Mitral Valve Prolapse w/ Moderate Regurgitation, fertility med's & valve surgery!

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emmylala2003

Hello everyone,

I'm new to this board, I found you all through the MVPS website (mitral valve prolapse syndrome). I am a 28yr old married female with a rather complex set of problems, so if your willing to listen, here goes. I was diagnosed with Mitral Valve Prolapse w. Moderate Regurgitation in June 2004. I hadn't really had symptoms until after I was diagnosed, my symptoms have included heart palpitations, flutter, shortness of breath, swelling in my right leg only, chest pain, numbness in my arms, just to name a few. My cardiologist didnt tell me much about the condition other than it was nothing to worry about, she would see me every year for an echo to see if the condition was progressing and to take antibiotics before any procedures where blood would be an issue. I did ask her what would happen if it progressed and she mentioned surgery, but in the distant future. I thought nothing more of it. Now my husband and I have been thinking of starting a family next year, but I have PCOS, which stands for Polycystic Ovarian Syndrome, its basically a hormonal disfunction which impairs your fertility significantly. I was told that I would need to see a fertility specialist and take fertility drugs to have any chance of becoming pregnant. The decision to try to start a family brought put my heart valve issues again, and I looked into what Moderate Regurgitation meant. I came to find that there are four levels of regurgitation Trace, Mild, Moderate & Severe. It is at the Severe level that the topic of surgery begins to come up. So now I'm not sure what to do. I feel almost certain that at some point in the near future I will need surgery, since my next stop is Severe Regurgitation, and I wonder how will taking fertility medication and becoming pregnant affect my condition? will it worsen it? should I reconsider getting pregnant? I know it could take years of trying for a baby, before you succeed, do I really want to spend years trying only to fail in the end and then have to face heart surgery? and if I succeed, and have a child, how will I know I will be around long enough to care for this child. Are these heart valve repairs/replacements likely to fail?, can a person die from the operation itself or shortly afterwards?

As you can see I have MANY questions. I appologize for coming on so strong, but I'm so excited to have found this site and would love any feedback and or suppport.
 
Hi
I just want to welcome to the sight. It sounds like you've got alot of things going on. I too! had lots of trouble getting pregant with my second daughter. MY two are 9 yrs. apart. I was told right after my second daughter was born that I had mitri-valve prolaspe. But never was told what that meant in the long run. That was in 1984 and it wasn't till 1992 that I started having probems. And I didn't have my first surgery for repair till 1999. And was told it would last 10 yrs. Well, that didn't happen.In 2002 I had my mirti valve replaced and it was like I got a new lease on life. I a little older that you are(ok alot older) I have been to two reunions with alot of the members from this sight and most of them have lead a full life after open heart surgergy. My story is a little different. But I have ajusted to what I can & can no do. But I think youth is on your side. I wish you all the luck. I am sure you will get a lot of advise from everyone. In the end you are the one who have to make the decision.
 
Just wanted to welcome you to the group..........

Just wanted to welcome you to the group..........

Although, I don't have any info for you, I am sure that some others will pop on here soon that can help you. There is a thread under the "Significant Others" forum that involves an MVRer and pregnancy, but she had already had her MV replaced, if I am not mistaken. Still, it might shed some light and be a place to start your research. Good luck and keep us posted.
 
Hi Emmy. Although I'm not in the same boat exactly (I have aortic valve issues and am thinking of pregnancy in the future) I just wanted to say hello and welcome to the site. I am also a NYer. There are a few MVP people on here who have dealt with pregnancy issues. Hopefully they'll chime in for you. Did you talk to your cardio about the fact that you wish to have kids?
 
Welcome Emmy!

I was diagnosed with MVP right after I got married (at 22). I had my first child when I was 25 and had no problems what-so-ever. Unlike you, I was not having any symptoms from the MVP nor did I need to pursue fertility treatment. When I became pregnant with my second child at 26 (kids are 2 years apart) I began having all sorts of problems with arrhythmia. My doctor at the time told me they should go away when I had the baby. They didn't and 5 years later I had my valve replaced. That was 13 years ago.

I can't tell you what fertility treatment will do to your valve. I do know that you do risk making the valve worse more quickly with a pregnancy. However, there doesn't seem to be any one reason as to when pregnancy "tanks" a valve. We have several women here who's pregnancies hurt their valves. With some it was their first, with others it wasn't. One of our members , Christian, has a wife that just went through a successful pregnancy with her MVP. She was closely monitored. He kept a sort of journal on the whole process right here called - Pregnancy with Mitral Reguritation. Try this link
http://valvereplacement.com/forums/showthread.php?t=6171

I would make sure that your doctor is truly on top of your valve issues by getting a second opinion. The old "It's nothing to worry about." is heard here frequently, and while it might be nothing to worry about, it can also mean that the doctor prescribes to the thought that most people don't have any significant problems. Not all cardiologists have the expertise to treat valve issues. Some just aren't geared towards anyone young having problems with their valves. I had 2 doctors that just couldn't get past the fact that I was having troubles with mine at such a young age. One tried to tell me all my symptoms were in my head and wanted to prescribe valium. I should also mention that if you are being treated by an internist for your valve problem - find a cardiologist now. An internist is fine if you aren't having symptoms and have a trace diagnosis, they can monitor you through a yearly echo. But once you have symptoms and progress past trace, you need to be with a cardiologist.

Since you are considering getting pregnant, and need to pursue fertility treatment, you should find a valve expert (our members can direct you to one near you hopefully) and have them work you up and give an opinion on what you should do.

You are being SO responsible by getting the facts on this prior to making any move in getting pregnant.

Welcome to our family.
 
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