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M

msiwik

Hello All:

I am a new member to the site who feels like I have just found all my long lost relatives. This is a terrific resource and I am impressed with the depth and quality of information shared by the members.

I am 41 and a dedicated long distance runner, who underwent AVR at the Cleveland Clinic on May 23, 2005. I had no symptoms until May 10 or so, when I went to see my general physician, thinking I had a strange form of bronchitis. I had seen my training leveling off beginning in March 2005 and tired in a half marathon on May 7, 2005 (still posted a 1:45) but attributed it all to business travel and resp. infection that hadn't completely resolved by the time of the race. I had no idea that I had a heart issue until it was discovered by my general physician in mid-May. I actually went to see him to get some antibiotics, thinking I needed to kick a bug in advance of a race that coming weekend.

My valve was replaced with a bovine, 29 mm. I have recovered well, walking a great deal until my six week checkup at which point I was given my exercise regimen. I was limited to keeping my heart rate between 132 and 156 and I was told to start with a 12 min. pace using a walk run/walk ratio of 3:1. By the end of July, I was able to run 6 to 8 miles with some of the running down to an 11:00 min. pace. Once I built up to 6 miles, I made sure to use one minute walk breaks.

One of the ways I have been coping is to set a personal goal of completing the Clinic's half-marathon on Sept. 11. Over the last two weeks, I have increased the length of the long run from 10 miles and then to 13 miles. If I had to do it all over again, I would have stuck to my one mile a week increase as I seem to have hit a wall now. Fatigue has set in and there is some discomfort with breathing deeply. Fortunately, there is a walking division in the half marathon and the ability to split it with another person. Until this week, I was pretty optimistic that I could do the whole thing at an 11 to 11:30 pace, using a one minute walk break. I have about 3 weeks until the run and I am optimistic that I will be ok provided I don't overdo it between now and then.

The drs. are keeping an eye on me. I have to take a week off running (walking is ok) and REST. I also will undergo a stress echo on Sept. 8, 3 days before the race. I experienced a decrease in my ejection fraction (went from 60 pre-op to below 50 post-op) and they want to make sure everything is ok. I have done some research and located articles that make the point that it is common to have a decrease in the EF post-surgery and that it does improve, particularly with areobic conditioning.

What have I learned so far:

a) For the athletes, you do need to find fellow athletes as there is a dearth of information available on how to tailor your rehab/return to fitness. I am pleased that we have several athletes contributing to this site. I think more needs to be done though - perhaps through the American Heart Association. It would be wonderful if there was some systematic tracking pre and post-operatively of athletes who undergo AVR.

b) Heart rate monitors/heart rate monitoring don't tell the whole story. My RHR is now in the mid-40's. I have no idea what it was before surgery. I also tolerated increases in my endurance and my pace, carefully watching the HR as I ran. Even so, I knocked myself down a peg by going too far too soon even though I thought I was being completely safe. It's not uncommon for long distance runners to increase their long run by two miles each week which is why I bumped from 6 to 8 to 10 to 13 (just went for the extra mile on Sunday) but I went too far. I am curious if anybody else has experienced this. I am definitely not running again until my energy level returns to normal and I lose this sensation of discomfort when I breath deeply.

Ok, have gone on long enough. I look forward to getting to know you all.

Best regards,

Mark,
Cleveland, OH
 
Hi Mark and welcome to the forums.

As you can see, you join another long list of Marks who are fitness minded persons. You guys are going to have me all screwed up and confused soon, if this keeps up.

Just a short welcome. The rest will be round soon. :)
 
Hi Mark,
Welcome, I am new as well and now find my self addicted to the daily support and info from all the VR.com regulars.

Related you some of you questions please read my initial (massive) athletics related entry under Buzz's sting titled: Length of recovery time following AVR

http://www.valvereplacement.com/forums/showthread.php?t=12286

That pretty much sums up what I have been working through; physically and psycologically. In short after the removal of the Beta-blocker I improved quickly and greatly but now that I am back to a reasonably good level of athletic condition, I have seemed to hit a bit of a ceiling that hopefully will go away after a more lengthy period of time.

