My dad's heart valve replacement surgery

Valve Replacement Forums

Help Support Valve Replacement Forums:

This site may earn a commission from merchant affiliate links, including eBay, Amazon, and others.
Q

qball

Hi All,

First I would just like to thank everyone for sharing their experiences as it has been very helpful these past few weeks.

I just wanted to share my dad's story (he's 73 years old) which began about two weeks ago on 8/17/09. He woke up around 2 am with chest pains and in a cold sweat. He woke up my mom who then woke me up and I took him to the hospital since he refused that I call an ambulance. He gets stabilized and then 2 days later is transferred to the hospital in which his regular heart doctor worked. This doc had told my dad he would need a valve replacement over a year ago but my dad had held off for fear of the surgery I'm guessing. But after this mild heart attack my dad agrees to do it and it's scheduled for 8/24/09.

On the Thursday before the surgery the oral doctors come to look at my dad's teeth and said that due to poor hygiene he would need some of his teeth pulled out before the heart surgery. They didn't want any bacteria or infection to travel from his teeth/gums directly to his heart. So he gets 4 teeth pulled out on that Friday. The day after I go to visit him and he tells me that getting them pulled out was the most painful experience of his life and that he doesn't think the oral surgeons gave him any local anesthesia. I asked the oral dr. that came to check on him but he denied anyone would do that but he didn't do the actual pulling (this is bad omen #1).

I go home on that Saturday night and decide to come back Sunday to visit again. Sunday morning I get a call from my dad saying that he is bleeding out his mouth and no one can stop it. So I rush to the hospital to find that his mouth is bleeding from the extraction points. I ask the nurses what is going on and they think it might have been a blood thinner he was given. The worst part is that the oral surgeons see him 3 times over 12 hours or so and the best treatment they can give him is to have him pack gauge in his mouth to stop the bleeding. But every time he puts 2 new ones in they become soaked in blood after about 10 minutes and he needs to replace them. This happens for probably 12-16 hours until the nurses finally call the heart doctor cause he is losing so much blood that he fainted while being helped to use the restroom, and then needed a blood transfusion. The heart dr. gets the oral surgeon to come up and he finally decides to give him stitches and to "burn" the wound so that it seals. This works and it's like someone shut off a leaky faucet. Why didn't they do this in the very beginning...I have no idea (this is bad omen #2).

I stayed with him Sunday night and he finally gets some rest although I couldn't sleep all night. The next morning, Monday, he goes in for prep at 6:30am and surgery at 8:30am. My mom, sister and brother wait with me in the waiting room and the surgery is finally done at around 4:00pm. I talked to the surgeon and he said he had a Bicuspid Aortic Valve ever since he was born and it was replaced with a bovine tissue valve. He also had to get a Coronary Bypass Surgery Graft done. The surgeries took about 5 hours but he had some excessive bleeding that they had to clean up but that he was looking good as far as how the surgery went. We all see him for about 15 minutes before leaving since he is not expected to wake up til the next day.

The next day (Tuesday) we go see him and he still has the breathing tube in. He is barely awake but can wiggle his toes or grasp your hand if you tell him to. Since he is older and smaller than a normal person (5'1" about 100 lbs) we figure that all the drugs still haven't flushed from his body. The next night (Wednesday) I see him and he has a feeding tube inserted and he has restraints on. During the day when my sister visited him and they removed his breathing tube he started howling in pain for hours. When I see him he keeps asking me to remove his feeding tube and that his legs were being crushed by something although nothing were on them. I can tell he's very delirious and I become very concerned about his mental health. The nurses and docs say that it's temporary and attributed it to "pumphead" from the heart/lung machine. When I go back home I did some research and found that it is most likely "post-op delirium" from the anesthesia & pain drugs they gave him.

