News From Tigerangelgirl

[Ross]

Here is a quick message from Nicole. I think she can definately use all the prayers and support she can get from us.
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hanging in there!
thanks for asking,i've been here since friday,went into congestive heart failure,had heart catherization today,still reaaly don't know what's going on,i have so many DR."s coming in with different ideas and different treatments all i want to do is feel better and get home to my girls,first i was facing valve surgery and pericardectomy,now we have an issue with my lungs and do you know the nurses down at the cath lab asked me why they were putting me on the lung transplant list,needless to say ,i was shocked and still don't have a clue,another cardiologist a diffrent one from the group came in after my cath and said that he didn't think my valves were causing all the problems,ever get the run around before?,it's scaring the life out of me and i want to leave now!!!!!!, I dont like sitting around i'm so far from home and the girls are not in a good situation right now ,well i guess i'll leave confused and facing more tests,please tell everyone thanks for the thoughts and prayers ,this computer at the hospitial is slow and hard to send emails ,so this one will be the only one i can right now,if you can post it go ahead or just tell the others were in a waiting game right now,and to keep praying...THANKS TALK SOON nicole

__________________
Nicole Jensen

 

[hensylee]

Dear Nicole - we knew this was going to be a tough week and your news confirms it. You are in a spot and don't quite know where you are with it. But you know that all here are praying and hoping that all will be well and you will be able to be with those lovely little girls quickly. God bless - Ann

 

[bvdr]

Hi Nicole,

I'm sorry to hear things are going so rough for you. I do feel that for difficult complex cases though you are in the right place and for that I am thankful. You and your family remain in my prayers and I will be waiting to hear from you again.

 

[fyrfytr]

Hey Nicole,
Sorry to hear things aren't going so well. Hopefully the doctors will get things worked out and get you taken care of. You and your family are still in our thoughts and prayers.
Take Care.

Dave
_______________________________
Surgery: 4/21/03
Aortic Aneurysm Repair
AVR, with a St. Jude Mechanical
Heart Center of the Rockies

 

[Peggy in Alaska]

Nicole

Nicole

Hang in there, girl. Let the experts look at all the information. It can take a while and I know you want to know, right now, what is going on. You are in a good place. We'll keep you and your girls in our thoughts and prayers.

Take care.

 

[Granbonny]

Hi Nicole

Hi Nicole

Thank you for e-mailing Ross..He is so good to post messages. Hope you feel up to reading your replies..so you will know..we are here for you. The ladies in the background. Are they fixing food in a church? Who is driving you back and forth? Please stay there..the girls will be fine. Children adjust very well.. A phone call a day..will let them know..you are O.K.. As long as they know how much they are loved.. I looked on map..exactly where is your town? Is Mateo the nearest large town? I have been out there and know it is very deserted this time of the year. Tourist have gone home. If the oldest girl is in pre-K..not much she will miss. Bet you have already taught her..ABC's..ect. Try to relax..and let those great doctors figure out your tests and go from there. Then get all fixed up and you will be back to them soon.Hope your Mom was able to come down and stay with you.. My prayers are with you. Bonnie

 

[KathyH]

Nicole,
You are in my thoughts and prayers too. God Bless you and your girls. Try not to worry about your girls, concentrate on getting yourself well again. Take 1 step at a time, I hope someone can be with you to help you though this. We are all with you in spirit! Get well soon.
KathyH

 

[Nancy]

Hi Nicole-

I'm sure you wish you had some answers, but please think positive thoughts. This is the best place for you right now, and you don't want to do this any more times, so hang in there until the final diagnosis is done.

My husband went into the hospital in much the same situation as you did, on an emergency type of admittance. When he first went in, they put him into the Heart Transplant Unit. That shocked both of us. But it wasn't because he needed a transplant, but because he was so terribly ill. It took a whole month (probably won't for you) for his doctors to figure out a plan for him. He had CHF (severe), and severe pulmonary hypertension (high pressure in the lungs). They did about a bazillion tests on him, I say a million dollar workup, a huge number of doctors were involved, and there were voluminous blood tests and many, many different drug trials.

But in the end he came out a new man. The plan that was designed was brilliant and he's felt better than he has for a long time.

He had an excellent cardiology appointment yesterday. He's on a new medication for pulmonary hypertension, Tracleer, and it has worked out very well for him. His oxygen sats yesterday were 98 in room air, and he doesn't have to use oxygen.