Welcome, I look forward to reading more about you.
Paul
 
Thanks Ross and Paul

Thanks Ross and Paul

Gentlemen: Thank you for your welcome! It does feel like starting all over again with running. I also want to congratulate all those on this site, regardless of where we are in the spectrum of ability, talent, and interest in athletics. George Sheehan, a cardiologist-runner-guru, often said that each of us are an "expirement of one." I look forward to sharing and learning.

Regards,

Mark
 
Hi Mark -

We're glad you found us too! Keep us posted on your experience and progress. As you've pointed out, our community here is the best support we've we've got, whether for guidance or inspiration.

Best wishes for continued recovery.
 
Bill: I couldn't agree more and I see that you had your work done at the Clinic too. Looking forward to meeting you at some point! Thanks for your words of encouragement. I can't tell you how good I feel to have found a group that understands and has been there. Regards,

Mark
 
Mark: Welcome! I read your posting with great interest. I was so happy to find other athletes with valvereplacements I got downright teary! It's amazing how so many of us anxious to get back to our sport and prove to ourselves we can overcome anything,perhaps push a little too hard. The other Mark gave me great advice,if your have to nap after your workout,you've done too much. The roads will always be there for us to ride and run on. This is a great support group and with the new guys like me , you, Jason and Paul; it seems like it's really growing! Please keepus informed on your monitoring with your cardiologist.
Hey by the way, where are all the female athletes? We need to talk!!!!
Laura
 
I hear you, Mark, about HR monitors.

I hear you, Mark, about HR monitors.

But I still prefer objective data to perceived exertion. I'd really like someone to figure out how to make adjustments in the software. Polar, are you listening?

I wonder about the assertion that if you have to take a nap after exercise, it's been too much. That happened to me last week when I went for a 90 minute hilly walk in high heat & humidity. I was so excited that I could do it (I haven't been able to do that...maybe EVER) that I didn't mind taking a nap after!
 
Cardiac Athletes/Ejection Fraction Changes

Cardiac Athletes/Ejection Fraction Changes

Laura and Mitral Man and to the larger group:

Thanks for the welcome.

1. Psychological adjustment. I think this is a big issue. Before surgery, I routinely ran 14 miles every Sunday and averaged 35 miles a week. When I got the news at the six week mark that I should start running at a 12:00 min. pace for 3 minute intervals, I was disappointed but adjusted quickly after my cardiologist explained the ejection fraction. My supposition (and it's purely that) is that regardless of whatever else is going, the heart itself needs time to recover from the trauma of the surgery. I have found some early 1980's research suggesting that it's common for the ejection fraction to lower after surgery even though the valve has been fixed.

See http://circ.ahajournals.org/cgi/content/abstract/68/1/95

Once I understood this, I was more accepting of the limitations and I just got out my beginner runner's manuals. I coach cross-country and I also teach a stress management course emphasizing exercise. I adapted pretty quickly but I think where I went wrong is that I naively thought - hey I will do this half marathon in Sept, and probably 3 or 4 more after that this fall. I had made the adjustment to starting my training all over as a beginner runner but had not made the adjustment in terms of realistic goals for the fall. So now, I just want to finish this half marathon on 9/11 - whether I walk the whole thing or run/walk and then just slowly build back up over the next year, going through the normal progression of 5ks to 10ks etc. I don't think we are alone with this process - I was reading a biography of Jack Nicklaus and he talks about trying to come back after hip replacement and that it took him a year to get back to normal - and that's hip surgery - not open heart.

2. Cardiac Athletes - Laura, I had the same reaction you did upon finding this website - at last, there was somebody else out there like me. Prior to this, I did find a UK website that speaks to me - it's put together by an exercise physiologist in the U.K. I encourage everybody to look at it.

http://www.cardiacathletes.org.uk/index.html


I am a young man - 41 - and I want to compete as long and as hard as my body will allow me. I am not out to set any world records or anything; I just believe in the greek model, of wellness of mind, body, and spirit. I am a better person, better father, better husband, better friend when I can get that release through exercise.