Luckily on Friday, he has mostly gone back to normal, mentally. They have the feeding tube out and he is given oatmeal and eggs for breakfast. He's able to eat them but later in the day around 6:00pm he complains about not being able to breath. They slap a respirator type device on him that pushes air into his throat so that his airway and lungs expand. Everyone can see that this is very painful on his throat and he tries to remove it a few times. The nurses come and put the restraints back on him. The ENT docs come and take a look at him and say that his left vocal cord is paralyzed. He also has fluid/mucus in his lungs that need to be removed and the docs/nurses want him to try coughing it out. They also tried to suction it out by inserting a tube down his nose. This looked very, very painful and my dad tells me this in very hoarse whispers.

It's now Sunday, 6 days post op, and my dad cannot talk because of the damaged vocal cord. He tries to write what he wants but I think his weaken body and mind cause his hand writing to be very tough to decipher. He still has the feeding tube in, and the nurses continue to jam the suction tube in his nose to try and get the fluids/mucus out of his lungs. I try to get him to cough by putting a pillow to his chest to ease some of the pain. But after about 5-6 coughs he is winded and needs to stop. The heart doc has told me he also has bad kidneys and is why he's still puffy looking because all the fluids haven't drained yet. He also will have to get a pacemaker because his heart rate is not in sync after the surgery. And that the ENT and kidney specialists will see him tomorrow to see what to do next.

It looks like he's breathing hard all the time, he's very tired, and I think he is becoming very depressed. He wrote to the nurse in the middle of the night that "he's dying". This freaked me out this morning when I saw it and tried to reassure him he wasn't and he would be ok. He then writes to me asking why don't the doctors want to save him. I've just been trying to let him know they are doing everything they can and that he still needs to do his part like the coughing. But he just wonders why the docs cannot fix him.

Well that's it for now. He's awaiting the pacemaker, waiting to see how they are going to fix his vocal cord and lungs so that he can get off the feeding tube. They also need to evaluate his kidneys and see if he'll need dialysis.

If you've read this far then I want to thank you for listening as I needed someplace to vent. If there are any suggestions or recommendations my dad and I would greatly appreciate them.
 
Glad you found us and welcome. This is quite a story and I am appalled at a couple of things. I will say that some people after such a surgery will act a little odd and think things are happening that are not. This should pass; just be patient and supportive. You should also try to have someone with your dad as much as possible to make sure things are being handled.

I think the dental thing was handled poorly and I am surprised they did his OHS so quickly after such intense extractions. I would have assumed they would wait until his mouth healed a little but I guess they felt he needed the surgery more.

Vent away - we are here to listen.
 
So sorry for the ordeal your father has been through.

I have to say that my eyes welled up with tears because your father sounds so frail already & all this has got to take a great toll out of him!

I too am surprised that he went thru the surgery so quickly after the extractions but I guess the drs. knew best.

As GeeBee advised, try to be with your dad as much as possible to make sure that the nursing staff are attending to his needs. Perhaps if you have siblings or other relatives, you could take turns staying with him.

Best of luck to you & your father --- I pray that he gets better soon!
 
What a Horror Story about how your dad was treated.

Sadly, there are Lots of issues, starting wtih his fear of the surgery and not getting the care he needed earlier.

Do you know what kind of 'blood thinner' he was put on after his Dental extractions? Some of our members have had SERIOUS problems with bleeding after Lovenox injections were administered following multiple Dental Extractions.

You may want to get copies of his records, especially about the tooth extractions and verify whether he was given adequate local anesthesia.

I can't help but wonder if the ZOO like atmosphere between disciplines could have been avoided if someone was overseeing his care. That's one reason we typically recommend that someone (family, friends, etc.) be with patients 24/7 to watch for signs of distress and verify that treatment and medications are what was ordered and appropriate.

After you Dad gets home and is on the road to recovery, it would be interesting to know what Hospital gave this kind of 'Care'.
 
Hi Q, Welcome but sorry your Dad and family are having a tough time. I know how hard it is to have a loved one going thru all of this, but it's my son who has had the surgeries. I'm not sure where to start, but quite a bit of this is pretty normal, but I'm a little confused about a couple things.

