't have the experience that may be needed to get you a good answer. My kids are all out of town and in collge. The oldest is 3000 miles away. My youngest, the daughter is 2000 miles away, and the middle is a 4 hour train ride away. He will be the one who can come if we need him sort of suddenly, or during a time when the others might not be able to get away.

We had a family talk, and I highly recommend that. Individually, they had each said that they "of course" would want to be home to sit with dad for the actual surgery. During the discussion, this generally highly vocal group sat completley silent. We explained how the timing of things might be difficult if we were to coordinate everyone's being home at a "good" time (in their individual college experience). We also stressed that often, since mine is elective surgery, things get postponed. Airline tickets and changes to those reservations are very expensive. Ideally, we wait until the oldest has had his finals in June, or the youngest can be home to help drive, etc. and of course that's what we'd do. BUT the important thing we stressed to them is that despite their wishes, they would have to be flexible because there are quite a few unknowns. They totally understood this. But still, they had a voice, a chance to air any concerns or misunderstandings.

I had balked about the notion of them seeing me in the hospital with all the tubes and stuff. They reminded me that they visited their grandfather after his triple by-pass surgery while he was still in ICU. At that time, they were exactly your boys' ages. They said it was no big deal, not frightening at all, since we had totally prepared them for the visit with descriptions of what things were. Their gramps is very, very precious to them, so this was not without emotion for them. But, he is not their mother. And they already knew that the prognosis was good. (in fact, here it is 8 years later and his heart is going strong......I do so wish his brain were!!)

I think you need to choose the best route for YOU. Then you and their father need to sit them down, tell them what is best for YOU and help them to understand, and then give them a chance to respond. Ask them to be helpful. Be honest that it is going to be a drag without you while you recover. Let them know that it is not something you can plan for perfectly because you've never been through anything like this and you really need them to be flexible. If you give them the proper expectations, don't be harsh, but don't sugar coat anything.....how can you go wrong? You'll be doing the best and most honest thing you can and they will grow up to repsect you for that.

All that being said, now that all this stuff is out on the table, so to speak, both my husband and my daughter have been strangely cranky towards me. Not all the time, but sometimes when I need them to be "hearing" me the most. I have some ancient psychological training and a teaching degree. I know that they practically worship me (we are all very close and share a wonderful love) and would never ever want to hurt my feelings, but here they do and don't even notice it :eek: . I am not going to take it personally. I am going to set it into the landscape of the event, like a vase that I have to leave out on a table that "belongs" there for some reason, but I don't really like. People's feelings, especially those they are trying so hard to keep to themselves -- out of respect, or love -- often rise to the surface and show up in weird ways. I'm sure that's all it is. Without Kristi's comment about older kids, I might not even have mentioned that. I think it is amazing how one person's comments can lead to another -- the beauty of this forum.

This is tough on everyone.....you just need to help them understand that it will be.

Well, you didn't ask for a short answer!!! :D And I'm glad you asked this. I hope others will share their experience.

Let us know how it goes!

:) Marguerite
 
Hey There Girl!

How close are you getting to surgery???? I must have missed a post here somewhere, I feel out of it!!

I think we may have talked about this some, sorry if I am repeating....

We had the kids (Kimber 9 and Ethan 14) come down to be with us (Nathan's parents brought them down, 4+ hour commute) on the day of surgery, Thursday. They stayed at the hotel until Sunday morning and took off for home. Both Nathan and I were glad they were there. My son was a wonderful support, held my hand when they took Dad for surgery....my daughter, the potential BAV, did well throughout the surgery. The only thing that was tough was that the kids were brought to see Nathan on the first day in ICU. They came when Nathan didn't even have a shirt on, and the two chest tubes were coming up and out of his chest. I could see that my daughter was distressed by this so I quickly took her out of the room. She asked me then, "When are you going to MY valve checked Mom???"

I had told my son about what to expect, so he wasn't shocked by anything and when they saw Dad later that night, he was up walking. The one thing also I should mention is for whatever reason, Nathan wanted quiet. Lots of quiet. Was not big on talking, TV, nothing for the first 3 days. Kids were very good, and they seemed to understand this without being told. My daughter would take her Dad on lots of walks, and that made them both feel good.

Our daughter was very emotional when we got home. She cried at the drop of a hat, never really offered explanations. I sat her down and asked her why she had been so upset, and she asked about her Dad being in pain, and if he was still in pain. So Nathan set aside father-daughter time and they talked about his surgery experience. This must have comforted her a great deal, because she came to me the next day and said, "Mom! Dad doesn't even hardly REMEMBER anything about staying in the hospital!! Isn't that GREAT???"

In hindsight, I wish I had prepared her more for Nathan's surgery. Nathan remembers alot from his Dad's heart transplant (he was 19 at the time) and I knew this and should have put more thought to how the kids would feel. We are a close family though, and we don't like being apart from our kids. We have never been away from them for more than 3 days and having them close was such a comfort, and I do think they felt good to know their Dad was okay...