I think we have to keep at this - we have to keep growing our numbers, supporting each other and eventually we will find an exercise physiologist or cardioligist who is interested in our population, as small as it is. It will just take time - it took 30 years to have the support systems (teaching exercise, nutrition etc.) we have now for the typical heart bypass patient.

3. "We are all equals." I am extremely sensitive to posting stuff about my athleticism on the website for fear that it will come off sounding arrogant etc. The truth is that while I want to find my peers (there is always going to be someone faster than me!!!), I want to encourage everyone on this site and society in general to be physically active. In my stress management courses, I take the audiences at the break just to walk a mile instead of rushing to the cellphones etc. I also leave them with a guideline for going from walking 15 minutes a day to an hour a day over the course of 3 months.

Ok.......enough for now.........have a great weekend!

Mark

Mark: Welcome! I read your posting with great interest. I was so happy to find other athletes with valvereplacements I got downright teary!
It's amazing how so many of us anxious to get back to our sport and prove to ourselves we can overcome anything,perhaps push a little too hard. The other Mark gave me great advice,if your have to nap after your workout,you've done too much. The roads will always be there for us to ride and run on. This is a great support group and with the new guys like me , you, Jason and Paul; it seems like it's really growing! Please keepus informed on your monitoring with your cardiologist.
Hey by the way, where are all the female athletes? We need to talk!!!!
Laura[/QUOTE]
 
msiwik said:
3. "We are all equals." I am extremely sensitive to posting stuff about my athleticism on the website for fear that it will come off sounding arrogant etc. The truth is that while I want to find my peers (there is always going to be someone faster than me!!!), I want to encourage everyone on this site and society in general to be physically active. In my stress management courses, I take the audiences at the break just to walk a mile instead of rushing to the cellphones etc. I also leave them with a guideline for going from walking 15 minutes a day to an hour a day over the course of 3 months.

Mark - Welcome.

Between you and me - I have NEVER understood why anyone enjoys running! :D :D My husband runs and must, therefore, be wacko! (couldn't be he's wacko because he married me.) Oh, just kidding - wish I did like to run. I work out 3 times a week at a health club - but have to drag myself there to do that.

Thank you for being sensitive about your athleticism - but I think I speak for most of us "athleticly uninclined" when I say that we rejoice in your abilities and your return to what you love to do. Our common bond here is that we have all climbed over that big, nasty mountain of valve replacement and made it to the other side. Or we are looking forward to the other side after surgery. We all know that life is to be lived - however we find it most enjoyable. We all have fought to get where we are and we know what our fellow valvers have accomplished. So when we have members who celebrate returns to their active life, or members (like HosackTom) who start a new active life - we applaud, we cheer on and we pray for the ability to keep on going for our Super Valvers!

I've had my mech valve for almost 14 years. It was only 2 years ago that I found this site. I literally cried after I started reading the posts here. I felt like an orphan that had finally found my family. Oh, I've had a wonderfully supportive family and great friends. But none know first hand what I've experienced, or face still. I had never met another person who had a valve replacement. Let alone met one that had one at the young age I did.

So guess what Brother Valver? You're stuck with us. If we could be there at the end of every event of every runner, marathoner, triathlete, swimmer, biker, we would be there. But know we are there in spirit.

Best wishes as you continue your return to your love of running.
 
msiwik said:
I am a better person, better father, better husband, better friend when I can get that release through exercise.

That's it exactly. I try to explain to people that it's not about how I feel while I'm exercising (but it is fun) it's about how I feel when I am not exercising. Unfortunately most people don't understand. The reason the conversation comes up is my bike is usually next to my desk while I'm at work, I ride on my way home.

