need some extra prayer

[tiggerangelgirl]

just wanted to check in with all of you . I havent been doing really good and dont have much energy, a friend is going to help write some info on me every once in awhile.
I want to thank all of the wonderful people who are on this form ,for the ones who do the praying,and to those who ask those hard question we all think about but feel stupid to mention, and to those who keep the forums filled with fun. I really do think of this forum as a part of my family because it has helped me to see heart disease, and to know others are out there that feel just like you and sometimes are worse off.
I just wanted to send another thank you and to let each and everyone of you all who come in and read and post it really does make a difference. Right now I am going through a very hard time ,my health has really gone down pretty bad, and I can also say my spirit, the drs are trying to figure this all out but I just dont understand how hard can it be to send me to a major clinic where at least I can have some chance,I really dont know how to go about it and i feel so bad that i really cant even try to handle it, so im asking you all again to please keep me in prayer, I know God is in controll and no matter how this comes out it will be His perfect way.
My lung drs called me today unexpected and told me that they were doing a lung biopsy, and they need to do it next week, they said that my catscan pictures came back abnormal and showed something on the bottom of my lungs, he tried to explain it to me and said that what it looks like its bits of fine broken glass laying at the base of my lungs, I dont understand this one but if anyone has ever heard of this please send me a post . I go next friday for the biopsy so anyone who could muster a prayer on my behalf would be great. I have a wonderfull church family here who have been helping me and praying but extra couldnt hurt. thanks everyone i pray that those who are facing surgery go with the peace of the lord and know that vr will be right there with you.

 

[tommy]

Nicole,

Thanks for the update. I will certainly pray for you and your family.

God doesn't give us more than we can handle (with His help).

 

[catwoman]

Nicole:

I am adding you to my prayer list.

I certainly agree with Tom: God doesn't give us any more than we can handle...

 

[Nancy]

Hi Nicole-

You are having such a terrible time of it. I do find some comfort in the fact that your pulmonologist called and is going to do further testing. Even though it must be a concern for you, at least one of your doctors has some compassion and is doing something for you. Maybe this doctor could be an entrée to getting other necessary care for yourself. When you see him, ask him about it.

Let us know what the tests show.

 

[Christina L]

Nicole,

Hang in there and know that I am praying for you and thinking of you. You are a very strong woman of great faith and God will provide whatever you need.

If there is anything more that we on the board can do for you - please let us know. I feel kind of helpless here. I went to Cleveland and Dr. Cosgrove's assistant is very helpful to talk to, if you would want her phone number - I can send it to you PM. Her name is Jeanne and she is a real help with questions and all.

As for the "ground glass" look on your lung scan, I have heard of that but am not sure what it is.

God hold you in the palm of His hand -

Christina L.

 

[hensylee]

Nicole - I am glad you have found comfort through the connection with VR members - that's what the site is about. None of us, including you, will ever know how many lives have been touched and helped by VR.com (thanks, Hank). You are always in my prayers. You certainly have a hard time and are to be admired for just hanging in there.

As to help - ask every doctor and medical person you meet for further references and who knows, you might get all kinds of doors opened for you. You need that extra help that we always hear about. God bless you - and the children.

 

[Turkey Hunter]

May the Lord bless you and keep you
May the Lord make his face to shine upon you and be gracious to you
May the Lord lift up His countenance upon you....
And grant you Peace

Both Now and forever.

You will be in my prayers.


I also went to Cleveland Clinic and I didn't come across a doctor or assistant that wasn't helpful. I can share contact information with you if you would like. Just send me a Private message and I will do so.

Ben

 

[NascarfanMary]

Nicole,
You are certainly in my prayers. I am a Cleveland clinic patient and as Christina said they are wonderful people. I too was very ill and close to the end back in July. Keep trusting in the Lord. He is in control and he will give you the strength to face each day. If I can be of any help, let me know. May Gos Bless you and I will be praying for you. Keep us updated.

 

[RickKiem]

Nicole,

I was glad to see your post. I have been worrying about you since you were posting guite often before. I have been praying for you each day and hope that you are able to find some answers soon. I will be thinking of you on Friday and hope that the procedure goes well and can lead to further resolution of your problems. Keep your chin up. Your faith will see you through this. Keep us posted as best you can.

Rick

 

[EVELYN]

Hi Nicole

You have been through so much....I will put you in my prayers. Remember, One day at a time!!! I wish for you the best.

Evelyn

 

[bvdr]

Thanks for posting Nicole. I have been looking for news from you.
I'm sorry that you are still struggling so hard. I do keep you in my prayers and think of you very often.

They are probably looking at the "ground glass" appearance on your chest CT to evaluate how much of your lung tissue is taken up with pulmonary fibrosis so they know how to proceed. I think your doctors just are at a loss as to what to do. I know this waiting is really taking a toll on you both physically and emotionally and I feel so bad about that.

Has anyone ever mentioned transplant to you? If your lungs are too bad for heart surgery and your heart is too bad for lung surgery than.....?????

You had mentioned possibly going to the DeBoer (sp?) Heart and Lung institute. Is that still a possibility?

 

[Ross]

I am so happy you found a way to keep us current, even though you are so dis-abilitated (is that a word?) at the moment

If it wasn't, it is now!

 

[Kathy]

Nicole,

I am always so moved by your posts. You seem to have such a deep faith.

Many prayers are sent your way. I will pray for your doctors, as well, that they may find some answers for you.

I hope that your girls are well. I remember that you had organized Christmas far in advance in the event that you were hospitalized.

 

[Karlynn]

Nicole,
Thank you for finding the energy to keep us posted on your situation. You are being prayed for "without ceasing".

 

[LDS4EVER]

YOULL BE IN OUR FAMILY PRAYERS

YOULL BE IN OUR FAMILY PRAYERS

HI, iM CHRIS I read your letter to us in the forum you are right they are family we go through so much together and support oen another i dont know what i would do without all of them i felt so much compassion for you and yoru family i know its hard when as young as we are our health is not so good i have had many bad time myself i wish i could colme and put my arms around you and cry with you live each day and enjoy it plz try life is so short we dotn know when we will be called back to god we will pray for you dont worry prayer is a powerful thing take care chris

 

[Nan]

Nicole, I am holding you in the"light" and hope that you will get good news soon.

And Ben sent you my very favorite Benediction which I also send on to you!

Hang in there!

Nan

 

[Georgia]

Nicole, bless you. My prayers are with you; don't give up - you're young and your age will be a big plus when someone decides what can be done for you.

As Tevye said in "Fiddler" - "Lord, couldn't you choose someone else . . . ?" I think you've had about enough. I surely hope 2004 will be kinder to you than last year.

Do let us know how the girls are doing. And we appreciate that someone will post for you.

 

[Bill Hall]

Nicole - Thanks for the update and sorry you are not doing that great. I will be in the Outer Banks this weekend. I do go to church on Sundays and will definitely say a prayer for you while I'm there. Do you suppose it will have greater effect, since I will be close by?

 

[MarciaB]

Nicole,

I am keeping you in my thoughts. I hope hope hope things will improve for you.

Marcia

 

[Missy]

Nicole,
I am praying for you. Do not give up hope. Keep the faith!