I'm not sure why he was howling in pain for hours, most hospitals try to keep the pain under control. Is he still having much pain? if so I would ask the doctors to try a different/more pain meds.
The Respirator (Friday) sounds like C pap, they try to see if that helps with the O2 so they don't have to put him back on the vent.. and honestly if he tries to pull it (or anything else) off they have to restrain him. Is he on any Oxygen now? If not that's a pretty good sign. Does he have a spirometer, little breathing thing that probably has balls in it, that he has to take deep breaths and in and out of a small hose? if so make sure he is using it often that helps alot getting the junk out too.
The vocal cord is common but not REAL common and from what I know they usually don't (can't) do anything.
He does have to cough, unfortunately it does hurt but that's how you have to get the junk out of your lungs if he doesn't it could end up getting pnuemonia ect. He doesn't have to cough alot of coughs in a row, just frequent coughs usually works for Justin. Is he able to get out of bed or walk around at all? That usually helps getting things cleared up. even if it just short distances at first. That also helps some with getting rid of the fluid. Does he have respitory therapy coming in with breathing treatments or anything?
I'm not sure why he has the feeding tube in, was he not eating enough when it was out? Alot of times things don't taste good right after OHS but he has to eat to have enough energy to recover. I'm not sure what his lungs have to do with the feeding tube staying in. Is there anything he is hungry for that you or someone can bring in?
Unfortunately recoverying from OHS is alot of work for the patient and alot of things he just has to do himself and I'm sure the fact he had the heart attack before the valve replacement, the recovery will probably be a little longer and harder. Please make sure you and your Mom rest up while he is still in the hospital so you don't get run down or sick before he comes home when you'll have to help him.
BTW we live outside Philly in Camden County nj
Lyn
 
I'm sorry for the horror story your father is going through right now. My mom had a serious surgery in her 70's and I know first hand how delerious she was from all the drugs. She made no sense at all a large portion of the time for the first week to 10 days. However, having said that, you and your family have to do some serious advocacy for your dad if you aren't already. You should be questioning every drug, every order, every person that literally walks in his door. I would not leave him alone like this. Not to mention that I think an older person does better when they have a familiar face and voice around in a situation like this.

I think Al is right, I would start reqesting copies of the medical records NOW, starting with the extractions. If the hospital staff thinks you are looking over their shoulders, you may notice a change. I too cannot understand the feeding tube at day two post op. I bet I didn't eat the equivilent of one whole meal the whole time I was in the hospital.

It does seem, from your description, that you are in a little bit of a zoo. You and your family need to take control of the situation for your dad's sake. You have every right to do so.

Best of luck to all of you. I'm very sorry for your situation.

Kim
 
I agree with a lot of the things Lyn has said. What they are doing with your dad might just be what they have to do to get him back on track. From an outsider's point of view these situations can appear brutal. But they might be necessary. You cannot have people pulling out tubes and other stuff that they need to get better.

Quite honestly, I have seen my husband in all of the situations you have mentioned right to the cPap to avoid the vent, feeding tubes, naso-gastric tubes and restraints. And I am one of the very most proactive people imaginable and was by my husband's side most of the time and watching EVERYTHING.

I have also seen my husband completely delirious on many, many occasions. It is from a combination of medications, anesthesia, the surgery itself and even ICU psychosis which is a real and temporary phenomenon.

But I also say that you need to be there every possible moment with your dad, or someone else has to. Just to keep an eye on things.
 
Oh qball what a nightmare and happens here in Canada as well my sil
mother had a valve replacement at 83 yrs old ,surgery this past May she
too had alot of things happen and was moved here shortly after the Doc stopped her warfarin,because it was 3.8 stopped for almost 3 days and another bad relaspse happened any way her surgery was in May and she is still in hospital since,thats along time,they go through so much
I am glad u posted and add my prayers and good thoughts for you along with
your dad....Keep us posted on his recovery.
 
Thanks everyone for the support.

geebee,
We were trying to get the surgery pushed back a day or two but during the ordeal with the blood lost my dad started having chest pains again and had to be given nitro. The doc said as long as that old valve is in there he is going to have these problems so I didn't question it further. Although deep down I wanted to yell at him that they were the cause of the chest pain.

njean,
We all try to stay by his side as much as we can. My brother and sister both work near the hospital so they are able to visit during their lunch break and after work. I have a much further drive so I can only watch him after work for a hour or two. Today and yesterday everyone was there pretty much all day.

