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Wise

Well-known member
Joined
Feb 7, 2005
Messages
4,578
Location
Louisville, Kentucky
Hello all, my name is Wise Smith. I wasn't sure which thread to start with so I picked one.
I live in Frankfort, Kentucky. I have a bicuspid aortic valve and right now am okay. I also have mitral valve prolapse, which is causing only minuscule leakage. My brother, Forrest, had two surgeries to replace his aortic valve. When he was 32 he had the Ross procedure performed. In 2002 when he as 39, he received a mechanical valve. He died eight and a half months later at age 40. It was after he died that I learned I have a bicuspid valve. I was initially scared because of what I've seen him go through. I've done some research and found many opinions to ponder. I'm very happy to have found this group of people who have been there done that and those like me who probably will go through surgery. It would be fine with me if it never has to happen though.
Just a little introduction of myself, I am 45 and have been married for 15 years to Cindy. I inherited two children from Cindy. Jessica is 27 and lives in Atlanta. She's married and has two children ages 2 and 8 weeks. Galen is 23 and lives with us, or more corretly sleeps in a bed here most of the time. He's engaged and spends his time with you know who. I worked for state government here in Frankfort for 26 years. I bought five years of service time and retired early. Right now I'm enjoying being mister mom to four yorkies, a bichon frise, and Jet, our cat. My wife has only worked for about seven years and is enjoying her job right now. Cindy is blind and in the process of getting a guide dog, which be several months away.
So, sorry for being wordy, but wanted to say hello. I'm thankful to have this group to learn from and look forward to getting to know you all.

Wise Smith
 
Hi Wise -- So sorry to hear about your brother, I too had a Ross Procedure done which seems to be ok so far, mine was 2 months ago in Dec.

I can be the first among many to welcome you here -- I came here for the first time just as you did after discovering I had a bicuspid valve -- since then its been a great learning and -- without exaggeration -- a life changing experience to be a part of this group.

Please ask if you have any questions, there is a lot of experience, wisdom here and you wll find company in any situation you find yourself ( heart or otherwise ).

Welcome again,
Burair
 
Hello

Hello

Hello Burair. Thanks for the welcoming. I'm so glad you are doing well. My brother would have lived longer, I'm convinced, if he had not smoked. He quit a couple times, but never conquered it. Why did you choose the Ross Procedure? My cardiologist suggested a mechanical valve, when and if the time comes for replacement. I value the opinion of those who have gone before me.

Wise

PapaHappyStar said:
Hi Wise -- So sorry to hear about your brother, I too had a Ross Procedure done which seems to be ok so far, mine was 2 months ago in Dec.

I can be the first among many to welcome you here -- I came here for the first time just as you did after discovering I had a bicuspid valve -- since then its been a great learning and -- without exaggeration -- a life changing experience to be a part of this group.

Please ask if you have any questions, there is a lot of experience, wisdom here and you wll find company in any situation you find yourself ( heart or otherwise ).

Welcome again,
Burair
 
wise smith said:
Why did you choose the Ross Procedure? My cardiologist suggested a mechanical valve, when and if the time comes for replacement. I value the opinion of those who have gone before me.

Wise

At 32 I thought I might outlive even a perfectly implanted new generation mechanical valve -- but I think the next generation mechanical valve may not be far away that might eliminate some of my concerns about mechanicals, also tissue valves are sure to improve as well.

I choose the RP because it puts a viable valve in the aortic position that if there are no problems with it lasts a lifetime in the pulmonary position without causing embolic events or calcifying -- indications are in most cases it lasts for over 20 years in the aortic position as well. The pulmonary homograft is probably a longer term solution than a homograft in the aortic position and percutaneous ( through the circulatory system -- no surgical incision ) ablation -- even replacement -- techniques are available for pulmonary stenosis.
 
Welcome to the family Wise! Thanks for giving us your vital statistics. You have my sympathy on the loss of your brother.
 
Welcome Wise!

I too am sorry to hear about your brother. I too had a Ross Procedure, but I did not have a bicuspid valve. If you feel ok about it, maybe you can give us more details about your brother's case some time. It seems that not all people with a bicuspid valve fare well with the Ross Procedure due to connective tissue issues that can complicate matters with some that have bicuspid valves.

I agree with the others that you could not have stumbled across a better place to gather information, get support when you need it, support others when they need it, and make lasting friendships. I found this place a couple of months before my surgery and it literally kept me from going insane while waiting for my surgery.

