New and awaiting my 1st echo results

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BicuspidMolar+Valve

Hi, my name's Tom and I'm new here...I've been lurking here since I went in for an echo on Saturday for a heart murmur I've had since childhood and some symptoms...I was supposed to get my results back today but the cardiologist hadn't apparently gone over them yet.....however during the echo saturday,the TECHNICIAN happily told me that the cardiologist will diagnose me with a bicuspid aortic valve and that I'll be around for a while so don't worry :) ....beeatch.... I was just curious if it really is that easy to diagnose a bicuspid aortic valve..? holding out hope she was wrong but it would explain alot of my symptoms at my age,23......thanks, any responses are truly welcome, bye :)
 
Hi Tom and welcome aboard.

Sorry to say, but it's best to wait for those results before throwing all sorts of stuff at ya. It may well indicate what she said, but you may have a long time before any surgery will occur too. Hang on for the ride, we all hate waiting, but it's best to do just that at this point.
 
It depends on the valve's motion and how "sonographic" you are, I believe. Likely, the bicuspid diagnosis will be based on impressions from the echo, mixed with judgement of the sounds in the doctor's stethoscope.

Diagnoses of bicuspid aortic valves are not always correct. The interventional cardiologist who did my catheter angiogram reportedly lost ten bucks because he was convinced I had one. I didn't, but my traditional three-cusped aortic valve was solidly glued into two effective cusps by calcium deposits.

The thing to remember is that whether one, two, three, or four cusps, they can definitely spot the valve's condition, and that's what really matters.

It's not a fun place to be in at any age. You're still supposed to be invulnerable at 23. The thing to keep in mind is that there are fixes for these problems. Good, solid fixes. And for the most part, they're more scary to think about than they are to really live through.

Hope your echo comes out showing a long way from problematic.

Best wishes,
 
Dick was told by all cardiologists after his echos, that the valve was most likely bicuspid. It was one of the first things I asked the surgeon after surgery- it wasn't, just highly calcified.
 
Tom, I see you are in Chicago. We have many great heart center hospitals here. If you are not already going there, I can recommend Rush University Medical Center, and my surgeon, Dr. Robert March.
 
Tom - please keep us posted - and wait for the results before you get yourself crazy. It was my impression that you cant diagnose bicuspid on echo - only "probable"
My husband is going in for his 3rd OHS and it wasnt until this week - after digging up the path report from his first operation that it is confirmed as bicuspid.
If it is bicuspid - you are in a better place than my husband was only 8 years ago. There is so much more info out there now. And VR.com is the greatest place to be!
Take care - let us know,
Christine
 
I just wanted to welcome you. As you probably know, the tech is really not supposed to be analyzing the echo. I had an echo recently done by a tech that was a total moron and I wouldn't put any faith in what he said. I am not even putting any faith in what he did or the results.

Please wait until the cardio gives you the info. We will pray for good info.
 
Hi, Tom!

Let me welcome you, another Chicagoan, to The Waiting Room -- the virtual room in which many of us await our turns at valve surgery. I'm a bit older than you (57), but never knew anything about my valve condition until during a routine physical a few years age, the doc asked me "How long have you had that murmur?" One thing lead to another, and now I'm told that I have a "probable" bicuspid valve. Probable, because it doesn't show up clearly enough on the echo to be sure, but it "looks" like it is bicuspid.

In my case, I was also diagnosed with aortic stenosis -- calcification of the aortic valve which limits how much the valve can open. I was told that the presence of the condition, at my "young" age, is another indicator of the high probability that my valve is bicuspid. There are three main causes of aortic stenosis -- having had rheumatic fever (not me. . . ), old age (not yet. . . ) or the presence of a bicuspid valve, as the bicuspid valves seem often to calcify earlier in life than normal tri-cuspid aortic valves.

At any rate, I'm still chugging along. I have slowed down a lot, but I still jog 4 miles a day, 5 days a week and work out with light weights. This along with a 50+ hour a week job, a family and a couple of hobbies keeps me going. Not to forget -- this site keeps me sane when I think all is falling apart around me, I just log on here and they set me straight.

Welcome. Stay around as long as you like. Ask questions -- the answers are here.
 
Welcome Tom: My only advice is that you're going to be dealing with this for a long time, so start getting copies of all your test results now. It'll be easier than trying to get things after a couple of years.

I'm sure you're in shock about all this; we all were, except for those who'd known about their heart problems since childhood. We're here to help and listen.
 
Hi guys, thanks for all your letters of support :) ....I really appreciate from the bottom of my heart....It's just that today I'm feeling like future valve replacement would be a dream to me in my 50's because I got a call back from my internal med doctor and she said the echo indicates a healthy bicuspid, mild mitral valve prolapse, and PULMONARY HYPERTENSION!!! She said she wouldn't worry about it because the cardiologist hasn't read the echo yet and is on vacation and that's just what the echo indicates....does that make sense? Yet she still brought it up and freaked the hell out of me :eek: !!! If you ask me I'd rather face the prospects of a med student doing a Ross on me than facing a future of pulmonary hypertension!!! :) ...Anyways any info would be so so beneficial for me right now...and right now I'm looking forward to a somewhat normal lifespan on coumadin!!! Mmmmmmmmmmmm.....coumadin :) Thanks so so so much.
 
Any echo tech who gave such a proclamation at my Heart Center would be severly repremanded or be looking for a new job. The Cardiologist's there are the ONLY people authorized to make a diagnosis to the patients.

In the mean time, it is best to get those notions out of your head (YEAH, RIGHT) and wait until you get the OFFICIAL report from your cardiologist after he has evaluated ALL of your tests and examinations. There's nothing you can (or should) do until then.