ALCapshaw2,
I thought I was in the twilight zone or something when my dad was losing all that blood and noone could help. The doc said he was given a Plavix the day he was admitted. Why he wasn't bleeding uncontrollably during the extraction I'm not sure. He didn't start bleeding til the next day so they may have given him something else. We are very trusting of all the docs and nurses but after this experience I'll need to be a little more proactive.

Lynlw,
I think he was somewhat screaming and making a scene because he was still out of it mentally. He may not have known where he was or what was going on although the nurses kept telling him that he just had surgery and kept asking for his name, occupation and other personal info to see if he still had his memory. They did a CAT Scan too because they were afraid he may have had a stroke. It came back negative. He still has an oxygen mask on to help with his breathing and he does have a spirometer and I was trying to get him to use it today. He's very weak though and its tough to get him to stick with it. He has a feeding tube in because they say if he ate or drank anything they think some of it will go into his lungs. They said there is other damage that may be causing stuff to fall into his lungs and the vocal cord problem is affecting his swallowing.

kfay,
I will try harder to see if I can put the scare in the staff. But I am always thinking I don't want to piss anyone off for fear of what it might mean to my dad's "care".

BTW...my sister just left the hospital and said that he will be getting an injection to his paralysed vocal cord so that it stays shut and the working one can function better. He'll also get the pacemaker put in at the same time. I'm hoping these will help him along.

Thanks again for the prays and support. I'll update this thread with more news, hopefully good news, in the days ahead. And I will definitely name the hospital when this whole nightmare is over and my dad is getting better. If you really want to know, PM me and I'll let you know.
 
Oh qball what a nightmare and happens here in Canada as well my sil
mother had a valve replacement at 83 yrs old ,surgery this past May she
too had alot of things happen and was moved here shortly after the Doc stopped her warfarin,because it was 3.8 stopped for almost 3 days and another bad relaspse happened any way her surgery was in May and she is still in hospital since,thats along time,they go through so much
I am glad u posted and add my prayers and good thoughts for you along with
your dad....Keep us posted on his recovery.

Wow, since May? It's so tough watching your parents, who you've looked up to for so long have to go through such rough times. Best wishes to you and your mom from the USA.
 
Oh, sounds like a very difficult time for both you and your father. I can relate to difficulties of sugery and care for our parents. My mother recently had emergency surgery (not heart related) and I experienced the same with the howling for pain and pulling at tubes. I know it was definitely from the drugs. They switched her pain meds on the second day and she seemed to be getting much better. We could actually communicate with her. Then they did not update her chart so after the shift change that evening they were back to the old pain meds. The next day when I arrived she was howling for pain and pulling at tubes again. She had to also be restrained. She is 82 and is generally quite a complainer so it was difficult to know what was actually pain and problems and what was the meds. But like I said we deduced it was the medication and it took quite a badgering from me to have the information changed in her chart to get her on other pain medication.

Please vent all you'd like - it will certainly help you cope. I will pray for you and your father and hope things start to improve.

Lori
 
Qball -

Do all that you can to encourage (or FORCE) your dad to do the Breathing Exercises with his incentive spirometer. It Literally can be a matter of Life or Death!

The Breathing Exercises help to
re-inflate his lungs
clear out the phlem from his lungs
Prevent Pneumonia

As I said, it can make the difference between Life and Death.

I was told to use the spirometer for 10 minutes every 2 hours I was awake.

Many of our members strive to have 'someone' not associated with the Hospital with their family member 'round the clock', double checking ALL meds and doses and keeping a record to avoid missed doses or double doses. Those kinds of things DO happen, even in the Best of Hospitals, especially if things get 'hectic' and substitute nurses pitch in to handle the load.

OTOH, your dad's fear of surgery and avoidance of proper medical care contributed to his deterioration and exacerbated his situation. Not much can be done about that now.