So it is a good thing that you have many doctors interested in your case. They will all work together for your benefit. They might be asking lots of questions at this point, but in the end, they will know exactly how to take care of you. Write some little letters for your girls and tell them what's happening. They will be so happy and relieved to know that you are being taken care of. I'm sure they know how ill you have been.

We all love you here and wish you the best.

Take care, Nicole,

 

[Gisele]

Nicole

Nicole

Looks like Bonnie has thought of everything for you huh? She's good like that. We will just sit here and wait it out with you. Most of us know what it is like to lay in that hospital bed and I know it is scary for you right now, but we are all here for you. Keep us posted when you can about your progress.

Gisele

 

[sylviayasgur]

ross,
thanks for posting that for nicole!

nicole,
i'm so sorry you have to go through this, and your girls; you must all be so frightened.
i'm so glad nancy shared all about joe's experiences with you so that they may easee your fears.
please let us know if you learn anything new about your condition.
you are in our thoughts and prayers.
all the best, sylvia

 

[nadi]

Nicole,

I ditto what has already been said. I know deep down that they will get it all mapped out soon and give you all the answers you want and need.

I will keep you and the girls in my prayers.

Try and stay calm, okay? We are all here for you.

 

[Creed3]

Ross,
Thanks for posting for Nicole.

Nicole,
Everyone here was wondering how you were doing. My thoughts and prayers are definately with you and the girls. It is extremely tough being in the situation you are in right now; but being in the hospital right now is the best place you can be. It may take some time, but the docs will find out exactly what is going on. Once they do, they will come up with the best way to treat your condition. Just try to hang in there. We are all here for you. I hope you are able to check your posts. If you can, please keep us informed. We worry so about one another if we don't hear anything for awhile.

Take Care & God Bless!
Put your faith in God and our Savior, Jesus Christ. It may not seem like it now, but they will help guide you through this.

 

[Guest]

Hi Nicole!

Just a quick note to let you know that you and your girls are in my thoughts and prayers. I know that everything will work out "just fine" as my mom always used to say.
I will also continue to pray for relief from your pain and anxiety and for you to have your many questions answered soon.
Take care and we'll all be waiting here for you to lend all the support that we can!

Take Care!
Julia

 

[tiggerangelgirl]

thanks

thanks

thank you for your thoughts and prayers its been a tough week but they di have some answers alot of tests they did were negitive which is great!,but on the other hand i want to be healed eithier by the good LORD above or through the hands of a DR,i just feel at 27 i should have alot of spunk in me and theres not even a "putt"
some things i have found out,i was diagnosed with congestive heart failure,which i'm not really understanding what it means,my pressures are a little high in my heart but they said right now they have some time before valve surgery,they dont want me to go through major surgery because my lungs wont be able to handle the stress coming off the vent ,so they said that they would like to wait as long as they could and treat me symptomatically until i no longer can wait,
i have also been diagnosed with pulmonary stenosis,usually this is a congenitial birth defect,but because of the four ablations i had caused alot of trauma and therefore scarring and thickness occurs,not the best news i ever had,but iam home awaiting to go back to duke on the 26th to talk about the game plan. thanks everyone
nicole

 

[Nancy]

Hi Nicole-

I posted an answer on your other thread, but you have mentioned congestive Heart Failure (CHF) here so I want to answer here too.

Are they giving you some diuretics for your CHF? And did they tell you to keep to a low sodium diet?

May husband has had CHF for many years. It is a condition which can be controlled very well with diuretics. Once the retained fluid is shed from your body, you will feel much better.

In my husband's case, it is something which comes and goes. He is on Lasix and when the fluid starts to build, his cardiologist puts him on a little extra until the fluid goes away.

He has to stay on a diet which is almost no salt at all. It's hard, but it helps him a great deal.

Just wanted you to know that there are things that can help this.

Take care,

 

[KimC]

Nicole, you're in my prayers. I'm so glad you found this site. The community is one of a kind.

 

[nadi]

Nicole

Nicole

Hi Nicole,

I bet you are glad to be home with the girls!!
I am glad they are coming up with a "game plan" for you.
I am sure they will take good care of you.
Keep us posted,

 

[Granbonny]

Hi Nicole

Hi Nicole

Glad you are home with the girls. You have 2 weeks before you go back to Duke. Enjoy the girls, but try to line up some help for them..in case you have to stay. Do you have any relatives that could take them in..they are still young for school..so no worry there..You take care too..stress makes things worse. Glad you have a good doctor on the Island. Bonnie