Please keep us posted here!! Take care there Toni (I am stuck on Aussie :D)
 
Hi!
My kids were younger than yours when I had AVR last December, so I don't know if this helps. They were 8, 6 and 4. I tried to keep their routine as normal as possible and tried to keep a really positive attitude, and only gave as little/much information as I thought they needed. I thought that they would want to visit in the hospital. But during the preop, the nurse actually advised against it. Said that maybe they wouldn't be scared of me, but of all the other really sick people. I'm actually glad that they did not visit. I talked to them every day, and, by the time I got home a week later, I was weak, tired easily. But looked a lot like "mom" compared to what I looked like in the earlier days with tubes, etc. Your kids are older and can probably handle much more. Good luck to you and God bless, Martha
 
Kids

Kids

Hello

Mine are 10 (boy) & 6 (girl). They came to the hospital when I got into the room and out of CVICU. I don't think they could have handled the chest tubes and stuff, but the IV and monitor was better to see for them. They were a little scared at first, but I took a bath and washed up really good and put on my own PJ's and was sitting up in the bed and "looked" like normal Mommy. They just ran to me and were so relived that I was OK. They didn't know what to expect and were so happy to see Mommy was still the same. I took a pain killer before they came also and let it kick in so they could crawl up in my bed with me and watch TV. They thought that was cool and it let them see that I wasn't going to break if they touched me.

I would say the visit and when I talked to them on the phone was very comforting to them. I called them the 3rd day after and tried to sound as normal and upbeat as possible. It let them know Mommy was OK and would be home and back to normal soon.
 
Thanks heaps friends...

these are all excellent thoughts...and I enjoyed reading all of them...

For Annie and those who missed all the excitement last week! I have recieved the GO-AHEAD from that most generous surgeon I Emailed in Sydney. So i am on a *little mission* now as opposed to the HUGE one it ws 2 weeks ago ! YAY!...look for my "Changing rooms " post on about the 12th of jan. for further info.

I was chatting with my mum laast nite who has my 10 yr old over for a lil hloiday,,,She says he seems to be aware something is about to happen and I will be going to hospital for a really big scary operation . He seems to be more aware of his own condition now,,,this is the kid most likely to follow in my footsteps...@ 10 he aready knows he has a "slightly" dilated ascending aorta too. We told him this as it was mentioned in his company by the cardio so we eased his mind about the urgency for him...I am getting a second opinion on all the boys as well.

The Sydney Surgeon offered to refer me to a colleague here in Perth...so I will pop in and see him/her and go from there...

I go see my preferred cardio this avo so I will report back on what he has to say about all this..he hasnt seen me for almost 3 months and I have learnt heaps and gotten over my fears since I last saw him...should be a very productive meeting..,


I am off to refine my list of questions... and make sure i have all my papers etc to take to him...

catch you guys this avo for a report on my sucess :D .


I am also going to take this oppurtunity with only the 2 elder boys at home to have a bit of a chat after I have seen the Cardio this avo...


and yeah...
I too have noticed increased frustration amongst these guys here in response to me and my whinging and inabilities at present...naughty family!...LOL...its ok though cos I am just letting it go right-over-my-head!:rolleyes:
and it almost always revolves around chores not done...

There is nothing here so urgent that cannot wait til another daY!

Its a lovely sunny day here today so thats always a good omen !:p ...

catch you later peoples...thanks again for giving me some more great advice...
Ton.
 
My children were 11 and 14 at the time

My children were 11 and 14 at the time

They stayed with their mom in a hotel across the street from the hospital and visited me everyday.

The younger one took her cues from the adults around her, and really had (has) no idea just how scary this might be. The essence of it was: OK, dad looks totally messed up (this was post op), but he'll be out of here in a week and he's already better than before.

The older one didn't seem any different at the time -- but I learned months later she'd been scared witless.

But they both knew how glad I was to see them every time.

I'm glad they saw me at my worst and have seen me become infinitely better.

Your mileage may vary!
 
Since my kids were adults with my ohs, I don't have experience with that.

However, when I had breast cancer, I had WAY more experience that I'd counted on. My girls were 14 and 16. The 16-year-old was great; b/c she could drive, she did all my shopping, hauled the 14-year-old around, etc. She was a rock (of course, that's in her character anyway. Rather typical oldest girl in a family).

The 14-year-old, otoh, was horrid (unfortunately, characteristic of her). Acted out, did a little shoplifting, stayed out late, etc. Took her to therapy, finally; the psychologist said that kids just won't let you turn inward; at that age they're pretty narcissistic and will do what it takes to get and hold your attention.

So I had both ends of the reaction spectrum. Personally, I was ready to send the younger girl off to boarding school, but we got through it. It made chemo and radiation pretty tough, but it sure distracted me from my troubles!:eek:

So I think you can expect different reactions from each kid. And don't be insulted or upset if you don't like the reaction you get.

btw - I'm so glad you're getting appropriate attention to your health problems. Atta girl.
 
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