Hope he is able to 'turn the corner' and begin to make progress.

Do all you can to MAKE him join the Fight.

He MUST get out of bed, Walk around, even a few steps at a time, if he ever wants to be able to live on his own again.

Waiting until he 'feels better' to become active is ....
well you know what will happen.
 
I agree with Al, even tho he may get angry you and the rest of the family HAVE to get him to to use the spiro, cough ect it is the only way he will get better.
That and walking. I'm not saying this to scare you, its just I know of people that didn't do their breathing or walking (or other excercises they can give you if for some reason you can't walk) and they didn't get to go home. I feel for you.
 
Wow, a real house of horrors that hospital turned out to be! I felt pain for your father. I agree with others who said to be there day in day out, have someone trade shifts with you. The poor thing sounds like they found/created one catastrophe after another with your father. What a shame on them. Hope he is feeling better soon. God bless,
 
Quick update. Looks like the breathing exercises will have to wait. He has developed pneumonia :( and is now sedated on a ventilator and has tubes near his lungs to try and get some of the fluid out. He's also finally on dialysis. I had to "insist" that the heart docs get a lung specialist to look at his lungs...wtf? I will be asking for a kidney specialist to look at that tomorrow morning. His heart seems to be ok except for the need of a pacemaker, it's just all this other stuff...lungs, kidneys, vocal cord.

He's on Propofol and Fentanyl for pain and sedation. He was given antibiotics to fight the pneumonia but I don't know what kind. He is also on Neo-Synephrine (not sure what this is and my google search says it is to shrink blood vessals in the nasal passage?), Vasopressin (cause his blood pressure is now low), and Epinephrine. He wasn't on blood pressure meds the last few days cause it was normal. Now it's low due to the new problems.

I'm praying he gets better so I can force him to do all the breathing exercises, heart exercises or whatever he needs to do to get back on his feet.

Oh, sounds like a very difficult time for both you and your father. I can relate to difficulties of sugery and care for our parents. My mother recently had emergency surgery (not heart related) and I experienced the same with the howling for pain and pulling at tubes. I know it was definitely from the drugs. They switched her pain meds on the second day and she seemed to be getting much better. We could actually communicate with her. Then they did not update her chart so after the shift change that evening they were back to the old pain meds. The next day when I arrived she was howling for pain and pulling at tubes again. She had to also be restrained. She is 82 and is generally quite a complainer so it was difficult to know what was actually pain and problems and what was the meds. But like I said we deduced it was the medication and it took quite a badgering from me to have the information changed in her chart to get her on other pain medication.

Please vent all you'd like - it will certainly help you cope. I will pray for you and your father and hope things start to improve.

Lori

You would think the staff would prepare the family more with this possible side effect in elderly patients. This was very scary for all of us as it was for you. I hope your mom is doing good now.
 
We are praying right along with you. Keep up the advocacy work - you will be his best weapon.
 
I am sorry to hear this, I was afraid that would happen. Hopefully a short time on the vent will let him rest up and give his body time to heal and then he can work on recovering and getting home. Luckily it seem like they caught this earlyso hopefully the antibotics will work quickly.
I know how scarey it is both my Mom and son ended up going back on the vent after OHS but they both had full recoveries. I'll keep you all in my prayers.
 
How is your Dad's attitude / spirit?

A Positive Attitude is a Key ingredient to a successful recovery. If he isn't 'in the game', that does not bode well for a Good Outcome.

He needs to understand that if he wants to 'go home to live a productive life', he needs to take an active role in his recovery, become a "fighter", and to embrace all the exercises and procedures the Doctors prescribe for his recovery. He also needs to know that Other Patients his age HAVE recovered and are living a good and active life. Our member Marty had surgery in his 70's and is still working half-time (in his 80's now), when he isn't out playing Golf!

If your dad takes a Passive Role (as he did with his breathing exercises), he may never get home. It is THAT important. I hope he chooses to LIVE and fights for his life.

'AL Capshaw'
 
Back
Top