A couple of months ago after many years of no changes it looked as though surgery was imminent, after all the results were back we decided I still had more time. I went looking for people who had gone through VR and returned to their activities. A post on WebMD from someone led me here (thanks whoever you are) and it is has been great seeing all the success stories. The people on this website have helped me greatly to relax and deal with what's coming up knowing I will ride again. (who knows, maybe I can start running again too)

Welcome to the site Mark.

Karlynn said:
but I think I speak for most of us "athleticly uninclined"
Karlynn, I dealt with the same thing with my wife. After years of telling her she has to find the activity she enjoys she finally listened to me and started roller blading. If you are doing an exercise you don't enjoy it's hard to stay with it. Find what you enjoy and do that. Maybe you could try free climbing. :D
 
Finding the Right Exercise/Take it Slow

Finding the Right Exercise/Take it Slow

Karalynn & Mtbiker:

Thank you! I understand the "orphan" feelings well and stumbling across this site has made this past week so endurable. As a warning to all those who are returning to their sports, don't increase the training too much, particularly during the first 3 months. I ran 13.1 miles a week ago - the distance for my desired race on 9/11 and NOW my resting heart rate (60 to 70's as opposed to 43 to 50) is elevated and I have all the classic symptoms of overtraining. I thought I was safe because all my training had been within the target heart range but I pushed too far too soon even though I was getting good heart rate reports. Now I am sitting around waiting my body to recover!

What's interesting Karalynn is that prior to 2000, I shared the same attitude you have about running. I thought why would anybody in their right mind ever want to run and I struggled with exercise in general. It wasn't until I set a goal of running a marathon that I fell in love with the sport.

Mtbiker - I agree with you about selecting a sport. I think it's a matter of finding something you are passionate about; having a support system of family and/or friends, and having realistic expectations. I think all of us AVR patients are eager to know what should be realistic expectations and what are the appropriate benchmarks - at 3 months, at 6 months, at a year etc.

Thank you all again for replying to me. This site is a wonderful service. I am honored to be part of this community.

Mark
 
LLJ said:
Mark: Welcome! I read your posting with great interest. I was so happy to find other athletes with valvereplacements I got downright teary! It's amazing how so many of us anxious to get back to our sport and prove to ourselves we can overcome anything,perhaps push a little too hard. The other Mark gave me great advice,if your have to nap after your workout,you've done too much. The roads will always be there for us to ride and run on. This is a great support group and with the new guys like me , you, Jason and Paul; it seems like it's really growing! Please keepus informed on your monitoring with your cardiologist.
Hey by the way, where are all the female athletes? We need to talk!!!!
Laura

Hi Laura! I agree, I need to talk to a female athelete too! I'm scheduled for AVR on Sept 7, and have been doing "gentle" workouts (walking, light weight lifting, some bike riding) to stay somewhat in shape but not pushing it. I've never been a good runner but did a 1/2 triathlon in 1992 and used to ride long distances in 1985-90. Now it's gotten so I really can't run, just too pooped. Also had a baby in 1999, I think that accelerated my decline. So in that sense I'm looking forward to my surgery, I haven't been happy with the fatigue and doing middle aged suburban single mom workouts (although that title fits me)!

How did your postop go? How long did it take until you were feeling back into it? And, what kind of valve do you have? If you want to go offine, my email is [email protected]

Patty
 
Mark, thanks for getting such an enthusiastic thread going. I'm awaiting AVR and have watched my athletic "records" go down the tubes for the past two years. After a couple of decades of half triathalons and marathons I am reduced to walking 25 miles a week for the past year. Sometimes it feels like I will never get back to running, swimming and biking as I used to. All of you who have done it give me HOPE. THANKS! Barbara
 