I don't know why I feel compelled to tell you this, but my father is also blind. He was diagnosed with Retinitis Pigmentosa in his mid 20's. I have watched as his eyesight has slowly deteriorated over the years, but he didn't let it stop him from serving 18 years in the Air Force before being medically retired and then working 20+ years in the federal government. Anyway, I just wanted to welcome you to the group...take care! :)
 
Hi and welcome to the group. Just wanted to say how sorry I was to hear about your brother. That surely makes all the scarier for you. But you will see so many folks on this site who have done just fine with all kinds of heart and valve surgeries.

Take care.
 
Welcome to our wonderful site, Wise. I too am sorry to hear of your brother's passing. You've found yourself a place in which you can share your own concerns, offer guidance to those getting ready to have surgery, and sometimes just to cut up and have a good time with other valvers. (BTW, I come to Lexington once a month for my son's musical lessons and take that Frankfort/Versailles Exit, in your neck of the woods. I live in Evansville, IN.)
 
Welcome!

Welcome!

Hello Wise!

I'm a fellow Kentuckian, I live in Louisville and work at University of Louisville Hospital on their Bone Marrow Transplant Unit. This is a wonderful site to get information and meet new friends. I have aortic stenosis, and am going up to Cleveland Clinic next week to be evaluated. I have a cardiologist here in Louisville but want to get a second opinion since I have a kind of complicated medical history.
Hang out, read alot and ask questions, you'll learn lots and get plenty of support!
 
Welcome Wise to a great place,
Sorry to hear of your brother's passing.
It certainly sounds like you have your hands full.
If or when your time comes for surgery, you will be very well informed by hanging around this site.
A lot of my extended family lives in Frankfort,it was my father's birthplace.
If you run into any Barbour's down there say hi for me.

Rich
 
Sorry to here that yor brother has passed away. I know what that is like. I lost my daughter 11 years ago while she was having a cardiac catheter done. She was only 6 weeks old, she had multiple heart defects. I just recently learned that I have a BAV and a dilated ascending aorta. I can imagine how scared you must feel. I myself am trying to come to terms with this diagnosis. Good luck to you.
 
Welcome Wise

Welcome Wise

Sorry about your brother. Not everyone, as you can tell, has problems after surgery. I had a friend on the job who had bypass surgery a few years ago. He developed a steph infection at the the surgical site and died a fews after. He had problems that caused the death. So, I am hear after two surgeries myself, first at childhood, then 28 years lates, aortic valve replacement. I have reached three years plus and doing great you keep coming in ans lurk and learn if you want. Ask us questions and we will try to help get you the answers. Take care and keep hanging in there.
 
Welcome!

Welcome!

Welcome to a great site, Wise. The more you frequent this place, the more you learn, especially about what a wonderful, caring, educated group of people we have here! I'm sorry you have lost a brother. Please accept my sympathy.

I am in the "waiting room" along with many others. I'm 51 with moderate aortic stenosis. Some of us have a date set, some of us have yet to even be told we need a surgeon. I have learned so much from this site and it has comforted me greatly. You may find that having your "stats" handy becomes useful, so if you have had some echocardiograms, etc. it is a good idea to request copies of them. There are many here who can help you decipher the numbers and learn the most you can about your disease.

Drop in often! and again, Welcome!

Marguerite :)
 
Hi Wise

WELCOME!!! This place is the very best, in case you haven't found that out yet. I've been a member here for almost 3 years.....my husband, Tyce, had AVR when he was 59. There's no question that this site and the wonderful people here helped me get through his surgery. I knew what to expect, and boy were they right.

Tyce opted for a St. Jude's mechanical....no problems, thank God. I know you'll make the right decision when it's your time. Just remember to do what's right for YOU.

I'm sure you'll have many questions, and everyone here will be happy to help you out.

Again, WELCOME!

Evelyn

PS We're dog people, too.....3 springers.
 
Thanks!

Thanks!

Thank you guys so much for such a warm welcome. I am so relieved to find this group. There is something comforting in knowing that you're not alone. Of course I have my wife's support and my cardiologists are great, but this was missing from my life and for finding you I'm thankful. I appreciate the condolences about my brother. I will try to provide more information about his situation and mine as well. To tell you the truth I am such a novice regarding medical terminology; so, I ask your patience while I learn. I appreciate what you guys have shared with me so far. It has been more helpful already that I expected and more than you probably realize. My goal, and I'm the goal of many, is to stay as healthy as possible and to live a good long life. Toward that end I lost 50 pounds, as my wife did as well. I used to have high blood pressure, high cholesterol and high triglycerides; now all of them are normal, thank God. I still take zocor and tricor and my cardiologists are disinclined to ever take me off of them because of my family history. If I could just get myself motivated enough to exercise consistently. Anyway, thanks a million. I look forward to my future with this group. Wise
 
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