need everyones input and help please

[tiggerangelgirl]

I have not been able to check in for awhile it seems things are going downhill alot faster now. I need some serious help thier is this family in my church who is willing to take me anywhere if I can find out where and if a team will take on my coplicated case. Pretty much my Drs here have been giving me the run around,not returning calls or even allowing appts,when I get better guess which people will be praying that they never just left me.
What iam asking from you all is if thier is any way that you can find any information for me on how to get to mayo clinic, if there are any programs available to transport a sick patient and is thier a place where you can stay while being treated there.
I am really sick ,im getting alot worse ecspecially my breathing, my chest pain is terrible i have been to the er but all they do is send me home doped up for the night, not knowing what do do for me. I can barely do things for myself but im trying my hardest to find a way to get to the clinic. If any of you out there have drs at mayo clinic can you please ask them are there ways to get a sick 27 yr female there who is in congestive heart failure, has pulmonary fibrosis and a rare disease called ehelers-danlos, if any of you all have friends or dr please help me I really need it , the drs around here have pretty much given up ,but I know that there still are places out there can help and Im willing to do anything if that means hoping on a plane and going to mayo , its just i dont know anything about it, what programs they have and if they have any accomadations that would help me stay, anybody with any info and with any information you can get from your own drs would be appreciated. I need all ya'll prayer and as much help as possible . You can send any info here or to my email address and from there i can give you a telephone number that I can be reached.Iam very desperate and dont know what to do I am praying that somebody can help me ,thank you so much for all your prayers and help hopefully I ll get some great info that will get me on my way. love nicole

my email [email protected]

 

[HFK]

Hi Nicole,
Sorry your not doing well. Do you have family that are with you?
Here in Minnesota the Mayo is about 1.5 hours by car from Mpls. You have 2 choices if you can not get a referal from your end then the only way to get to Mayo is fly here to Mpls. then drive to Rochester and go directly to St. Mary's hopspital at the Mayo they have several hospital's that are at Mayo ,but this is the only one that you can actually get into without a referal. They will triage you to the appropriate place, if you are as sick as you say I hope you would be able to make the flight,if so you would most likely be a direct admit from triage. Dr Hartel Schaff is the Director of Cardiovascular Service ,he is also world renowned , his number is 507-255-7068. HFK

 

[labguides]

Angel Flight

Angel Flight

Try Angel Flight

Angel Flight West provides free transportation to medical treatment for people who cannot afford public transportation, or who cannot tolerate it for health reasons. Angel Flight also flies missions in response to other compelling needs

http://www.angelflight.org/

 

[Ross]

Labguides link is the one for Western states, but outside of that area see this link for information

http://www.npath.org/

As far as Mayo and how they operate. You need to get someone to let you make some phone calls to Mayo and see what can be done. I'm sure your Doctors would have to submit what records they have in order for them to determine if they can help.

 

[Kathy]

Nicole,


http://www.mayoclinic.org/becomingpat-rst/appointments.html

This is the link for the Mayo Clinic page. It tells how to call and says that you can go to the clinic without an apoointment, but may have to wait.

I am somewhat familiar with the clinic. My dad lived close by and was treated there. There are flights to Rochester, although they are not direct. I always had to transfer to another flight in St. Louis or Minneapolis. There are limos and cabs available to get to the clinic. There are several hotels within walking distance to the clinic. It's a small city so stores and restaurants are easily accessible, as well.

My family doctor did NOT think it was necessary for me to go to the Cleveland Clinic, but I did not need a refferal from him. You are entitled to a copy of your records to take with you. I only needed records relating to the heart.

Here is the info from the Mayo site:

You may make an appointment at Mayo Clinic in several ways:
Phone:
Appointment Information Desk: (507) 284-2111
TDD service for the hearing impaired: (507) 281-9786
Between 8 a.m. and 5 p.m. Central time, Monday through Friday.

Write to:
Mayo Clinic
Appointment Information
200 First Street SW
Rochester, MN 55905

Make direct arrangements with your Mayo doctor if you are already a Mayo patient.

Ask your local doctor to refer you and arrange your appointment

Coming to Mayo Without an Appointment
If you come without an appointment, we will try to begin your exam as quickly as possible. You may wait a few days, a week or longer depending on the number of patients already here. If you are very ill, ask to be seen immediately. A Mayo doctor will talk with you to evaluate the severity of your illness. This doctor's recommendation will determine how soon you will be scheduled for an appointment. The doctor also will determine the appropriate area of the clinic for your initial appointments. The patient service representative in that area will give you an approximate waiting time and explain the waiting policy.