Patty: Suburban housewife thing should be an athletic category itself! I worked part time when my kids were younger and it was MUCH easier being at work than at home!
If you have good support there is no reason to be afraid of surgery. It's very hard at the beginning,as many of the women who are moms will atest. We are used to doing all,organizing all and finding the unfindable.("Mom, where's my cleats???" "Mom, I can't fall asleep..."etc) My goal was to be able to walk my kids to the bus stop (500 yards up the block) by week 3.
Return to athletics is like all these guys on the forum say:(And I seem to recall a female swimmer in there) Slow! But with a new valve we can set new goals and reach them. I have a medtronic mosaic porcine valve. At 7 months post I feel pretty good, but have my moments.
Next time I'll e mail you at your address! Hope some more ladies check in! (Although the guys have been wonderful with their advice)
Laura
 
Reply to Barbara and Patty

Reply to Barbara and Patty

As my wife will attest, finding this website this week has been a small miracle for me. I had been sailing through my recovery - averaged 25 miles of walking per week in the six weeks following release from the hospital. And I progressed rapidly (albeit too rapidly through the five weeks when they let me be areobic again).

In terms of how much of our old self we regain, I think we need to give it a lot of time, nuture each other over the next 10 years and see what happens. From what I can tell, they haven't tracked cardiac athletes so we don't know yet what we can do!

Unlike both of you, my admission was "emergency" as I did not become symptomatic until after running a half marathon in early May 2005. My wife and I have had to make decisions in a compressed period of time (24 hours after admission we were picking surgeons and options). You both have the benefit of time and if there is any way I can help, let me know. My email is [email protected].

Take care,

Mark
 
Mark:I agree with the fact that there is little in objective data to guide us in athletic performance. I have worked as a physical therapist for 15 years and can tell any orthopedic patient with almost any surgery what parameters to follow and what may happen. When I tried to research how to progress with my condition I encountered alot of great unknowns. My surgeon was enthusiastic about my return to "all"activity except weightlifting. My cardiologist was more conservative. He believed the more demand you placed on a tissue valve the faster it would wear out. We also had the fact of my aortic anneurysm repair to consider.(Something I understand is common with bicuspid aortic valves). I also ride with a friend who has been a cardiac rehab nurse for 20 years and she agrees there is little in the way of studies to consult. Mostly, I hear if you feel good continue,if you have symptoms stop. Mark,you and I both know that sometimes the symptoms don't occur till way after you've finished the activity. So, we may be the new objective/subjective data base!
Laura
 
[ Mark,you and I both know that sometimes the symptoms don't occur till way after you've finished the activity. So, we may be the new objective/subjective data base!
Laura[/QUOTE]

Laura - thanks for your follow-up comments, in particular this last one. The symptoms of fatigue, some slight fevers etc. hit 24 hours after my last good run, which is now 8 days ago. I told my wife this morning, that if I had felt anything at all during my runs, I would have stopped and with the heart rate staying within limits, I pressed on! Back to see the doctor today - hopefully we can pinpoint the issue and get me back out there soon.
 
Lack of literature on atheletes with valve disease

Lack of literature on atheletes with valve disease

I was also disappointed to see NO research on atheletes with valve disease, the effect of exercise on the time of valve replacement, or effect of physical fitness on surgery recovery, mortality, etc. I had an ongoing debate with my cardiologist over the last 12 years that my level of exercise was much better than drug therapy for prolonging time to valve replacement (dilation of blood vessles, keeping my weight down, etc. all reducing the chronic strain on the heart). Of course I had no studies to back that up but was always curious!

Patty
 
Ross said:
Hi Mark and welcome to the forums.

As you can see, you join another long list of Marks who are fitness minded persons. You guys are going to have me all screwed up and confused soon, if this keeps up.

Just a short welcome. The rest will be round soon. :)

Roster:
Mark (Mark Wagner) = VR.com resident stud marathoner
Mark (msiwik) = new VR.com resident stud 1/2 marathoner
Mark (MarkU)= mediocre sprint triathlete aspiring to be Bill Cobit, VR.com resident IRONMAN.

We have reached our quota of Marks; any others will have to change their names so I don't get confused about which one I am...

Mark :D
 
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