'AL Capshaw'
 
My husband has pulmonary hypertension in addition to all of his other problems.

It will be VERY important to find out how severe yours is. PH can be secondary to another cardiac or pulmonary problem, and most of the time, when that problem is corrected, the PH will resolve, although not always.

Then there is primary PH which is not caused from other problems.

In my husband's case, his was showing up in his echoes for many years, and we were never told about it. It wasn't until he was in the ER for something else, that the oncall card. told us about it and that it was severe. We didn't have a clue about it or what it meant. But my husband became very, very ill, and luckily we have a hospital fairly close by which has a specialist in PH. I made an emergency appt. with this specialist, and my husband was admitted directly from that appy., and he stayed for a month in the Heart Transplant Unit, where they keep all their critically ill cardiac patients. Not that he needed a transplant, but because he was so sick.

He was put on an oral medication, Tracleer, and that medication saved his life. There were also several other med changes which helped tremendously.

The gold standard for diagnosis of PH is the right-heart cath. Echoes are not very valuable in defining the exact nature of the illness. They can be inaccurate both ways.

Once you have a diagnosis of PH, you should seek out a specialist in the disease. This is a rare disease, and although many cardiologists and pulmologists have a little knowledge of PH, they do not specialize in it. And they may not know what treatments are available, and there are some medications for PH that can ONLY be prescribed by a specialist.

If it turns out that your PH is mild, at least seek out a specialist and ask him/her if you should be seen by them.

This is a disease that is nasty and progressive and should not be ignored. Even in the mild cases, it should be treated. It may not need the heavy-duty meds, but that pressure has to come down.

There are several very excellent medications now that can slow the progression of the disease, and in my husband's case, Tracleer reduced his pressures from 75 to 44, over the course of 2 and a half years. He needs no oxygen, and is able to function reasonably well. He is 74 years old, and has multiple co-morbidities, of which PH is just one.

Here are some websites for PH:

http://www.phassociation.org/
http://www.phassociation.org/Message_Boards/main.asp?board=1
http://www.chfpatients.com/ph.htm
 
I would rather wait it out till the cardio gets back from vacation to draw any permanent conclutions. I wish you good luck when he does get back, sounds like he has a problem, my cardio always reads mine the same day during the apointment. Hope he gets back soon for you. Hang in there.
 
In regard to the PH, don't get preturbed. While PH shouldn't be ignored, echoes are notorious for giving out false positives on PH.

Wait for the cardiologist to give you diagnoses. If you want any more early news from the echo tech, and can remember to take it with a grain of salt from now on, don't turn her in...

Best wishes,
 
You guys are awesome, thanks so much, really........I dont expect to have PH :) .......never beaten the odds on anything :) ....I am really just stoked that I have valves that look good for now.....having to check in on the PH is only really a temporary delay of my happiness that will come.....thanks alot guys, really thanks...fear of the unknown is worse than anything...you fill me in on so much, thanks God Bless....and heres to future advances in the treatment of all disorders not just the ones we have...particularily those suffering from PPH..........thanks so much
 
Suggest you obtain a copy of the actual echo results & report sent to your internist. When I have an echo, it's done first, then I wait while another cardiologist analyzes the video & does a report. Finally, I see my cardiologist, who goes over the report and I ask for a photocopy of it.
Last month I got dupes of my echo report from my PCP. Also got an additional summary report that my cardio sent the PCP on my last echo, 5/26/05. It said how I looked, my weight loss & how well my heart was working, as evidenced in the echo.

Keep a copy & report of every echo done, as well as other pertinent info -- CBCs, lipid panels, etc.
 
Thanks for the info, catwoman. I do have a bicuspid and prolapsed mitral so it's something I should definitely watch. I plan to be as proactive as possible in protecting my heart from damage because of my valves. Yeah, I don't know about my cardiologist..he really takes his time :) ....Doctors, can't live with em, can't live without em :)
 
Hi guys, can you provide some info on my situation. I went in for an echo and a bicuspid was discovered...there appears to be regurgitation but the quality of the echo is really bad so the cardio want's a closer look at my bicuspid. I'm going back to dental school friday and I don't have time to play games with the physicians :p ......any thoughts on me not getting another echo for a couple years or until during Christmas...isn't it true that defective valves progress very slowly to more defective.... so if I'm mild it might take 20 years for it to become moderate or worse....or if it is moderate, as it progresses symptoms become impossible to miss. I'm 6'1" 170, stressed out with everything but otherwise healthy. :D thanks and God bless
 
If your doc wants to get a better look, you better find the time to do it. Don't assume anything. It's always better to be safe than sorry. And if it turns out to be OK, that's one less thing for you to be stressed about.

So call him back and make arrangements.
 
BicuspidMolar+Valve said:
Hi guys, can you provide some info on my situation. I went in for an echo and a bicuspid was discovered...there appears to be regurgitation but the quality of the echo is really bad so the cardio want's a closer look at my bicuspid. I'm going back to dental school friday and I don't have time to play games with the physicians :p ......any thoughts on me not getting another echo for a couple years or until during Christmas...isn't it true that defective valves progress very slowly to more defective.... so if I'm mild it might take 20 years for it to become moderate or worse....or if it is moderate, as it progresses symptoms become impossible to miss. I'm 6'1" 170, stressed out with everything but otherwise healthy. :D thanks and God bless

Gotta tell you from personal experience on longivity of valves, no life time guarantee. Had repair at age eight on the aortic valve and replacement of the same valve 28 years later. I hope to not have another for life, but no real guarantee. But, in the meantime, I will do better and live longer by taking better care and doing what the cardio tells me to do. And keeping active certainly helps. Good luck and hang in there. Welcome to the club. And no way to escape echos, they are here to stay, no matter what.
 

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